ERDERA
@erdera
🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, advance research and improve care where it’s needed most. Expertise, connected. 💙 #RareDiseases
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🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocat...
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💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDE...
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🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: h...
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💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly...
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💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matter...
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Patients are the glue holding the whole system together—without them, it simply wouldn’t exist. 👉 ERDERA speaks with Bojana Mirosavljevic, advocate behind Zoya’s Law in Serbia, on why patient voices must shape research & policy from day one. 🔗 Read more: https://loom.ly/vxcS4lo
💡 What is PPIE — and why is it such a central concept in ERDERA? Our latest Knowledge Pill explores Patient and Public Involvement and Engagement (PPIE): what it is, why it matters, who is involved, and how #ERDERA puts it into practice. 🔗 Find out more: https://loom.ly/FWzBQpg #RareDiseases
💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA
💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch
That’s a wrap on an inspiring #WODC2025! 🌍 The #ERDERA team joined panels, sparked valuable exchanges, and connected with many eager to collaborate and contribute to advancing #RareDisease research in Europe. 💬 Let’s keep the momentum going! 💪 #OrphanDrugs #WODC
That’s a wrap on the 2nd International CRN Conference for Rare Diseases! 🎉Thank you to all who joined onsite and online — your contributions strengthen collaboration and evidence generation across the rare disease community 🤝 Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases
🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy
🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 https://loom.ly/NxMGydc
🌍 Today is #RareDiseaseDay! ERDERA, the European Rare Diseases Research Alliance, joins the campaign to raise awareness for the 300M people living with a rare disease, and advocate for better care, research, and collaboration 🚀 #RareDiseases #Advocacy #EUHealth #EUInnovation
📬 Missed the ERDERA newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here 👉 https://loom.ly/7VjkRXs 📩 Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY #ERDERA #RareDiseases
COLE CAUFIELD ANSWERS RIGHT BACK!! Just 27 seconds after Carolina opened the scoring! 📺: /NHL_On_TNT, /Sportsnet, & /TVASports
It’s important to match the specific variety to your specific growing climate. This is so true when it comes to lavender! Thank you for supporting small business businesses; you make it possible for us to keep growing. #FamilyFarm #FarmLife #Herbs
Stop wasting your time on social media. That's your signal! If you’re researching relocation or you have access to capital, this is for you. If you don’t have a plan or capital yet, you need one before you move. Buy a guide or book a call. Breakdowns → Patreon. Go to my profile. Tap the link in
History Can🚫Be Changed by lying about the actual facts. #Pro-netanyahuRegiemVotes By controlling what you See&When you see it their propaganda makes you think the world's Flat&That nothing can be trusted All∵Your parents lied to you. Grow the Fuck-Up&Vote Progressive idiots. 🗡️👨🏽💻🛡️🌺🐝🎼⚛️❤️🔥✡️🌟🦁✝️☪️🐦🔥🕉️⚖️🩵🌊🗽🪃🧲
The VANTA LR is the definitive aerial instrument for the Physical AI era. By synthesizing advanced HFRP material science with a modular, identity-bound architecture, Straw Technologies has created an air support platform that is inseparable from the ground-based workforce.
Trump agrees to Ceasefire Deal with Iran Explained #news #politics #trump #iran #ceasefire
Solid Gold Chicken Dry Puppy Food - W/Real Chicken & Potato - Grain Free & Gluten Free Puppy Dog Food w/Probiotics for Gut Health & Digestion - Healthy Kibble for Puppies - Nutrientboost™ - 3.75 LB 🛒 Check on Amazon: https://www.amazon.com/dp/B0C4134GTW/?tag=sersart2024-20
Housing is the biggest check that most Californians write every month. That's why bringing down the cost of housing has been my #1 priority since entering this race, and I know how to get it done as Governor.
💔Another Sunrise in Ukraine, where people wake to the sound of explosions & the sky covered in thick, black smoke. Kyiv, Dnipro, Odesa… The headlines might be gone, but the russians keeps murdering Ukrainians in their own homes, while they sleep, every single day. Don’t look away 😔
Leah Culver (@leahculver) says that the joy of software engineering is in chipping away at projects because, over time, you achieve great things. Watch this session in full, recorded live at the Merge, at www.wearedevelopers.com/en/videos/91...
#FriedrichMerz hat sich auf dem Politischen Aschermittwoch der #CDU für Klarnamen im Internet ausgesprochen. Auf diesem Account steht dann demnächst Clemens Katzenkiller anstelle von #dogswithcarrots. Is für mich auch okay. #dailypunch #mydailypunchline
Shamans have always been with us. This week, we explore how shamanism works with @manvir.bsky.social and why forms of it pop up in some surprising places, from modern medicine and CEO culture to charismatic Christianity. podcasts.apple.com/us/podcast/h...
Independent professional wrestler Thomas Heim talks about his earliest memories watching wrestling! Wanna watch the full interview? Click on the link here: m.youtube.com/watch?v=6lH1...
Wir haben die Kunst damit wir nicht an der Wahrheit zu Grunde gehen. friedrich nietzsche 1844 - 1900
US Senator Lindsey Graham 'threatens' the US's Arab allies to join and build on the Abraham Accords.
No outs, bottom of the 9th, bases full of Ballers, Long Beach's reliever walks in the game tying run! After being down 7 runs, the B's claw their way back to tie the game! #neversaydie #letsgooakland
What do you want! distrokid.com/hyperfollow/... #synthmetal #heavymetal #judaspriest #coversongs
Since the start of Trump’s term, Vermont commerce officials estimate a near $75 million loss in spending from Canadians. Full report from the WCAX Avoiding America series: https://www.wcax.com/2026/05/27/avoiding-america-vermont-border-businesses-see-mixed-results-year-after-canadian-tourism-dip/
Wistikles | ChatGPT uninstallations reportedly jumped nearly 300% after controversy over OpenAI’s alleged Pentagon collaboration. As tensions rose during the Iran–Israel conflict, some users expressed concerns about AI being linked to military operations. #wistikles #ChatGPT #OpenAI #AI #TechNews
#HappyHolidays #FamilyTime #FPKFamily #SeasonOfJoy #HolidayCheer #MerryChristmas #CelebrateTogether #SafeHolidays
Main reason I don't like C-3PO is because he always blames others instead of his own stupid ass. Bruh, shut your face!
À quelques minutes du coup d'envoi de la finale entre le PSG et Arsenal, le Parc des Princes vibre au son du club parisien 😍🔥
Vous avez aimé la croisière Hantavirus ? Vous allez adorer la croisière gastro 😅 Et si on arrêtait les croisières, nocives pour la planète et, apparemment, pour l’humain aussi ? 🛳️🦠
Awaiting Klarna's first trade...are you all in on BNPL? #WallStreetGameNotes #Klarna #KlarnaIPO #WallStreet #NYSE @cnbc.com #Fintech #NYC #KLAR #FinTech #Investing #StockMarket #NYC #WallStreet #financialliteracy #moneymindset #techstocks #finance #banking #bnpl #financialfreedom #stockstowatch
U.S. Facing 4% Inflation Rate - Ep.134 #inflation #economy #recession #tariffs Thanks for check out my Short. Want a deeper dive into stories like this? Check out my long-form videos on YouTube: www.youtube.com/@TheBusiness... #business #businessnews #tbbtn #youtube #shorts #reels #tiktoks #vids
Ohioans are spending tens of millions of dollars a day on a foreign war while the costs of gas and diesel are soaring. Jon Husted says the war is going “much better than expected.”
Our View from India columnist Tarushi Aswani on why New Internationalist is #MoreThanAMagazine Support us today at newint.org/give
This week, Texas Republicans will likely begin considering how to punish their Democratic colleagues for breaking quorum over new congressional maps. State Rep. John McQueeney, R-Fort Worth, on what he would support. #txlege STORY: www.wfaa.com/article/news...
🏀When you’re stuck next to the Duke guy #collegebasketball #nba #snarklebark #dukeoftroll #whitelotus
When cold air hits your airways, your lungs react by constricting blood vessels making it harder for you to breathe. A Respro® Mask allows for easier breathing by warming up and moisturising the cold air before it enters your lungs... it makes sense. #run #winter #freezing #airpollution #lungs
COLLEGE TOURS IN MIDDLE SCHOOL ARE IMPORTANT Hard to believe the eighth graders in this video are now graduates and the seventh graders are now seniors. Some of the graduates will be attending Lander this fall! #FLASHBACK #RIANNJENKINS #TEACHER #STUDENTS #FYP
My Anjelika is turning five tomorrow February 28. I can’t believe that. This was my gotcha day with her in 2021. She was born February 28, 2021 and has been the light of my life for the last five years. She’s my heart and soul. And I can’t see my life without her.
To everyone at Pixar and the president of #pixar #JimMorris I’m still here and I’m not going anywhere
🐐 Whether it is a GERUND (verb acting as a noun) or a PRESENT PARTICIPLE (-ing form of a verb, or adjective forming continuous verb tenses) #ZYDECO #DANCING is the **G.O.A.T.** ZYDECO MUSIC & DANCE - TRY THEM - ENJOY THEM ...& forget about grammar & go have some FUN! GOOD SUNDAY #SundayFunday
They never stand up & fight, and let the Nation get rolled by the GOP every time. The DNC need former Republicans running their shite for them, they bring a butter knife to a gunfight every time.
Being of service on MLK Weekend: My daughter and I made a big batch of burritos, then walked inner Portland and delivered them to folks who don’t have a roof. Her idea. @laylaknudsen.bsky.social 🫶
¿Qué significa realmente el modelo de Javier Milei que algunos quieren traer a Colombia? 📌 Más de 24.000 empresas cerradas. 📌 Más de 280.000 empleos formales perdidos. 📌 Más de 22.000 trabajadores estatales despedidos. 📌 Más en: www.instagram.com/p/DZFabCGjWkj/
𝘓𝘢𝘵𝘦𝘴𝘵 𝗥𝗲𝗳𝗼𝗿𝗺 𝗨𝗞'𝘀 Makerfield video! Thoughts? #MakerfieldByElection #UKLabour #KeirStarmer #NigelFarage