💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch

Patients are the glue holding the whole system together—without them, it simply wouldn’t exist. 👉 ERDERA speaks with Bojana Mirosavljevic, advocate behind Zoya’s Law in Serbia, on why patient voices must shape research & policy from day one. 🔗 Read more: https://loom.ly/vxcS4lo

That’s a wrap on an inspiring #WODC2025! 🌍 The #ERDERA team joined panels, sparked valuable exchanges, and connected with many eager to collaborate and contribute to advancing #RareDisease research in Europe. 💬 Let’s keep the momentum going! 💪 #OrphanDrugs #WODC

🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocate for better care, research, and collaboration 🚀 #RareDiseases #Advocacy #EUHealth #EUInnovation

🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, advance research and improve care where it’s needed most. Expertise, connected. 💙 #RareDiseases

💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matters, who is involved, and how #ERDERA puts it into practice. 🔗 Find out more: https://loom.ly/FWzBQpg #RareDiseases

🚀 Not long to go for the 2nd International Conference on Clinical Research Networks! 🚀 A key global event on clinical research networks, with great speakers & chairs lined up! Full programme & registration👉 https://loom.ly/1fhf8zI 🚨 Limited in-person spots available!

💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA

🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy

That’s a wrap on the 2nd International CRN Conference for Rare Diseases! 🎉Thank you to all who joined onsite and online — your contributions strengthen collaboration and evidence generation across the rare disease community 🤝 Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases

🚨URGENTE: O Jornal Nacional revelou que o ministro Flávio Dino sofreu ameaça de morte feita por uma bolsonarista que trabalha em uma empresa aérea. A extrema direita veio para espalhar ódio, violência e terror político. (Vídeo) Isso não é brincadeira e tem que ser levado realmente a sério.

How do you lower costs, expand coverage, and how do you pay for it? By taxing the ultra wealthy, doubling the property tax on second homes in Maine, and funding community and school based health centers. These are just some ways I am going to be the governor for a more healthy and affordable Maine.

The first Patchouli Friday of May, no way...

To build what’s next, start by understanding the system you’re in. This clip explores a human-centered systems approach—mapping structures, centering lived experience, and co-designing solutions. 🎥 Full video + Q3 Learning Journey: bit.ly/41nknwF #Partners4HE

Hank’s in East Austin is serving up the ultimate $20 girl dinner every Thursday. 🍸✨ The deal comes with your choice of a Caesar salad or chicken Caesar wrap, fries, plus a martini of your choosing — aka, the perfect Caesar, fries and ’tini combo. 📍: 5811 Berkman Dr., Austin, TX 78723.

I’m just not buying it. They all moved in slow motion.

Another Lair D&D Storytime! Bad Rolls, Zombie Hand Chickens, and a Orc Baby Hero in the making! #booksky #blacksky #d&D #ttrpg #blerd #staynerdy

❤️ It’s Good Food Friday! 🥕 Fresh produce, good vibes, and community care—because access to healthy food is a right, not a privilege. 🍎 📍North County Agricultural Education Center 4521 Hamilton Ave, St. Louis, MO 63120 3-5pm #GoodFoodFriday #ARedCircle #FoodJustice #NorthCountyStrong #urbanfarming

Also, hi 5's...and y'all love hi 5's

Pep Guardiola's up for having a beer with Jamie Carragher and Gary Neville 🍻

ISRL plant weiter und alle sind Still #realtalk #menschlichkeit #leben #gerechtigkeit #heilig

From earlier this week but it illustrates an important piece of the puzzle. If a district court rules against the regime. They head south to the land of… #bluecrew #pinks #fuckMAGA

My review of The Dark Lord's Guide to Dating (and Other War Crimes) by Tiffany Hunt #booksky #romancereader #fantasyromance #guidestovillainyandllove #romantasy

Laying in that broll of his bum leg gimp gait and struggling to put on his ball cap certainly is a choice.

The winds are going to be kicking up pretty good today! Plus, our warm up continues. Here is a quick update for you.

Hart of the City 🔥 🏀 🔵⚪️🟠 #derkleinemeier #illustration #nba #newyorkknicks #nbaplayoffs

QChiseled dudes are raising money by crushing watermelons with their thighs. If they hit $200k, Dr. Rubin has to try it too! Heart disease is the #1 killer of women, but symptoms like fatigue, nausea, & back pain are often ignored. Share widely to improve lives everywhere!

🇬🇧 NIGEL FARAGE 🇬🇧

🔔 🌎 Happy holidays from our WCS teams in New York City and around the world!

#TrumpIsUnfitForOffice

epic movement (and quite the interesting speedrun title) from @NateTheNoggin 🏃💨

"Easy" by J.seph, out now.

Tyr - South Lebanon (Eye on Palestine) #Israel #Lebanon

Piotr Buras commented on what should be expected from Hungary's newly elected government at our webinar today, emphasizing potential disappointments and constraints for the realization of Magyar's promises. Listen to the full conversation: https://bit.ly/3OgOzGq

Bryon White is looking to unseat Danny Robins on the Volusia County Council Dist. 3 More policy talk: www.youtube.com/live/GPtRkGc... #volusiacounty #florida #covid #theopinionguy

🚨Hundreds of people in Parliament square today Police arresting silent, peaceful protestors for historical Lift The Ban protest

#ChrisRiker #KeepReading #Booktok #Booktokformen #ShortStory #Author #IndieAuthor #MarchReading #March #TBR

Thank you to @mrgood.arte and his Assistant, @anotherguywithacamera 📸 It was super fun , I loved hanging out with you guys. Photography: @mrgood Outfits : @rainbowshops Makeup: @valeriaugc Music: 🎵 DANDELIONS 🎵 @ricksloboda @nexeri.music @j.a.e_official @viktorgrimon @gahararecords

I’m proud to be running to flip Michigan’s 10th Congressonal District as a public servant, not a politician. Thanks to @TheNewYorkTimes for highlighting our campaign. #service #politics #midterms #democracy #michigan

BIN UNDER THE INFLUENCE - @caseblackwell.bsky.social can't seem to control his staff at BARELY INFORMED NEWS & now his producer/dog is wildly & uncharacteristically misbehaving! I smell an after-school special coming on.... twitch.tv/caseblackwell + @creamteam.bsky.social for more cautionary tales

A new Sperm Track and Recovery system (STAR) uses AI to scan semen samples at 300 images per second, finding sperm cells invisible to standard lab methods. #greatnews #greatnews4u #optimism #infertility #malefertility #innovation

Monday Money Motivation #AmericanExpress #AmericanExpressBusiness #AMEX #AMEXPlatinum #SLS #TeamSuperior #SuperiorLuxuryStyle

✨️ Settlers fleeing the rule of the Swords in Archendale found Sessrendale, seeking a new beginning. Follow along as we share daily lore leading up to Guide to the Dalelands. Join the mailing list at realmsbound.com ✨ #dnd #forgottenrealms #realmsbound #ttrpg

If anything can unite us… it might be Costco rotisserie chicken.

You watched a movie and go "Yep, that's my favorite character right there!" That was me at 6 when I first watched A New Hope in full.

Over a billion birds in North America die annually from colliding with glass. A proposed law in Ontario, Bill 98, aims to accelerate housing development but may weaken requirements for bird-safe building designs.

Good morning Ash and wallies of Wülferhampton. Happy 🐪 day, yes it’s Wednesday dear Popetato 🤗

The new Acting Attorney General 🤡 Todd Blanche. share.upscrolled.com/en/post/44fa... The Zionist #EpsteinClass Babyeating pedofiles are in control of 99% of the Worlds governments, including the US. Thes demons are the enemy of life, love and humanity.

Kick off the New Year at Doug’s Shoot’n Sports — Utah’s trusted gun store and indoor shooting range. From quality firearms and ammo to expert training and a modern range, Doug’s is your destination! Visit us at www.dougsgunstore.com #RifleRangeSaltLakeCity #SaltLakeCityRange

#ukraine #ZelenskyyUa PEOPLE #Front_ukrainian#militarynewsUa LOVE, MERCY ASKED BY JESUS, COMPASSION OUT OF FAITH, YOUR soul must be NOT BOUGHT ON SAND BUT ON ROCK. BE WISE MATHEW 7. 24-26 🙏AT 22:00-00:00 #unitedNations #NATO #Europe

@ignitionpress.bsky.social The Patron 1 final order cutoff June 22nd, in shops July 29th. @cjward.bsky.social & @johnjpearson.bsky.social Interview on YT & Podcast Apps!

If you’re wondering why we have pride.

Ohhhhh Drake. It’s a wrap for you girlie pop

Ebola disease is a severe, often fatal illness transmitting from animals to humans and between humans. Here’s what you need to know about how it spreads, the symptoms, and how to prevent infection.

I-81 @ EXIT 188 (PA 347 DUNMORE/THROOP) 🕒 4:12 AM - 4:14 AM ET (6x speed) 🌡️ 51°F | Clear 📍: 41.422500,-75.606910

Day 2 completed 30 Day Jump Rope Challenge At first, I felt a little tight in the legs from yesterday, but was able to loosen up a bit and get a good jump in. I also used the stairs behind me to get some reps up and down 5 times each for 3 sets. #BlackSkyFitness #BigTruFitness

Catch up with a master mix of the best of Season 4 including NEW never-before-seen moments like this one. On YouTube! Link in Bio.

⭕Des images documentent une partie de la destruction causée par les frappes aériennes #Israéliennes dans la ville de #Tebnine, Sud du #Liban. #PALESTINE-ONLINE

@vitro.notvictor adds a new family member: #AGoodPlace Source: www.reddit.com/r/MadeMeSmil...