Adam
@abrokenbattery
“Having ME is not a choice.” A 37-year-old woman with severe #MECFS says the disability assessment process in Switzerland is “simply dangerous and unsuitable for people like us”. Clip from Swiss TV on severe #MECFS.
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Really good explanation of Post-Exertional Malaise (PEM), the hallmark symptom of ME/CFS, and why pacing activities is so important. Clip from German TV science program.
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Short German TV clip. Kalea, 17, has lived with #MECFS since 2019. Post-exertional malaise means she must carefully ration her energy, even small activities can trigger a drastic deterioration in symptoms, leaving her unable to see anyone, in a dark, quiet room.
“This is not a life, it is miserable. So how do I feel? Not even human anymore.” A 36-year-old woman with severe #MECFS confined to bed, on oxygen and a feeding tube, unable to tolerate light, sound or vibrations. Clip from Swiss TV
Sleep hygiene can be just as “damaging as graded exercise” for patients with #MECFS Dr Nigel Speight describes a girl with severe sleep reversal. She walked into hospital and was carried out a month later needing to be tube fed.
Clip 2 (WDR German TV): Dr Astrid Weber from the Long Covid Clinic in Koblenz says ME/CFS cases have exploded since Covid. ME/CFS isn’t new — despite being around for decades, many doctors know little about it. She wants to educate them. It’s a physical, not a mental, illness.
Clip 3 BBC Politics North: Luke Akehurst MP says it’s “shocking” that #LongCovid services are being closed when ~2 million people live with the condition and about half consider themselves disabled. Covid is “not yesterday’s problem”, it is still causing events to be cancelled.
Edited Clip from BBC inside science ME/CFS diary: Jo @therealmecfs.bsky.social talks through a week with #MECFS: showering once a week, rationing mental and physical energy, pacing carefully, and experiencing post-exertional malaise if she exceeds her limits.
Clip from German public broadcaster ZDF’s science programme MAITHINK X – Die Show discussing claims made by the Gupta Programme, a brain-retraining approach for ME/CFS.
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You are 100% right! As a society we must learn to listen without judgment. Match others' energy and only give back what they are willing to give you. We all must freely use our voice without restraint or limitation. What we have to say is important and due the respect it deserves. SPEAK UP!
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❗Προς κλιμάκωση βαίνουν οι διαδηλώσεις στην Αλβανία για το πολυτελές τουριστικό θέρετρο που συνδέεται με τον γαμπρό του Ντ. Τραμπ, Τζάρεντ Κούσνερ, αφού οι πολέμιοι της επένδυσης - μαμούθ απέρριψαν την πρόταση του Έ. Ράμα «να συζητήσουν λύσεις». Credit: aprajitanefes #skaigr #news
The sophistry inspiration: A scene from an anime named Overlord Here, a discussion takes place between the leaders of two kingdoms. Ainz (skeleton) is the aggressor and is explaining why he plans to slaughter the other leader's entire populace. Pay attention to the surface-level argument he uses.
Qué escena tan impactante: una avioneta estrellada en medio de la calzada, con daños visibles. La gente que presenció la caída estaba estupefacta.