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ERDERA

@erdera

Thatโ€™s a wrap on an inspiring #WODC2025! ๐ŸŒ The #ERDERA team joined panels, sparked valuable exchanges, and connected with many eager to collaborate and contribute to advancing #RareDisease research in Europe. ๐Ÿ’ฌ Letโ€™s keep the momentum going! ๐Ÿ’ช #OrphanDrugs #WODC

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Thatโ€™s a wrap on the 2nd International CRN Conference for Rare Diseases! ๐ŸŽ‰Thank you to all who joined onsite and online โ€” your contributions strengthen collaboration and evidence generation across the rare disease community ๐Ÿค Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases

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ERDERA

๐Ÿ’ก New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? ๐Ÿ”Ž Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch

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๐Ÿš€ Want to lead the way in #RareDisease research? Subscribe to #ERDERAโ€™s newsletter! ๐Ÿ“ฉ โœ… Big news first โœ… Expert tips & tools โœ… Breakthroughs that matter โœ… Community highlights Subscribe at ๐Ÿ‘‰ https://loom.ly/NxMGydc

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ERDERA

๐Ÿ’ก New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? ๐Ÿ”Ž Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA

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ERDERA

๐Ÿš€ Not long to go for the 2nd International Conference on Clinical Research Networks! ๐Ÿš€ A key global event on clinical research networks, with great speakers & chairs lined up! Full programme & registration๐Ÿ‘‰ https://loom.ly/1fhf8zI ๐Ÿšจ Limited in-person spots available!

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ERDERA

๐Ÿ“ฌ Missed the ERDERA newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here ๐Ÿ‘‰ https://loom.ly/7VjkRXs ๐Ÿ“ฉ Donโ€™t miss the next issue, subscribe now: https://loom.ly/TFRXEBY #ERDERA #RareDiseases

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๐ŸŒ Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocate for better care, research, and collaboration ๐Ÿš€ #RareDiseases #Advocacy #EUHealth #EUInnovation

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๐Ÿ’ก What is PPIE โ€” and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matters, who is involved, and how #ERDERA puts it into practice. ๐Ÿ”— Find out more: https://loom.ly/FWzBQpg #RareDiseases

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๐Ÿ”ฌ How do we improve diagnosis for people with undiagnosed conditions? ๐Ÿ“… 30 April | #UndiagnosedDay 2026 ๐ŸŒŸ Expert & livedโ€‘experience panellists ๐Ÿ‘‰ View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy

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Patients are the glue holding the whole system togetherโ€”without them, it simply wouldnโ€™t exist. ๐Ÿ‘‰ ERDERA speaks with Bojana Mirosavljevic, advocate behind Zoyaโ€™s Law in Serbia, on why patient voices must shape research & policy from day one. ๐Ÿ”— Read more: https://loom.ly/vxcS4lo

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Kenny Atkinson: "I like to hold my timeouts. I try to hold them" OMG lol

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Oh No He Didn't

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michnutrish

First Past the Post keeps promising stability and delivering chaos. Governments are elected on a minority of the vote. They impose their agenda without listening to or negotiating with anyone. They fail and collapse. Rinse and repeat. There is a better way. It's time for PR.

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New pedestrian crossing at Timber Quay and active travel part of Magee expansion plans www.derryjournal.com/news/people/...

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Tim & Eric answer a fan question about I Sit Down When I Pee! ๐Ÿšฝ Get access to hundreds of hours of extra content with a FREE 7-day trial to OFFICE HOURS+ at patreon.com/officehourslive!

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Trump and his allies are trying to suppress voters, particularly Black Americans, and deny fair representation in Congress. Right now, they are redrawing maps and gerrymandering communities ahead of the midterms. This is an attack on democracy, and we must continue pushing back.

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