Adam
@abrokenbattery
“They’re in a darkened room, they can’t tolerate light or sound… some are even tube fed. They’re so unwell, you almost can’t fathom it” Former Team GB rower @oonagh_cousins on people with very severe #MECFS and #LongCovid and the importance to advocate for those who can’t.
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Professor Chris Ponting on the 116 blood molecule differences his team found in people with #MECFS “This is not a psychological disease” people did not alter their blood molecules...
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Clip from BBC Politics North: A GP describes how #LongCovid ended her career after she needed a wheelchair within a year of contracting the virus. She says patients are being for...
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Psychiatry has caused a lot of delays and damage in the field of #MECFS. A lot of work needs to be done to undo harm from theories such as patients excessively resting, being afrai...
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Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed t...
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Clip from German public broadcaster ZDF’s science programme MAITHINK X – Die Show discussing claims made by the Gupta Programme, a brain-retraining approach for ME/CFS.
Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.
Wes Streeting wants GPs to stop writing so many sick notes and send people to the gym. Worth remembering Brynmor John MP had #MECFS and died on Westminster Bridge in 1988 after exercising in the House of Commons gym. He had been advised to exercise his way back to fitness.
Clip from the Death Clock Podcast - Dr Leonard Jason explains why healthcare professionals often interpret post-acute infection syndromes as “psychological” — and how patients are traumatised not only by the illness itself, but by people’s reactions to it as well.
Patients with #MECFS in Living Hell (1993) describe their interactions with doctors. “Drug addict” “Alcoholic” “School phobia” “210 doctors told me I was crazy” Patients still report similar experiences today.
6 years since the first UK lockdown. #LongCovid hasn’t gone away. ONS estimates from 2024 suggest ~2 million people in England & Scotland. Every infection carries a ~1 in 50 chance of developing long Covid that could last anything from four weeks to being effectively permanent.
“They’ve had their lives completely demolished by this illness.” Millions are living with #LongCovid while society has moved on. Former Team GB rower @oonaghcousins.bsky.social developed #MECFS following Covid and had to retire.
Really good explanation of Post-Exertional Malaise (PEM), the hallmark symptom of ME/CFS, and why pacing activities is so important. Clip from German TV science program.
#MECFS mentioned briefly in yesterday’s parliamentary debate on EDS. Liz Twist MP highlights EDS overlaps with ME/CFS, MCAS and PoTS, and Minister Sharon Hodgson says the NIHR is already expanding its work on overlapping conditions including ME/CFS and post-viral syndromes.
Olympian Montell Douglas presenting BBC Lifeline for Action for ME “For years, I’ve had chronic pain due to a medical condition and know how difficult it can be to live with. And those with ME also have to deal with social stigma and a lack of support.” #MECFS
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According to a leaked memo, the DOJ is charging the IRS with going after the funders of nonprofit organizations. The news is no surprise, says @GRITLaura.bsky.social. Stay until the end of this week’s show for her commentary, and look out for the extended version on Substack: bit.ly/3MzgDDN
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Hi, hi brother @6cats4adomino.bsky.social! 👋💖 We are off to see The Mandalorian & Grogu. You know This Is The Way! 🤣 Be back later - hopefully there are still some shenanigans going on. 💖😁😂
🚨 Only 4 people will get access. No posts. No DMs. Just one email in 5 days. Want in? 1️⃣ Tap the link in bio to sign up 2️⃣ Like + follow to stay in the loop 3️⃣ Smile This is your only shot at something special. 🎯 #ExclusiveOffer #VIPAccess #LinkInBio #MysteryDrop #EmailOnly #LimitedTimeOnly
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In the first article of our Seventh Edition, @mennarawlings.bsky.social, former Ambassador to France, reflects on three and a half decades as a diplomat – and on peaks women have yet to scale. Read the full article here: heywoodquarterly.com/the-progress... #CivilService #Diplomacy #Equality
Only 2 national parks in Scotland. Missed opportunity? What happens in the environment is shaped by policy. What's coming in 2026 from the UK's Parliaments? New episode out today. Are our governments getting policy right on climate,nature and water? Listen via link 🎧⬇️ bit.ly/PP_2026_Policy
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E. Jean Carroll beat Trump twice. Won $83.3M. So now his henchmen at the DOJ are coming for her. The same department shielding the powerful is targeting the survivor who refused to stay silent. It’s a threat. Call it out. It’s disgraceful.
Every child should get a free school meal, helping them stay healthy and get a good education.
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Trump doesn’t give a shit unless he sees it in the actual burger he’s eating, but lots of luck with that🤷♀️
Exact same action here for Maya Caldwell. Curious as to if anyone has any better classifications for this set.
F*ck MAHA, I want cures Every day that RFKJr. stays in power is another day public health protections are weakened. We need you to join the fight for science to protect our health. #MAGA #trump #MAHA #RFKJr #science
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Cuando escuchas "vivienda protegida" piensas en un alquiler que por fin puedes pagar. Pero la realidad es distinta. En Madrid: Un piso de 70 m2 en el Plan Vive exige ingresos mínimos de 37.000 al año. Si el salario más frecuente en España es de 15.575 €, ¿a quién está protegiendo realmente?
A to jste věděli, že SOCDEM ještě existuje a dokonce má i předsedu, nějakého Nedvěda?