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ERDERA

@erdera

Patients are the glue holding the whole system together—without them, it simply wouldn’t exist. 👉 ERDERA speaks with Bojana Mirosavljevic, advocate behind Zoya’s Law in Serbia, on why patient voices must shape research & policy from day one. 🔗 Read more: https://loom.ly/vxcS4lo

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More from ERDERA

🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 https://loom.ly/NxMGydc

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ERDERA

That’s a wrap on the 2nd International CRN Conference for Rare Diseases! 🎉Thank you to all who joined onsite and online — your contributions strengthen collaboration and evidence generation across the rare disease community 🤝 Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases

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ERDERA

💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matters, who is involved, and how #ERDERA puts it into practice. 🔗 Find out more: https://loom.ly/FWzBQpg #RareDiseases

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ERDERA

💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch

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ERDERA

🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocate for better care, research, and collaboration 🚀 #RareDiseases #Advocacy #EUHealth #EUInnovation

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ERDERA

🚀 Not long to go for the 2nd International Conference on Clinical Research Networks! 🚀 A key global event on clinical research networks, with great speakers & chairs lined up! Full programme & registration👉 https://loom.ly/1fhf8zI 🚨 Limited in-person spots available!

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ERDERA

📬 Missed the ERDERA newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here 👉 https://loom.ly/7VjkRXs 📩 Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY #ERDERA #RareDiseases

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ERDERA

🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, advance research and improve care where it’s needed most. Expertise, connected. 💙 #RareDiseases

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ERDERA

💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA

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ERDERA

🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy

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ERDERA

It’s important to match the specific variety to your specific growing climate. This is so true when it comes to lavender! Thank you for supporting small business businesses; you make it possible for us to keep growing. #FamilyFarm #FarmLife #Herbs

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Highland Orchards Farm Market

is on KABF.org right now playing Mother Warned Me by Circa '97  ft Lord Juco

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Professor Mike

Added a "PeacefulSleep" component that makes enemies invincible and solid. It also puts these little crab guys to sleep! #indiegames #indiedev #gamedev

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PingZing

History Can🚫Be Changed by lying about the actual facts. #Pro-netanyahuRegiemVotes By controlling what you See&When you see it their propaganda makes you think the world's Flat&That nothing can be trusted All∵Your parents lied to you. Grow the Fuck-Up&Vote Progressive idiots. 🗡️👨🏽‍💻🛡️🌺🐝🎼⚛️❤️‍🔥✡️🌟🦁✝️☪️🐦‍🔥🕉️⚖️🩵🌊🗽🪃🧲

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Leonardo Ganni Luciano-Pena

After her diagnosis of osteoporosis and spinal fractures, Kay felt like the rug had been pulled from under her feet. She looked for information and found support from others who’d been through it. Learn more about recovering from spinal fractures: https://bit.ly/3nIlnXW

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Royal Osteoporosis Society

Colin Allred’s excuse for voting for the Laken Riley Act? "Biden would never abuse it." But Colin admitted: “You don’t just pass legislation for one president.” He knew Trump could use ICE to abuse immigrants. Colin voted for it anyway. #TX33 doesn't need another John Fetterman in Congress.

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Julie Johnson

It’s National Police Week. Chicago is mourning the loss of Officer John Bartholomew, who died in the line of duty last month. I just paid tribute to him and his family—and all officers who defend us every day.

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Senator Dick Durbin

Terrible news for trump: New poll: "Trump’s net approval on cost of living is a staggering -41. Among independents, it’s -60—near universal distrust. Not a surprise, but still notable: this is his lowest rating on cost of living across both his first and second terms."

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DrH

I’m so mad and each day men hop in my comments to prove I’m not mad enough. #allmen #mansplaining #excuses #bear #foryou

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Let’s Stand For Something Good

💔 Painful footage of a child's body being pulled from the rubble of a house in the Darnytskyi district of Kyiv Currently, 13 people are known to have died as a result of the Russian strike on the capital on the night of May 14, including 2 children.

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The Ukrainian Review

Boulder City Hospital's leadership have been crystal clear: they are having to cut services and lay off workers because of Trump and Republicans' Medicaid cuts. I asked RFK Jr. what he's doing to protect rural communities like ours in Nevada. Once again, he had no real answers.

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Sen. Catherine Cortez Masto

A portable charger exploded in a woman's bag in the Russian city of Surgut the moment the elevator door closed. The woman remained trapped in the toxic fumes for about 30 seconds. The elevator eventually reached the ground floor**,** and she was able to e…

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Public Freakout

Just landed in Vegas for CES, come by our booth at Eureka Park! We went for an obligatory stroll through Caesar's Palace, which looks really good, but not quite like the real thing But thanks to Mago I can actually make it look like the real deal.

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Alvaro LT

You may never get the blinking neon sign.  But you do have enough information to take one honest step. There’s research behind your mental exhaustion: The Zeigarnik Effect. It says unfinished tasks and unmade decisions stay "active" in your mind.

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Dr. Mike Dorsey

#knicks #nba #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/0i26dosf

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JQJO USA Sports Chinese

This Memorial Day, we honor & remember those who gave their lives in service to our country. 🇺🇸 May we continue building the kind of community & democracy worthy of their sacrifice. #MemorialDay #FalmouthMA #IndivisibleFalmouth #SaveDemocracy #HonorAndRemember

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Indivisible Falmouth

SWIM wins "Song of the Summer" at the AMAs 💜 #BTS ⊙⊝⊜

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BipolarChef⁷ ⊙⊝⊜ 💜 🐳

“They don’t help me out there” “I don’t think they’d help me either” Subscribe 👉 @funny_as_puck #Hockey #NHL #Habs

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Funny As Puck

Megyn Kelly: It’s stunning to me that the people who voted for the man who said over and over not only no new wars, but no war with Iran — that those people on a dime were like yes, we’re pro war with Iran, Iran cannot have a nuclear weapon. They were not on the verge of developing a nuclear weapon

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immacule

Highland polling stations are now closed. Thank you to everyone who visited one today to cast their vote and a huge thank you to all the polling station staff. #SPE2026 #HighlandVotes26

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The Highland Council

Here’s what President Trump’s unconstitutional warmaking has accomplished: inflation is accelerating, paychecks aren’t keeping up, and costs are skyrocketing — from gas to groceries to housing to healthcare. You deserve better.

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Congresswoman Maggie Goodlander

Your excuses sound convincing because you rehearsed them. Your growth starts when you shut that down. Drop the excuses and level up. More real talk on the channel: https://www.youtube.com/channel/UCkiUF_adPs6ZnCgNZFmK5Sg #untraditionalentrepreneur #noexcusesmindset #growthseason

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jumingdelmas

TEXAS TECH 3-RUN HOMER OVER FLORIDA 😱 The Red Raiders are on an absolute heater right now 🔥 Original post

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The Strange Thing MTV Did to Duran Duran’s John Taylor 🎸✨ Some musicians became so visually iconic the culture almost stopped hearing the music. New premium editorial + our new Women’s Pajama Set now live 🌙 👉 Tap link in bio to shop & read. #JohnTaylor #DuranDuran #Loungewear #storytime

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Tantrum Media

125 patriots and a handmaiden stood on the corner of Buckner & Garland in Dallas to exercise our 1st A rights. We gather every Sunday, noon-1. Protest supported by The Funky East Dallas Democrats aka The FEDDs, inspired by 50501 organization. Sound on for honks 🚙🚙 ICE OUT NOW!

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MargoWays

Scenes from Budapest following Orbán’s defeat

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European News

Fuel your fire—when the music drops, so do your limits. My secret ingredient is Bellawell Creatine, unflavored, pure, and powerful! It boosts energy and maxes strength, helping you unleash your full potential. What's your #BeastMode song?  #PreWorkout #BeastMode #CreatineForWomen #Bellawell

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More proof of Staged Event for Trumpstein

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Raymon M. Powers

LSUMC Research Mar 1997 Archived Web Page 🧩 #lsumc #1997

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Instead of protecting Americans, Trump’s cruelty and chaos is allowing corporations to profit off of people’s pain. We must close Delaney Hall.

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Our TSA, FEMA, and Coast Guard employees have now gone 38 days without a paycheck because Republicans refuse to hold ICE to the same standards that our other law enforcement officials already practice.

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Rep. Teresa Leger Fernández

Banger! #LFC

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Graham

Rochelle Jordans

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Arne Slut

Stay fresh… from the inside out 🌿✨ No sprays. No cover-ups. Just daily support that helps your body feel clean, balanced, and confidently fresh all day 💚 Because real confidence starts within.

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Summit Borne LLC

ATTENTION COLORADO HOME BUYERS 🚨 This. Home. Is. READY. For. You. 🏡 Price improved. Spring is HERE. Excuses are OUT. Come see it before someone else falls in love first. 😤🌷 DM me to book your tour TODAY! #WakeUpCall #ArvadaColorado #ColoradoHomes #SpringSelling #JustReduced

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Jessica

Ik Kil Cenote, a popular natural swimming hole located in the Yucatán Peninsula of Mexico, 🇲🇽 near the Chichén Itzá archaeological site

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ContempraInn 🌹

Hi folks! We will be in Jasper and Warren counties this Saturday to meet you! Please join us in Newton (12:30 PM) and Indianola (3:30 PM). Sign up and find all the details at: Mobilize.us/WettachForIowa #Iowa #Politics

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Taylor Wettach

Let me be the first to congratulate the Seattle Mariners on their 15th win of the season!!

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bryonato

Representative Rudy Yakym authored the "Support for Expectant and Parenting Foster Youth Act," hear what he had to say about the program. Read more: https://bit.ly/4tJ98Kb

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WSBT

Der Fascho-Sänger Shaman mit einem neuen Hit. Da löst sich das Trommelfell quasi von selbst auf... "Russland - Mutter, du bist direkt im Herzen, du bist die Einzige, mit dir bis zum Ende..." 🤢

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Kreml Plots | #standwithukraine

ALL our Oils are 100% EO fragrances. These oils are perfect for use in cars, diffusers, humidifiers, homes, offices, ect. GREAT FOR SMOKERS using a humidifier, guarantee to kill smoke scent. meltsbysusanstore.etsy.com ebay.com/str/susancan...

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SCMW

#AiCommunity #aivideo #CreativeAi slow walk

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Eight Buffalo Media Group LLC

Wrap of the 2nd Annual Humpback Day! Over 6k people watched along! Thank you everyone! Thank you to the pod: 🐳Australian National Maritime Museum 🫍CSIRO 🐋The Gamay Rangers 🐬NSW National Parks and Wildlife Service #annualhumpbackday #pov #fyp @scicommexcellence.nationalacademies.org

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Dr Vanessa Pirotta

Meet Bertha, the coordinator at a WCK meal site in Haiti.📍 Her community has been hit hard—homes destroyed, families left with nothing, security concerns making daily life even harder. But she shows up every day, making sure no one goes without a meal. #ChefsForHaiti

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World Central Kitchen

God I’m so proud of him and his team for real 😭🥹 GO WATCH IRON LUNG RN AND SUPPORT THIS BEAUTIFUL MAN 🫵

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Vis_N1_Simp

It’s TIMEEEEEEEE Happy Monday and #Pride month dolls 💃🏽 I hope everyone has a phenomenal day today! 🌈❤️🌞

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SinnamonS

Charles Saves Arthur Morgan from bounty Hunter in RDR2 #reddeadredemption2 #gaming #gamer You can check out the game here: www.rockstargames.com/reddeadredem...

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Morales Gamer

Being of service on MLK Weekend: My daughter and I made a big batch of burritos, then walked inner Portland and delivered them to folks who don’t have a roof. Her idea. @laylaknudsen.bsky.social 🫶

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Nick Knudsen

I’ve lived in California my entire life and it was my honor to vote for Xavier Becerra within days of receiving my ballot in May.

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Nancy