Adam
@abrokenbattery
Karen Quinn spent most of the 1990s bedbound with #MECFS. “We didn’t have Sky, we didn’t have computers, we didn’t have internet… I just laid there.” (Highland Radio, Ireland)
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Professor Chris Ponting on the 116 blood molecule differences his team found in people with #MECFS “This is not a psychological disease” people did not alter their blood molecules...
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Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed t...
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“Having earned my living as an inventor and a thinker, having limits on my thinking is pretty awful.” Mark, a retired technologist, developed #MECFS after catching chickenpox in the mid-80s and gradually became more disabled. From BBC Lifeline: Action for ME
In response to a question from @ZackPolanski.bsky.social on #LongCovid @DrAmirKhanGP.bsky.social says “I feel really helpless when I see them.” People who were healthy just a few years ago, a lot of them have lost their independence & ability to earn and there’s nothing in place to look after them.
“The injustice of it, I couldn’t believe it.” Former Team GB rower @oonaghcousins.bsky.social talking about the #MECFS “scandal” where patients were told they were deconditioned and needed Graded Exercise and CBT. It is the “opposite of what they needed” and that legacy still runs “super deep”.
Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”. “We’ve had letters from GPs saying we have changed their minds” Clip from Hope 4 ME & Fibro NI Collaboration
“They’re in a darkened room, they can’t tolerate light or sound… some are even tube fed. They’re so unwell, you almost can’t fathom it” Former Team GB rower @oonagh_cousins on people with very severe #MECFS and #LongCovid and the importance to advocate for those who can’t.
Caroline Kingdon speaking about functional impairment and mortality in #MECFS Biobank research has shown people with ME/CFS to be more functionally impaired than people with MS. And between 2001–2016, ME/CFS was mentioned on 88 death certificates in England and Wales.
“They’ve grown up with me always being ill and I feel that I’ve let them down because of that.” Andrea has lived with severe #MECFS for 33 years and is confined to bed nearly 24 hours a day. From BBC Lifeline: Action for ME
Gabby Rudge-Cox caught Covid in 2021 and has been diagnosed with #LongCOVID #MECFS #Fibromyalgia and #POTS. Her husband had to give up his job as a policeman after a Covid infection as well ”it has ruined our lives”.
Nikki Proctor on BBC Radio 4’s Feedback says she was surprised Amol Rajan didn’t raise #MECFS with Suzanne O’Sullivan on his podcast, after O’Sullivan said #LongCOVID was largely psychosomatic, given the “backlash and criticism of her position” on #MECFS.
Powerful clip @johnthejack.bsky.social on the BPS model for #MECFS It meant he was “an unreliable witness” to his own body, he could get better if he just changed his thinking and his behaviour. People viewed him differently, they thought they knew what he needed better than him.
Are you Deaf and using sign language interpreting/ other communication professionals? Live in Merseyside or the NW of England? Want to own and take part in a business improving access the way communication services are delivered? You can! Find out how here ➡️ buff.ly/2V26cK #BSL
Remembering Barry Atwater, born May 16, 1918 and passed away May 24, 1978. Full Post www.facebook.com/photo/?fbid=... #TodayInNerdHistory #May16 #barryatwater #startrek #thetwilightzone #theouterlimits #thenightstalker #missionimpossible #theinvaders #GeneralHospital #OneStepBeyond #birthday
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essa música do julian lage é linda, o vídeo também. peguei esse trechinho pra comentar: como é bonito ouvir alguém que sabe usar o silêncio pra criar com um instrumento
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YOU DERANGED LUNATIC. PEOPLE IN THIS COUNTRY THAT YOUR SUPPOSED TO BE PROTECTING IS SUFFERING ON EVERYTHING THAT YOU DONALD TRUMP SAID YOU WAS GOING TO HELP WITH. YOU PATHOLOGICAL LIAR. NOW YOU START A WAR WITH ISREAL AND RUSSIA FOR OIL WHILE US SOLDIERS ARE BEING MURDERED BECAUSE OF YOUR GREED.!!!
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Good Morning 🌄 🌞 Every morning brings a new chance to bloom and shine 🌹💕 #RiseAndShine #nature #life #GoodMorningEveryone #NewDayNewStart #cat #PositiveVibesOnly #birds #MorningInspiration #BeautifulMoments #StayHappy #MotivationDaily #NatureMagic #PeacefulVibes #Happiness
Saying criticism of the Supreme Court is getting “too personal” feels like a stretch. People are reacting to decisions. Big ones. Ones that change rights and expand power. That is not about personalities. That is about impact. Full video: https://www.youtube.com/watch?v=WTx8Uh9SJMw
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U.S. Army veteran Jon Gundersen on Trump's Arc: "It's a little ironic that somebody who avoided service with daddy's rich help talks about honoring veterans. If you honor veterans, you do it the right way…It's got to go through the congress."
Fakt mele, co mu slina do pusy přinese. Copak zapomněl, jakého uznání se mu dostalo od současné opozice za jeho projev v OSN? Který byl skutečně dobrý. (via @vaclavmoravec)
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@ladyjulia1997.bsky.social Okay, habe es verstanden, kein Comic mehr. Nur noch in echt und Farbe. Habe nochmal für alle einen Fakecheck hinterlegt. Wer es noch nicht kennt... Das verschlossene Schwein mit dem ... Schwanz darf man hier bitte nicht falsch verstehen: Ringel 👉 Nein Eher ein 🍤.
Je vois! Ç’a du sens! Merci pour l'explication, Chanuage! Quoique j'aime les chapeaux, je vais garder le cap, hahaha! 😊🎩
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