Back
navigate with arrow keys

Adam

@abrokenbattery

Patients with #MECFS in Living Hell (1993) describe their interactions with doctors. “Drug addict” “Alcoholic” “School phobia” “210 doctors told me I was crazy” Patients still report similar experiences today.

13

Likes

6

Reposts

1

Replies

Replies 1

More from Adam

“Having ME is not a choice.” A 37-year-old woman with severe #MECFS says the disability assessment process in Switzerland is “simply dangerous and unsuitable for people like us”. Clip from Swiss TV on severe #MECFS.

21 7
Adam

TW: Assisted Suicide Clip from German TV. Kim has #MECFS and describes how her illness has progressed, leaving her bedbound and sensitive to light and sound. At 25, she talks about her decision to apply for assisted suicide, saying she can no longer live like this.

30 15
Adam

People with #LongCovid, #MECFS and similar conditions don’t get the recognition and funding they deserve — @DrAmirKhanGP.bsky.social Unless decision makers have been personally affected, it’s almost as if they think ‘it won’t happen to me’ — @ZackPolanski.bsky.social

44 28
Adam

NICE committee member Adam Lowe says one person left for personal reasons. It’s not clear why the other two left, but Adam suggests it could be due to external pressure. For example, one member was asked to account for a patient refusing GET because of the draft guideline.

3 2
Adam

George Monbiot describes the treatment of #MECFS as “The Greatest Medical Scandal of the 21st century”. Repost of the introduction to my 27-minute explainer video for #MEAwarenessMonth — now optimised for phones.

54 29
Adam

Really good explanation of Post-Exertional Malaise (PEM), the hallmark symptom of ME/CFS, and why pacing activities is so important. Clip from German TV science program.

39 18
Adam

“Chronic fatigue is not the only symptom. It is one symptom amongst so many others.” Dr Ranj explains what ME/CFS is, why the term Chronic Fatigue Syndrome does not reflect the reality of the illness, and why many patients prefer the term ME.

27 10
Adam

Gabby Rudge-Cox caught Covid in 2021 and has been diagnosed with #LongCOVID #MECFS #Fibromyalgia and #POTS. Her husband had to give up his job as a policeman after a Covid infection as well ”it has ruined our lives”.

13 5
Adam

“This is not a life, it is miserable. So how do I feel? Not even human anymore.” A 36-year-old woman with severe #MECFS confined to bed, on oxygen and a feeding tube, unable to tolerate light, sound or vibrations. Clip from Swiss TV

38 23
Adam

#MECFS is a “medical” and a “social catastrophe.” — Jörg Heydecke, founder of Germany’s ME/CFS Research Foundation. One patient waited 19 years for a diagnosis. Another said she was told her symptoms were psychological and that she needed to get on with it.

26 15
Adam

Fix Earth or explore space? Why not both? Leenk In Byo for the full podkast and for the "Spacebound" song download (not available on streeming platferms). #spaceexploration #savetheplanet #podcast #spacebound #mightyonemanband

1 0
Mighty One Man Band

Next #CXLFireChallenge spotlight 🔥 An Australia-Mexico partnership: ISFMI & Biomasa field-tested Emissions Reduction Traditional Fire Management (ERTFM) — supporting healthier landscapes while creating financially sustainable pathways for communities. Watch the video!

0 0
Conservation X Labs

CORE Rules! ChimeraSHOCK! TTRPG in a world of Steam Engines, Bi-Planes, Airships, Black Powder, Super Science, Swords, and Majhic... Evolution on each world like ours doesn't happen all at once. Technology doesn't propagate at an equal rate. Cultures collide. #dnd #steampunk

0 0
JWilliam Cruse

Rep. Melanie Stansbury : The Epstein cover-up by the White House and DOJ continues now,Trump is targeting members of his own party who have supported survivors and the release of the files Clearly, they don’t want whatever they’re hiding to come out—and they’re going after those who get in the way

0 0
immacule

Draw three. @JHarden13 | #LetEmKnow

0 0
Cavs (bot)

Recapping Temple’s 95-67 win over Saint Francis ✂️Video clip below ⬇️ 🗞️Read my column at Big5Hoops site👇 big5hoops.com/aaron-bracys... 🎥FULL video recap at BracySportsMedia TikTok 👇 www.tiktok.com/t/ZTrqa9pdR/ #Big5Hoops

1 0
Aaron Bracy

Featured on KTVU 2 News, Ca Climate Action Corps Fellows & AmeriCorps service members joined nearly 200 volunteers for a #MLKDay of Service at Rainbow Park in City of San José. Together, they planted trees & restored green space. 🪴 Find opportunities at bit.ly/45Y4Vcx @cityofsanjose.bsky.social

3 0
California Volunteers, Office of the Governor

Starmer on the brink as cabinet ministers urge him to quit #keirstarmer #labourparty #election #shabanamahmood #london #news #curiousfellow

1 0
Farkho

May 18, 1995: Orlando's Shaquille O'Neal steals the ball from Scottie Pippen and takes it in for a slam during Game 6 of the ECSF. O'Neal had 27 PTS/13 REB/4 AST/4 STL in a 108-102 Magic win that eliminated the Bulls from the playoffs. Pippen had 26 PTS/12 REB/6 AST for Chicago.

65 3
NBA Cobwebs

Fuck my chud ghouls n ghosts fightin life

3 0
StrayCatChillin

Nobody successful is doing this alone. Social media is lying to you. The people trying to copy “self-made” narratives are the brokest ones. Tune in: https://youtube.com/live/-zVFpma6U3g?feature=share #theuntraditionalentrepreneur #teamwins #businessfacts #entrepreneurfocus

0 0
jumingdelmas

🚨 Cúilín Media - Podcast Clip! 🚨 In this one, the lads discuss Kilkerrin Clonberne winning their fifth All-Ireland Title in a row 🏆 One of the greatest dynasties of all time 👑 Full Pod available on YouTube & Spotify 🔥 #LGFA @ladiesfootball.bsky.social

0 0
Cúilín Media

President Trump says the White House is preparing to host UFC Freedom, a UFC fight on the South Lawn in celebration of America’s 250 and the president’s 80th birthday on June 14. https://fox11online.com/news/nation-world

0 0
WLUK-TV FOX 11

On a misty mountain trail lies the legend of the 'high fiver' #FeelGoodTime #FGT

0 0
Morning Live

the algorithm in physical form. #imurme #brainrot #funny #memes #internetbrain

0 0
imurme

#ThriveThursday ~ Success doesn’t rest because your greatness is in motion. Keep going! #WomensHistoryMonth #WomensHistory #CelebratingWomen #keepthriving #nevergiveup

1 0
yolohewe

💥🔥 🇺🇦Ukrainian servicemen from the MURAMASA unit continue destroying Russian logistics and supply routes along the front line.

32 4
24Hours Ukraine

steyer literally *is* the petrocracy how do people this cataclysmically stupid leave the house every morning without accidentally exploding themselves

3 0
🔬godhatesyeast🔬

¿Y tú cómo te llamas? (final imperdible)

0 0
remirey

Tintin is proud to show off her family’s farm! 🐔 ✨ With a new chicken coop and support from Save the Children, Tintin’s family is raising healthier chickens, earning extra income and putting more nutritious meals on the table! ❤️

3 0
Save the Children US

We ❤️ you Láolú | Repost #laolunyc From canvas to catwalk, the art has always been integral to fashion transforming, conversing, and living through and beyond runway. NYFW proves how our intersections keep evolving - every pattern, line, and moment spars dialogue between art and style. #nyfw25

1 0
Shirley Chisholm Cultural Institute

Come chiudere con stile un match durato 5 ore 😎🇧🇷 #Tennis #RolandGarros #Djokovic #Fonseca

0 0
Eurosport IT

Turn your LMS into something students actually want to use 🎯 GBL Virtual Conference 2026 shows how to design courses like games—engaging, interactive, and yes… even fun. June 5–7 | Online 💻 gblconference.com/ #Gamification

0 0
University XP

The bar scene in downtown Walnut Creek is not the greatest. You have a few old bars that aren’t cool enough to call dives and a slew of nice restaurants that serve cocktails. But now, a new rooftop haven is filling the void, and it comes from an unlikely source: an office park brewery 3 miles away.

4 0
SFGATE

adaptlypost literally did in 10 seconds what usually takes me an hour to figure out lol #adaptlypost #contentcreation #socialmedia #creators #fyp

0 0
AdaptlyPost

Apify Claude Connector. It can scrape any public data on the internet. Social media. Reviews. Whole websites. I've built a scheduled task that scrapes my Instagram every week. Claude analyses the data, ranks my top performers. Then I modify next week's content plan. Full setup guide on my Substack.

0 0
Deb Szabo

'It is thrilling that the Chambers will be finished... You say that it must all seem another world. I assure you that it is a world which I want to explore very badly.' #thisweek 1946 as he begins his 7th month at Nuremberg David Maxwell Fyfe looks to his future. #Nuremberg80

0 0
Songs of the People

And there were women who just kept their long, curly hair, Roaring Twenties cliches be damned.

30 0
Movies Silently

If lubricant lubricates, then glue binds. #gamedev #pcgaming #indiegame

15 6
GLASSHOUSE - Lockdown CRPG

Oh ya, Fargo is a good one, you betcha. Comedian Comrade Tripp discusses Minnesota on TV on my podcast, One Hour Detours.

0 0
One Minute Tours

Milo’s Notebook TONIGHT (Friday) at TFF!! #furry #furryfandom #littlealphapup #texasfurryfiesta #tff @furryfiesta.org

89 11
Little Alpha Pup (Milo) 🔜 FWA?

Akale makes it 6-0 City

7 1
CJ Fogler

$60 Million UFC Fight on the White House Lawn — Who's Really Paying? - Visit https://oldhippiemedia.com/ for the rest of my content and much more.

4 3
Tom Powell Jr

Power prices in PA and NJ are about to go up by as much as 20% on June 1st. Protesters gathered outside PJM’s headquarters, calling for more investment in green energy they believe could bring down prices. Catch my story on @wfmz.com at 6

0 0
Rob Manch

I’m warning y’all…#rfkjr is gonna make me lose it…Truly…#stopmisinformation #omg #imgonnaloseit

0 0
The TransParent

“I did everything right… and it still wasn’t enough.” Working full-time shouldn’t mean choosing between water bills and car repairs. It shouldn’t take multiple incomes to raise a family. This is why we’re marching nationwide TODAY. Because dignity > just getting by. maydaystrong.org #MayDayStrong

1 1
People's Action

This Friday we open the doors to our newly refurbished pavilion! Massive thanks to everyone who made this a reality. Join us for a momentous night with live music, a stocked bar, epic food from the Sizzlin' Rig, and a bouncy castle! Everyone is welcome! 🍻🍔🏰

0 0
Sileby Town Cricket Club

Vtubing is simply an enjoyable activity

47 7
Melony Pepon

If you like sabotage ☀️ gaslighting ☀️mind games or murder☀️jump into CLOUDS OVER KATAHDIN 📚💙 Buy at https:// books2read.com/KincaidMystery2 #mystery #suspense #psychologicalthrillers #booksky

4 0
Anneka Lowrie | Author

Coisas impressionantes acontecendo em united states of corporations.

5 2
Raquel

Check out the trailer for Golf 5 Max, coming soon to Steam! Tag a friend you'd love to play with 🏌️ #indiegame #gamedev #golf #arcadegames

5 1
Golf 5 MAX

Ro Khanna pointing out that Massie got crushed after: • pushing Epstein file transparency • opposing war w Iran …is probably the clearest “follow the money” moment we’ve seen in a minute. The machine tolerates rebellion right up until it threatens power.

1 1
Democrat Rolodex

📢 I’m officially starting my studies to become a ✨3D Environment Artist✨, excited for what’s ahead (ノ>ω<)ノ 💛!

12 2
✨🎀ELI🎀✨

Taxpayer Money Gets Sent To Transnational Criminals in China?!

0 0
Daily Caller

So it’s been SEVEN days Trump has been disappeared, & those clips we’ve been seeing are pre-recorded. Well, we might be getting close to the worldwide dance party.

4 0
Maya Media

More footage of missile strikes on Kyiv - possibly a failed interception, as explosions in the air are also visible as the missile streaks in from left of frame. Another very heavy missile attack on the capital, death and injury toll bound to rise.

21 8
Euan MacDonald

Recent footage of Pinky Jr. (Dou Ban) exploring her yard at Vienna Zoo 🩷

12 4
Touhin Panda🤍

I Was a Prize, Michael — County Fair 2005 Changed Lives - Visit https://oldhippiemedia.com/ for the rest of my content and much more.

4 0
Tom Powell Jr