Adam
@abrokenbattery
Clip from a WDR German TV report: Pascal Hilgruber developed ME/CFS following a Covid infection or vaccination. He now spends 80–90% of his day in bed and says being able to go to the toilet on his own feels like an achievement.
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Professor Chris Ponting on the 116 blood molecule differences his team found in people with #MECFS “This is not a psychological disease” people did not alter their blood molecules...
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Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed t...
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#MECFS is a “medical” and a “social catastrophe.” — Jörg Heydecke, founder of Germany’s ME/CFS Research Foundation. One patient waited 19 years for a diagnosis. Another said she was told her symptoms were psychological and that she needed to get on with it.
George Monbiot describes the treatment of #MECFS as “The Greatest Medical Scandal of the 21st century”. Repost of the introduction to my 27-minute explainer video for #MEAwarenessMonth — now optimised for phones.
Helen Gibson and Edward Monroe on BBC Radio 4’s Feedback challenge Suzanne O’Sullivan’s claims that #LongCovid is largely psychosomatic when she was interviewed on Amol Rajan’s podcast. Mentions #MECFS, NICE’s 2021 guidance and DecodeME genetic findings.
“So what you’re really telling us is that everything we’ve been taught in our training as nurses is wrong for this condition.” Dr Nigel Speight describing a nurse’s reaction after he explained how to care for a patient with severe #MECFS.
Olympian Montell Douglas presenting BBC Lifeline for Action for ME “For years, I’ve had chronic pain due to a medical condition and know how difficult it can be to live with. And those with ME also have to deal with social stigma and a lack of support.” #MECFS
Clip from yesterday’s BBC South report about the #MECFS Alliance event on the future of #MECFS and #LongCOVID research. Sam, an ME patient, says the government failing to fund further research after the success of DecodeME is “absolutely disgraceful”.
#MECFS patients and advocates not only had to fight flawed research and harmful treatments, they also had to deal with attempts to discredit them, like a PACE author calling an MP “unbecoming” and accusing MPs of defamation and libellous comments for scrutinising his work.
Jo Platt MP, who lives with #MECFS and #LongCovid, told UK Parliament the COVID-19 Inquiry found Long Covid was repeatedly dismissed despite affecting nearly 2 million people. She asked the Government what steps it will take to act on the Inquiry’s findings, 23 April 2025.
“This is not a life, it is miserable. So how do I feel? Not even human anymore.” A 36-year-old woman with severe #MECFS confined to bed, on oxygen and a feeding tube, unable to tolerate light, sound or vibrations. Clip from Swiss TV
Patients with #MECFS in Living Hell (1993) describe their interactions with doctors. “Drug addict” “Alcoholic” “School phobia” “210 doctors told me I was crazy” Patients still report similar experiences today.
🍃 𝑰'𝒎 𝒔𝒐 𝒆𝒙𝒄𝒊𝒕𝒆𝒅 𝒕𝒐 𝒎𝒆𝒆𝒕 𝒚𝒐𝒖!! 🌼 🌱 DEBUT stream on August 24th at 3pm ET 🌱 .°˖✧ #vtuber #vsky #envtuber #vtuberdebut ✧˖°.
Coordination keeps teams strong. Sharpen your mind. Ignite your flame. #fyp #anime #demonslayer #mindset #health
Posted 20 hrs ago "_paperplanet_: A call has the power to save a life & this is especially true for queer #kids. Trump cut that line, then erased every mention of #trans and #queer people from 360 #government records. Through this hotline trained counselors, picked up the phone..." Thread 2 👇
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The First Christian Emperor. 🏛️🛡️✝️ This AE Nummus of Constantine I (AD 307-337) is a survivor of Rome's greatest religious and political shift. In NGC Choice XF condition, it offers a stunningly clear window into the 4th Century. 🪙📜🏺 Shop the legacy: 🔗 https://kinzercoins.com/collections
The key word is COULD. Billionaires COULD do so much for humanity, but they're not, due to their mental illness called billionaire-ism. Thanks to @lucasaferrara for having me on Shake it Off Live on AM970#TheyCouldBeSaviors #ClimateFiction #VisionaryFiction #FictionForChange #ReadMoreBooks
Pikniğe giden bir genç, masanın üzerindeki tavuk dolu kabı sakince alıp uzaklaşan köpeği paylaştı: “Saklama kabını geri getir, annem kızıyor.” #deprem #yağmur #Malatya #Butlan #THM
Reminds me of someone from last night 😂 @bearden64.bsky.social @eamonnfarrell.bsky.social
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use your imagination that ballroom he just has to have because Marlargo isn’t enough it’s not about the ballroom. It’s about the Epstein’s Island bunker. He’s building underneath because anything Hitler had Trump has to have as well. He won’t even use any of his stolen money to pay his hit squad.
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