ERDERA
@erdera
🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 https://loom.ly/NxMGydc
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🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocat...
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💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDE...
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🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, a...
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🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: h...
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💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly...
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🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, advance research and improve care where it’s needed most. Expertise, connected. 💙 #RareDiseases
💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA
💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matters, who is involved, and how #ERDERA puts it into practice. 🔗 Find out more: https://loom.ly/FWzBQpg #RareDiseases
Patients are the glue holding the whole system together—without them, it simply wouldn’t exist. 👉 ERDERA speaks with Bojana Mirosavljevic, advocate behind Zoya’s Law in Serbia, on why patient voices must shape research & policy from day one. 🔗 Read more: https://loom.ly/vxcS4lo
💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch
That’s a wrap on an inspiring #WODC2025! 🌍 The #ERDERA team joined panels, sparked valuable exchanges, and connected with many eager to collaborate and contribute to advancing #RareDisease research in Europe. 💬 Let’s keep the momentum going! 💪 #OrphanDrugs #WODC
🚀 Not long to go for the 2nd International Conference on Clinical Research Networks! 🚀 A key global event on clinical research networks, with great speakers & chairs lined up! Full programme & registration👉 https://loom.ly/1fhf8zI 🚨 Limited in-person spots available!
🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy
That’s a wrap on the 2nd International CRN Conference for Rare Diseases! 🎉Thank you to all who joined onsite and online — your contributions strengthen collaboration and evidence generation across the rare disease community 🤝 Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases
📬 Missed the ERDERA newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here 👉 https://loom.ly/7VjkRXs 📩 Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY #ERDERA #RareDiseases
Every scan tells a story. Every decision matters. At GW, our doctors are ready to fight for you — from the very first look.
They Flood Every Pritzker Article Wishing Him Dead — But Tom's the Horrible One - Visit https://oldhippiemedia.com/ for the rest of my content and much more.
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Liverpool welcome back two returning players to the squad, but lose another one, while it's all change for Chelsea in personnel and formation. #lfc #liverpool #chelsea #premierleague #teamnews
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I LOVE that @teamzandt.bsky.social added challenge levels to Race Worms in order to unlock skins! This one was so much fun and actually was a challenge! Check out Race Worms on steam for a wormy good time! #vtuber #racinggame
Play the long game. Ignore the noise on Venezuela, Colombia and Greenland Headlines change — discipline builds wealth. Keep Investing. Keep compounding. Real wealth is built long-term! 🎥 Watch: linktw.in/wHsmVB #Investing #StockMarket #LongTermInvesting #WealthBuilding #DollarCostAveraging
There was just another horrible car crash on 33rd St, the latest in a long list. Astoria is demanding action, yet the city simply won't help us.
A game doesn't just test how someone applies tactics. It shows you how they think, communicate, and handle pressure when the situation breaks against them. (Members Only) Listen here: warontherocks.com/episode/sold...
Since 2012, Palazzo della Carovana has hosted selected works from the Luigi Pecci Centre for Contemporary Art. Not decoration, but a dialogue between past and present. Discover it through guided tours. Free entry, online booking required: piazzadeicavalieri.sns.it
Wer bei Ausländern zuerst an Krankheiten denkt, denkt rassistisch. Und hat weder bei der Polizei noch im Landtag was verloren! #bayern #grüne #afd
Top 10 South Africa headlines 🙄🚀 1. Cops slammed after 6 men killed hours apart in Khayelitsha, intelligence 2. Criminals will have carte blanche if tourists stay away from Kruger Park Read🚀- seefinish.com/south-africa/ 🎁 Shop @ ZUMAFIND.COM 🇳🇬 #sa #khayelitsha #kruger
In this conversation from the Season 2 premiere of Above the Noise: Business Aviation Edition, the Matchroom Boxing Chairman talks about pressure, consistency, and the mindset required to build – and sustain – a global empire. ▶️ Watch the full episode here: https://vsat.co/4ubmgc2
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#musicmonday #musicmoment youtu.be/p1OPDyQdOzo 5 31 26 #389 Gathered Here Performed by Diana Ryder (additional vocals Beth Anz)
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