Patients are the glue holding the whole system together—without them, it simply wouldn’t exist. 👉 ERDERA speaks with Bojana Mirosavljevic, advocate behind Zoya’s Law in Serbia, on why patient voices must shape research & policy from day one. 🔗 Read more: https://loom.ly/vxcS4lo

💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matters, who is involved, and how #ERDERA puts it into practice. 🔗 Find out more: https://loom.ly/FWzBQpg #RareDiseases

💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA

💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch

That’s a wrap on an inspiring #WODC2025! 🌍 The #ERDERA team joined panels, sparked valuable exchanges, and connected with many eager to collaborate and contribute to advancing #RareDisease research in Europe. 💬 Let’s keep the momentum going! 💪 #OrphanDrugs #WODC

That’s a wrap on the 2nd International CRN Conference for Rare Diseases! 🎉Thank you to all who joined onsite and online — your contributions strengthen collaboration and evidence generation across the rare disease community 🤝 Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases

🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy

🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 https://loom.ly/NxMGydc

🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocate for better care, research, and collaboration 🚀 #RareDiseases #Advocacy #EUHealth #EUInnovation

📬 Missed the ERDERA newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here 👉 https://loom.ly/7VjkRXs 📩 Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY #ERDERA #RareDiseases

COLE CAUFIELD ANSWERS RIGHT BACK!! Just 27 seconds after Carolina opened the scoring! 📺: /NHL_On_TNT, /Sportsnet, & /TVASports

It’s important to match the specific variety to your specific growing climate. This is so true when it comes to lavender! Thank you for supporting small business businesses; you make it possible for us to keep growing. #FamilyFarm #FarmLife #Herbs

Stop wasting your time on social media. That's your signal! If you’re researching relocation or you have access to capital, this is for you. If you don’t have a plan or capital yet, you need one before you move. Buy a guide or book a call. Breakdowns → Patreon. Go to my profile. Tap the link in

History Can🚫Be Changed by lying about the actual facts. #Pro-netanyahuRegiemVotes By controlling what you See&When you see it their propaganda makes you think the world's Flat&That nothing can be trusted All∵Your parents lied to you. Grow the Fuck-Up&Vote Progressive idiots. 🗡️👨🏽‍💻🛡️🌺🐝🎼⚛️❤️‍🔥✡️🌟🦁✝️☪️🐦‍🔥🕉️⚖️🩵🌊🗽🪃🧲

The VANTA LR is the definitive aerial instrument for the Physical AI era. By synthesizing advanced HFRP material science with a modular, identity-bound architecture, Straw Technologies has created an air support platform that is inseparable from the ground-based workforce.

His name is Austin Reaves. #austinreaves #lakers #lore #meme #fyp

Trump agrees to Ceasefire Deal with Iran Explained #news #politics #trump #iran #ceasefire

Earnest has a problem.

Solid Gold Chicken Dry Puppy Food - W/Real Chicken & Potato - Grain Free & Gluten Free Puppy Dog Food w/Probiotics for Gut Health & Digestion - Healthy Kibble for Puppies - Nutrientboost™ - 3.75 LB 🛒 Check on Amazon: https://www.amazon.com/dp/B0C4134GTW/?tag=sersart2024-20

This felt like a necessary accompaniment. #NBASky #SkyHoops #NBAPlayoffs

Housing is the biggest check that most Californians write every month. That's why bringing down the cost of housing has been my #1 priority since entering this race, and I know how to get it done as Governor.

💔Another Sunrise in Ukraine, where people wake to the sound of explosions & the sky covered in thick, black smoke. Kyiv, Dnipro, Odesa… The headlines might be gone, but the russians keeps murdering Ukrainians in their own homes, while they sleep, every single day. Don’t look away 😔

Leah Culver (@leahculver) says that the joy of software engineering is in chipping away at projects because, over time, you achieve great things. Watch this session in full, recorded live at the Merge, at www.wearedevelopers.com/en/videos/91...

#FriedrichMerz hat sich auf dem Politischen Aschermittwoch der #CDU für Klarnamen im Internet ausgesprochen. Auf diesem Account steht dann demnächst Clemens Katzenkiller anstelle von #dogswithcarrots. Is für mich auch okay. #dailypunch #mydailypunchline

Shamans have always been with us. This week, we explore how shamanism works with @manvir.bsky.social and why forms of it pop up in some surprising places, from modern medicine and CEO culture to charismatic Christianity. podcasts.apple.com/us/podcast/h...

Independent professional wrestler Thomas Heim talks about his earliest memories watching wrestling! Wanna watch the full interview? Click on the link here: m.youtube.com/watch?v=6lH1...

Wir haben die Kunst damit wir nicht an der Wahrheit zu Grunde gehen. friedrich nietzsche 1844 - 1900

Drop someone with LONG HAIR 💇‍♀️ 🖤 💇‍♂️

Trumpstein - Narcissist King

US Senator Lindsey Graham 'threatens' the US's Arab allies to join and build on the Abraham Accords.

No outs, bottom of the 9th, bases full of Ballers, Long Beach's reliever walks in the game tying run! After being down 7 runs, the B's claw their way back to tie the game! #neversaydie #letsgooakland

What do you want! distrokid.com/hyperfollow/... #synthmetal #heavymetal #judaspriest #coversongs

Banger! #LFC

Since the start of Trump’s term, Vermont commerce officials estimate a near $75 million loss in spending from Canadians. Full report from the WCAX Avoiding America series: https://www.wcax.com/2026/05/27/avoiding-america-vermont-border-businesses-see-mixed-results-year-after-canadian-tourism-dip/ 

Wistikles | ChatGPT uninstallations reportedly jumped nearly 300% after controversy over OpenAI’s alleged Pentagon collaboration. As tensions rose during the Iran–Israel conflict, some users expressed concerns about AI being linked to military operations. #wistikles #ChatGPT #OpenAI #AI #TechNews

#HappyHolidays #FamilyTime #FPKFamily #SeasonOfJoy #HolidayCheer #MerryChristmas #CelebrateTogether #SafeHolidays

Toronto fans letting it all out Sunday night 😆😆😆 #BlueJays #Yankees

Main reason I don't like C-3PO is because he always blames others instead of his own stupid ass. Bruh, shut your face!

À quelques minutes du coup d'envoi de la finale entre le PSG et Arsenal, le Parc des Princes vibre au son du club parisien 😍🔥

Vous avez aimé la croisière Hantavirus ? Vous allez adorer la croisière gastro 😅 Et si on arrêtait les croisières, nocives pour la planète et, apparemment, pour l’humain aussi ? 🛳️🦠

Awaiting Klarna's first trade...are you all in on BNPL? #WallStreetGameNotes #Klarna #KlarnaIPO #WallStreet #NYSE @cnbc.com #Fintech #NYC #KLAR #FinTech #Investing #StockMarket #NYC #WallStreet #financialliteracy #moneymindset #techstocks #finance #banking #bnpl #financialfreedom #stockstowatch

U.S. Facing 4% Inflation Rate - Ep.134 #inflation #economy #recession #tariffs Thanks for check out my Short. Want a deeper dive into stories like this? Check out my long-form videos on YouTube: www.youtube.com/@TheBusiness... #business #businessnews #tbbtn #youtube #shorts #reels #tiktoks #vids

How I feel literally every day since 2020

Ohioans are spending tens of millions of dollars a day on a foreign war while the costs of gas and diesel are soaring. Jon Husted says the war is going “much better than expected.”

Our View from India columnist Tarushi Aswani on why New Internationalist is #MoreThanAMagazine Support us today at newint.org/give

This week, Texas Republicans will likely begin considering how to punish their Democratic colleagues for breaking quorum over new congressional maps. State Rep. John McQueeney, R-Fort Worth, on what he would support. #txlege STORY: www.wfaa.com/article/news...

🏀When you’re stuck next to the Duke guy #collegebasketball #nba #snarklebark #dukeoftroll #whitelotus

When cold air hits your airways, your lungs react by constricting blood vessels making it harder for you to breathe. A Respro® Mask allows for easier breathing by warming up and moisturising the cold air before it enters your lungs... it makes sense. #run #winter #freezing #airpollution #lungs

COLLEGE TOURS IN MIDDLE SCHOOL ARE IMPORTANT Hard to believe the eighth graders in this video are now graduates and the seventh graders are now seniors. Some of the graduates will be attending Lander this fall! #FLASHBACK #RIANNJENKINS #TEACHER #STUDENTS #FYP

My Anjelika is turning five tomorrow February 28. I can’t believe that. This was my gotcha day with her in 2021. She was born February 28, 2021 and has been the light of my life for the last five years. She’s my heart and soul. And I can’t see my life without her.

To everyone at Pixar and the president of #pixar #JimMorris I’m still here and I’m not going anywhere

🐐 Whether it is a GERUND (verb acting as a noun) or a PRESENT PARTICIPLE (-ing form of a verb, or adjective forming continuous verb tenses) #ZYDECO #DANCING is the **G.O.A.T.** ZYDECO MUSIC & DANCE - TRY THEM - ENJOY THEM ...& forget about grammar & go have some FUN! GOOD SUNDAY #SundayFunday

Sis, the tea is spilling- #repo #fun #collab #vtuber #streamer #goth

They never stand up & fight, and let the Nation get rolled by the GOP every time. The DNC need former Republicans running their shite for them, they bring a butter knife to a gunfight every time.

Lynx Horns Flare Zoom Elevator filthy

Wait til they get the bridge! 😁

Being of service on MLK Weekend: My daughter and I made a big batch of burritos, then walked inner Portland and delivered them to folks who don’t have a roof. Her idea. @laylaknudsen.bsky.social 🫶

¿Qué significa realmente el modelo de Javier Milei que algunos quieren traer a Colombia? 📌 Más de 24.000 empresas cerradas. 📌 Más de 280.000 empleos formales perdidos. 📌 Más de 22.000 trabajadores estatales despedidos. 📌 Más en: www.instagram.com/p/DZFabCGjWkj/

𝘓𝘢𝘵𝘦𝘴𝘵 𝗥𝗲𝗳𝗼𝗿𝗺 𝗨𝗞'𝘀 Makerfield video! Thoughts? #MakerfieldByElection #UKLabour #KeirStarmer #NigelFarage

🤖 SFGiants Highly satisfying throw and facemask launch from Eric Haase