ERDERA
@erdera
💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch
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🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocat...
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🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, a...
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🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: h...
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💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly...
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💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matter...
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🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy
That’s a wrap on an inspiring #WODC2025! 🌍 The #ERDERA team joined panels, sparked valuable exchanges, and connected with many eager to collaborate and contribute to advancing #RareDisease research in Europe. 💬 Let’s keep the momentum going! 💪 #OrphanDrugs #WODC
🚀 Not long to go for the 2nd International Conference on Clinical Research Networks! 🚀 A key global event on clinical research networks, with great speakers & chairs lined up! Full programme & registration👉 https://loom.ly/1fhf8zI 🚨 Limited in-person spots available!
🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocate for better care, research, and collaboration 🚀 #RareDiseases #Advocacy #EUHealth #EUInnovation
🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, advance research and improve care where it’s needed most. Expertise, connected. 💙 #RareDiseases
💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matters, who is involved, and how #ERDERA puts it into practice. 🔗 Find out more: https://loom.ly/FWzBQpg #RareDiseases
That’s a wrap on the 2nd International CRN Conference for Rare Diseases! 🎉Thank you to all who joined onsite and online — your contributions strengthen collaboration and evidence generation across the rare disease community 🤝 Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases
📬 Missed the ERDERA newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here 👉 https://loom.ly/7VjkRXs 📩 Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY #ERDERA #RareDiseases
🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 https://loom.ly/NxMGydc
💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA
"This is what real leadership looks like at the FBI." OK... well if that's the case, it doesn't look very good.
Today, former AAFP president, Dr. Steve Furr, shared with Congress ways to improve the Medicare physician payment system. In his testimony, he outlined how establishing a health care system that prioritizes primary care will require a meaningful overhaul of physician payment: https://bit.ly/4nFgjSh
Behold the dark arts of selling a federal budget .. and the darker arts of ABC bashing from an ascendant One Nation as a reporter is booted from a press conference. Just dropped! The latest “Truth Lies and Media” is live!⚡️ Promo Match Frame Editing #auspol #NewsCorpse
Happening now: Activists are blocking the entrance to Con Edison headquarters in Manhattan to call on Mayor Mamdani & City Council to pass Gas Free NYC, restrict ConEd from hiking rates, & to upgrade heating systems in 1 & 2-family homes to lower rates. @sunrisemvmt.bsky.social @xrnyc.bsky.social
Some secrets protect the world. Others poison it. Blackvale Manor was built on both. www.amazon.com/Blood-Court-... #vampiremystery #darkgothicfiction #thrillernovels #gothicfantasybooks #vampiremanorhouse #horrorbookcommunityreads
Everyone in Minneapolis agrees, or to priority is spring our neighbors targeted by ICE. The City Council passed a temporary extension of the eviction timeline from 30 to 60 days. The Mayor vetoed that and chose to stand with landlords short-term profits instead of our immigrant neighbors
With a stray shower still possible today, you may want to hold on to that umbrella. But you won't be needing it after today. Here is the latest from the Valley Storm Team Weather Center.
Aston Villa 4-0 Nottingham Forest ✅ Comeback Complete 🙏 Believe 🔥 Buendia & Watkins 🦸♂️ Super John McGinn ✈️ OFF TO ISTANBUL #AVFC
Studios didn't hire me because I had no experiences in gaming... So I decided to make my own. Here's my first indie game: Maseylia - Echoes of the Past. It's an action platformer, thought as a 3D metroidvania (with backtracking, abilities to unlock, combat...). And it's inspired by Moebius !
repost @chaos.rgb on IG . . . . . #creativecoding #generativeart #art #digitalart #generative #codeart #creativecodeart #abstractart
#vernon #tess #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/2026-05-10/us/Lifestyle/ch/bs/弗农·凯和特丝·戴利结束22年婚姻,震惊宣布分手/1271904
New Bengals DT Dexter Lawrence highlights from practice today. What do you notice? Original post
Great news for residents! Wandsworth Labour Council has frozen council tax AGAIN 🧊 That means Putney households continue to pay the lowest council tax in the country, with the council also providing fantastic services.
Los socios de Investidura mantienen su apoyo al Gobierno y descartan mociones de censura. ERC se aleja de sus límites y EH Bildu teme un gobierno con el PP.
Driving on the right instead of the left looks nuts but the same can be said about us driving on the right here #ForzaHorizon6 #Japan
📢Nuevo Anuncio ❄️Descubre el coraje, la amistad y la magia del invierno por primera vez Mumintroll: La calidez del invierno ya está disponible para reservar en formato físico para PS5 y Nintendo Switch Lanzamiento 18 septiembre ℹ️https://meridiem-games.com/new_sdebug/denEZ7ZnWpa/gAtgOAoV7
What does it look like when the government violates court orders in immigration habeas cases? On Lawfare Daily, @mollyroberts.bsky.social talked to @katherinepomps.bsky.social about Lawfare’s tracker, documenting government non-compliance with court orders. youtu.be/0Ww1zbVAHP0?...
Within Me Are #Cosmos From #Sandman #Comic [Child of Night And Time] Cosmos of Souls The New World Rabbit With Crown (Google) Rabbit on [Moon My Birth] (Predates) #giantimpacthypothesis INSPIRATION From #FireForce Ending ( A WORLD EMPTY NO ABILITIES NO POWERS ..
And the rest of those involved with the slow roll to the NS/NB border leave from the Enfield big stop. Police are with them. Note not all vehicles featured in this video are involved in the slow roll. It is just the way they came out). Expect traffic delays along Highway 102 and Highway 104.
The Indianapolis Colts were eliminated today! Comment to vote a team out! #NFL #Sports #ESPN #Trending #Football
LA Food Deals — Apr 13, 2026 🍔 Jack in the Box — Free Jumbo Jack w/ large drink purchase (33% off) 🍔 The Habit Burger Grill — Free Double Char w/ $8 min purchase (48% off) 🍟 McDonald's — Free medium fries w/ $2 min purchase (33% off) More deals at lahomewin.com
St. Paul is an incredible place, and the home of our second One City One Take. The concept is simple: One very long unbroken take exploring the city. You can either watch it all at once, or skip around using chapter markers. I hope you enjoy.
#ProudBlue #USDemocracy Live !!! Sweet Child of Mine Made by Dutch ( Probably break down and cry ) #KidsAgainstICE
A saree is not just worn, it is felt—like poetry wrapped around the soul. One graceful drape can turn a simple moment into timeless elegance. Traditionally over 5,000 years old, the saree is one of the world’s oldest surviving garments still worn today. In every pleat lives heritage, strength, and
Hey everyone I'm back. Sorry about the long break. I'll be on Twitch Saturday and Sunday at 5a-8a cst. I'm gonna be continuing Gundam Breaker 4 with the extended story.
China’s Silent Takeover of the Amazon – Steve Hendrix with the “Global Minute” #Amazon #Environment #China #Brazil #Peru #Bolivia #Ecuador #Colombia #LatinAmerica #SteveHendrix #ForeignPolicy #InternationalAffairs #GlobalSecurity #ForeignAffairs #GlobalMinute #Geopolitics #COP30
😍 "Es que son mágicas las dos". 🎶 Es la sensación que dejaron Miriam Cantero y La Kaíta tras actuar en Badajoz. ✔️ Se convirtieron anoche en protagonistas de una nueva edición de 'Flamenco en la Plaza Alta en Badajoz'. #lakaíta #miriamcantero #badajoz #flamenco https://acortar.link/JTesOs
Virtuos is looking for a Lead Technical Artist! - tinyurl.com/2tjvjzm3 Lead the connection between art and technology, driving pipelines and visual quality across major game projects! #gamedev #indiedev #hiring #jobs #gamecareers #gamesjobs
https://Blink.new - AI App & Web Building Platform. Save and share with your friends.
This is a monster of a nor'easter. Heavy snow & high winds are a dangerous combo. So please stay safe!
𝗧𝗥𝗘𝗡𝗗𝗜𝗡𝗚: Giants QB Jaxson Dart’s girlfriend, Marissa Ayers, has gone viral for making her runway debut at Miami Swim Week. Dart is winning on and off the field 🥵 Original post
Josh Naylor conecta dos jonrones impulsando 5 carreras encontra de los Astros de Huston. #JoshNaylor #beisbol #baseball #mlb #Miraloaqui
You're telling me Chinese Nationals were fraudulently marrying U.S. military members trying to get on-base access? Actually??
January is quiet for us, but busy for the Refuge! 🦢 • Wetlands filtering water • Oaks prepping for spring • Birds gathering in the brush • Staff monitoring habitat Your support fuels this critical winter work. 🌿 Donate: bit.ly/4oyH1Ld #RidgefieldNWR #HabitatHealth #Nature
EVERY NOW AND THEN GOD WILL PROMPT ME TO SLIDE INTO A SIS’ DMS TO OFFER TO PERFORM FOR FREE @Whitney Victoria I am grateful you accepted and allowing me to perform in ANOTHER ONE! Get your tix today for the next one that will be August 22. #RIANNJENKINS #PERFORMANCE #opportunity #FYP #ARTIST
FDW Office Chair Computer High Back Adjustable Ergonomic Desk Chair Executive PU Leather Swivel Task Chair with Armrests Lumbar Support (Black) 🛒 Check on Amazon: https://www.amazon.com/dp/B08JGGJZY2/?tag=sersart2024-20
[ 🇷🇺 RUSSIE | 🇵🇸 PALESTINE ] 🔸 « Actuellement, sur fond des événements se déroulant en Iran et dans le détroit d’Ormuz, nous avons oublié la tragédie de la Palestine, mais elle est toujours là. La Russie estime que la solution fondamentale à cette question est [La suite en réponse ⬇️]