Adam
@abrokenbattery
#MECFS mentioned briefly in yesterday’s parliamentary debate on EDS. Liz Twist MP highlights EDS overlaps with ME/CFS, MCAS and PoTS, and Minister Sharon Hodgson says the NIHR is already expanding its work on overlapping conditions including ME/CFS and post-viral syndromes.
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Professor Chris Ponting on the 116 blood molecule differences his team found in people with #MECFS “This is not a psychological disease” people did not alter their blood molecules...
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Clip from BBC Politics North: A GP describes how #LongCovid ended her career after she needed a wheelchair within a year of contracting the virus. She says patients are being for...
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Psychiatry has caused a lot of delays and damage in the field of #MECFS. A lot of work needs to be done to undo harm from theories such as patients excessively resting, being afrai...
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Brief clip: Whoopi Goldberg raises concerns about #LongCovid on The View. She says one of her employees’ mothers has the condition and can no longer go out to do her job, so now wo...
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Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed t...
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Short German TV clip. Kalea, 17, has lived with #MECFS since 2019. Post-exertional malaise means she must carefully ration her energy, even small activities can trigger a drastic deterioration in symptoms, leaving her unable to see anyone, in a dark, quiet room.
Clip from German public broadcaster ZDF’s science programme MAITHINK X – Die Show discussing claims made by the Gupta Programme, a brain-retraining approach for ME/CFS.
“So what you’re really telling us is that everything we’ve been taught in our training as nurses is wrong for this condition.” Dr Nigel Speight describing a nurse’s reaction after he explained how to care for a patient with severe #MECFS.
“They’re in a darkened room, they can’t tolerate light or sound… some are even tube fed. They’re so unwell, you almost can’t fathom it” Former Team GB rower @oonagh_cousins on people with very severe #MECFS and #LongCovid and the importance to advocate for those who can’t.
Clip from BBC Politics North: A GP describes how #LongCovid ended her career after she needed a wheelchair within a year of contracting the virus. She says patients are being forgotten by politicians and the NHS as the last dedicated clinic in the area prepares to close.
Powerful testimony on #MECFS by Emma Shorter in the Scottish Parliament from 2018 “It turns fit and active people into ghosts… I know teachers who can’t teach, children who can’t play, and parents who can no longer hold their children.”
What is #MECFS? A brief overview of symptoms, diagnosis and management based on the 2021 NICE guideline. It’s not being tired all the time, patients have an energy impairment that dramatically limits their activity.
As George Monbiot says in this clip @davetuller1.bsky.social’s work was “absolutely crucial” in helping him understand the problems with #MEcfs research when writing his seminal article. I’ve just donated to David’s crowdfunding campaign to help keep his work going.
Clip from yesterday’s BBC South report about the #MECFS Alliance event on the future of #MECFS and #LongCOVID research. Sam, an ME patient, says the government failing to fund further research after the success of DecodeME is “absolutely disgraceful”.
Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.
Housing shapes everything, including health, opportunity, and stronger communities. Hear Columbus Mayor Andrew Ginther share his vision for a more inclusive Central Ohio. Then join us at Under One Roof on June 4. Tickets https://bit.ly/4uDXrpR #UOR2026 #Housing #EndHomelessness
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"We don't have a gas supply problem. We have a gas export problem. “This is now the time to act.” – Nicolette Boele MP ✍ Sign the petition calling on the government to tax the gas industry its fair share! 👇 https://theaus.in/4uAU9Dp
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Građanima onemogućen ulaz na događaj koji se organizuje u Pionirskom parku. Kako navode, rečeno im je da je ulazak dozvoljen isključivo uz "koordinaciju".
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😂😂😂 An Australian man inadvertently appeared on the runway during an Australian Fashion Week show at Tamarama Beach in Sydney on May 12, 2023.
Gas is Europe’s most critical vulnerability, and countries that rely on it for electricity production, like 🇮🇹, 🇬🇷, or 🇮🇪, could see a big increase in bills. Meanwhile, countries using more renewable energy, like 🇪🇸 & 🇵🇹 are more resilient against the price shocks. Read more @eurcorrespond.bsky.social 👇
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A new New York Times/Siena poll shows Donald Trump hitting the lowest approval rating of either of his two terms — 37% approval, 31 points underwater on the economy, and 42 points underwater on the cost of living. Critics say Trump has done nothing to lower costs for everyday Americans.
Isn’t it crazy how trying to heal your body naturally today is almost always called “conspiracy” when this was literally the norm back in the days? @eva.hooft
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Repost by @DragonflyJonez This Ime coaching 😂 Click to see original repost
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This Day in Buster..August 17, 1931 The Sioux City Journal prints, "Feminine Clothing as a first aid to comedy has its drawbacks, according to Buster Keaton.'If the skirts are too narrow, you may get laughs and take a chance on breaking your neck; if they're too wide, you can do-
Here was Trump 3 weeks ago -- on March 26 -- announcing the incredible "present" Iran gave him:
Posted 1 day ago by @gunnyspeaksout.bsky.social "gunnyspeaksout: A child matters more than politics. What am I missing here? #realtalk #newsupdate #politics #breakingnews #unfiltered"
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Josef Pazderka 𝕏🔁 @KamilKrilov@twitter.com: 💔 Boris Němcov, matematik a fyzik, bývalý vicepremiér Ruska za vlády Borise Jelcina. Vzdělaný, zkušený a charismatický liberální politik, demokrat. Zřejmě poslední reálná šance pro Rusko udržet kurs směrem ke slušné […] [Original post on zpravobot.news]
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