Adam
@abrokenbattery
Clip from yesterday’s BBC South report about the #MECFS Alliance event on the future of #MECFS and #LongCOVID research. Sam, an ME patient, says the government failing to fund further research after the success of DecodeME is “absolutely disgraceful”.
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Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed their minds” Clip from Hope 4 ME & Fibro NI Collaboration
“They sometimes aren’t supported by their families. They almost always aren’t supported any longer by their friends.” Caroline Kingdon, on the profound isolation experienced by people with severe #MECFS.
Hearing the stories of people with #MECFS who took the Decode ME results to their doctors and for the first time were believed is incredibly powerful. Sonya Chowdhury CEO of Action for ME on BBC Lifeline and how they are building on this work to move closer towards treatments.
“She actually asked me a couple of times, you know, am I going to die? She felt so unwell.” Isla is 10 and developed #MECFS after a COVID infection. She is 95% housebound and just wants to “have fun and do things with her friends”. From BBC Lifeline: Action for ME
In response to a question from @ZackPolanski.bsky.social on #LongCovid @DrAmirKhanGP.bsky.social says “I feel really helpless when I see them.” People who were healthy just a few years ago, a lot of them have lost their independence & ability to earn and there’s nothing in place to look after them.
Jo Platt MP, who lives with #MECFS and #LongCovid, told UK Parliament the COVID-19 Inquiry found Long Covid was repeatedly dismissed despite affecting nearly 2 million people. She asked the Government what steps it will take to act on the Inquiry’s findings, 23 April 2025.
#MECFS is a “medical” and a “social catastrophe.” — Jörg Heydecke, founder of Germany’s ME/CFS Research Foundation. One patient waited 19 years for a diagnosis. Another said she was told her symptoms were psychological and that she needed to get on with it.
The CDC made a public awareness ad about #MECFS in 2007. I’m not aware of a similar public health campaign since, despite increasing numbers linked to long Covid and the lack of awareness that exercise can make people worse.
6 years since the first UK lockdown. #LongCovid hasn’t gone away. ONS estimates from 2024 suggest ~2 million people in England & Scotland. Every infection carries a ~1 in 50 chance of developing long Covid that could last anything from four weeks to being effectively permanent.
“This is not a life, it is miserable. So how do I feel? Not even human anymore.” A 36-year-old woman with severe #MECFS confined to bed, on oxygen and a feeding tube, unable to tolerate light, sound or vibrations. Clip from Swiss TV
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Dems and the GOP along with ‘Israel’ are responsible for crimes against humanity and the intentional extermination of Palestinians. Did you vote for genocide? If you did you’re responsible too.
Se me había olvidado subirles está joya. Lo último de la temporada de la Orquesta de Minería. Y aunque hay varios bemoles que debería contarles, debo decir que siempre se disfruta un gran concierto. #divulgaecita #mineria #concierto
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No NYer should suffer bc they can’t afford the medicine they need to breathe. I proudly passed my bill w @NYSenatorRivera to require insurance plans to cover inhalers without out-of-pocket costs. This is more than a policy win—it’s a victory for health & environmental justice. Bit.ly/QNSJGR
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If you do receive the funds? Donate to Tala and her brother. She is a prophet so she’d share it with her community as well. She is a part of our house now. 🏡 Her brother, I worry has been sick. He takes on a lot of responsibility, it’s not right that Israel did this. I will vouch for Gaza
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98% Parents misunderstand THIS about kids behaviour! Access Full Guide: https://go.growdeen.com/positive_behaviour_environment Your child isn't difficult. Your home might be. Small changes make cooperation natural. #fyp #viral #Islam
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𝙏𝙝𝙚 𝘿𝙖𝙞𝙡𝙮 𝙂𝙧𝙤𝙬𝙩𝙝 𝙏𝙞𝙥 𝙛𝙧𝙤𝙢 𝙒𝙚𝙗𝙜𝙚𝙣𝙘𝙮 | Day 102 – Share a customer testimonial as a social media graphic. Words alone get ignored. Add a photo of the client or their business for authenticity. To get more of those reviews that matter, contact us for a 𝙛𝙧𝙚𝙚 𝙘𝙤𝙣𝙨𝙪𝙡𝙩𝙖𝙩𝙞𝙤𝙣 today. Visit webgency.co/contact
#photojournalism #photographycovrage #streetphotography over #newjersey scenery at #delaneyhall ice center abduction center private citizens protest
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ENTREVISTA | Leila Nachawati, experta en Comunicación y Conflictos y profesora en la Universidad Carlos III 🗣️"Después de lo que ocurrió en Gaza todo sucede de la misma manera pero más deprisa en Líbano" ▶️ rtve.es/rneaudio
Excerpt from White Tiger (Belyy tigr; 2012). The film ends with Hitler saying, "But we simply found the courage to carry out what Europe dreamed of doing. They never loved the Jews!" This has an awful ring of truth—& a reason Europe loves Israel today no matter what: it doesn't want the Jews back.