That’s a wrap on the 2nd International CRN Conference for Rare Diseases! 🎉Thank you to all who joined onsite and online — your contributions strengthen collaboration and evidence generation across the rare disease community 🤝 Highlights here: https://loom.ly/XQCqGOg #ERDERA #RareDiseases

That’s a wrap on an inspiring #WODC2025! 🌍 The #ERDERA team joined panels, sparked valuable exchanges, and connected with many eager to collaborate and contribute to advancing #RareDisease research in Europe. 💬 Let’s keep the momentum going! 💪 #OrphanDrugs #WODC

💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem? 🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8 #RareDiseases #EUResearch #HealthResearch

💡 New ERDERA Knowledge Pill! What are ATMPs and how are they changing how we think about treatment, especially for people living with rare diseases? 🔎 Learn more: https://loom.ly/pjOwax0 #ATMPs #AdvancedTherapies #RareDiseases #ERDERA

🚀 Not long to go for the 2nd International Conference on Clinical Research Networks! 🚀 A key global event on clinical research networks, with great speakers & chairs lined up! Full programme & registration👉 https://loom.ly/1fhf8zI 🚨 Limited in-person spots available!

🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 https://loom.ly/NxMGydc

📬 Missed the ERDERA newsletter? Catch up on the latest updates and highlights from across ERDERA and the rare disease research community. Read it here 👉 https://loom.ly/7VjkRXs 📩 Don’t miss the next issue, subscribe now: https://loom.ly/TFRXEBY #ERDERA #RareDiseases

🔬 How do we improve diagnosis for people with undiagnosed conditions? 📅 30 April | #UndiagnosedDay 2026 🌟 Expert & lived‑experience panellists 👉 View the agenda and register: https://loom.ly/DbXzw0E #RareDiseases #Diagnosis #HealthPolicy

🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, advance research and improve care where it’s needed most. Expertise, connected. 💙 #RareDiseases

Patients are the glue holding the whole system together—without them, it simply wouldn’t exist. 👉 ERDERA speaks with Bojana Mirosavljevic, advocate behind Zoya’s Law in Serbia, on why patient voices must shape research & policy from day one. 🔗 Read more: https://loom.ly/vxcS4lo

Posted roughly 1 day ago by @harryjsisson.bsky.social "harryjsisson: Just not a great day" TBH, I don't know anything about Massie; however, it's interesting to hear Mr. Sisson's take on his defeat. They stood apart, but he supported that Massie fought for releasing the unredacted #EpsteinFiles

San Jose Earthquakes news for May 21st 2026: MLS is discussing a stopped clock trial with IFAB. That could change how The Quakes games are timed. #SJEarthquakes #Quakes74 #TheQuakes #SanJoseEarthquakes #PayPalPark #MLS #Soccer #Futbol

Isle of Food - Can you cook when nothing is given to you? Trailer: https://keymailer.co/IsleOfFoodTrailer Creator: https://keymailer.co/IsleOfFood Press: https://game.press/IsleOfFood #IstifaGames #IsleOfFood

The termination of TPS would be disastrous for every sector, especially health care. Listen to Katia Guillaume, VP of SEIU Local 1199, speak about how the cancellation of TPS would hurt our hospitals, clinics, and patients across the country.

💻🔫 Ukraine Russia War | Ukraine Develops Guided Aerial Bomb | RCF NSFW & Premium Content: https://patreon.com/RealCombatFootage Odysee: https://odysee.com/@RCF #RealCombatFootage #RCF #War #Military #WorldNews #BreakingNews #UkraineRussiaWar

Fact Check: Video Does NOT Show Real Fight Between Santos Players Neymar And Robinho Júnior #CheckTok #FactCheck leadstories.com/hoax-alert/2...

Emerson said it cut Scope 1 and 2 emissions 49% from 2021 levels and reduced energy intensity 27%, according to its latest sustainability report. #Emerson #Sustainability #ESG #IndustrialAutomation #ClimateTech

Diagonal panning video from a very detailed shaded map of Yokohama, Japan. The full map is 24780 x 24532 pixels with 0.5 m resolution and is available at https://shadedmaps.github.io Data source: https://www.geospatial.jp [Kanagawa Prefecture General Affairs...

Location: Lucknow, Uttar Pradesh Date: April 17 VHP-Bajrang Dal staged a protest against “love jihad,” where participants chanted slogans promoting the conspiracy theory and demanding that those allegedly indulging in “love jihad” be shot.

Charles Barkley asks OG Anunoby what his real name is and the satellite delay turns it into a comedy routine

It’s #InternationalReducingCO2EmissionsDay—celebrate solutions that cut CO2 emissions & slow #ClimateChange 🌎 Watch this animation (exxonmobil.co/3YKiDMp) to learn about #CarbonCapture, & try this activity (bit.ly/SEG-Carbon-Capture-Activity) to learn how scientists find aquifers to store #CO2

Here is Donald Trump, friend of Jeffrey Epstein, at the Trump International Golf Course near Mar-a-Lago (where Epstein collected young girls to rape) in Florida on February 11, 2024, for a private high school cheerleaders show.

It was 25 years ago: singer Dawn Upshaw's 'Angels Hide Their Faces' was released. For the first time on record, Upshaw interprets the work of Baroque masters J.S. Bach ('Mein Herze schwimmt im Blut') and Henry Purcell: dawnupshaw.lnk.to/AngelsHideTh...

Does that kid have the smallest camera in the world? I love this! #AEW #AEWCollision

I am hooked to Newhook. Bro is pure energy. Subscribe 👉 @funny_as_puck #Hockey #NHL #Habs

The FIFA World Cup in USA question. Why is no one turning up? It’s not complicated. Let me clear your mind why : ICE, Trump, Gaza, Epstein files. Plus Israel owns USA #USA #FIFA #NoShow #ICE #Trump #Gaza #EPSTEINFILES

Power play goal for Montreal! Scored by Ivan Demidov with 16:28 remaining in the 3rd period. Assisted by Juraj Slafkovský and Nick Suzuki. Buffalo: 3 Montreal: 6 #MTLvsBUF #LetsGoBuffalo #GoHabsGo

Need A Billion For The Ballroom !

Some monsters don’t hide in the dark. They scream at the truth until the whole world shakes. ⚡🔥 “The Fat Orange Monster” #TheFatOrangeMonster #GraysonVolt #AltRock

Hassett: "As soon as the straits are open, then energy prices are gonna plummet like nothing you've ever seen before"

Que font des enseignants à l’ @afp.com ? Ils viennent rencontrer les pros du fact-checking pour comprendre les désordres informationnels. 🔍 Une journée immersive… à découvrir en vidéo. 🎥✨ Formation organisée par @leclemi.bsky.social cc @factuel.afp.com

Trump's HUD Secretary said Americans should get "equal rights, not extra rights." We all know Trump and Turner think anti-discrimination laws give LGBTQ+ people "extra rights."

#WeekendShowcase :See main post☝️ Signup for email reminder z3p.io/newsletter @shurastei.bsky.social @margaritamedia.bsky.social @boblivion.bsky.social @eightbuff.com @imaginarypix.bsky.social @majorbill.bsky.social @polytoxikoman.bsky.social @louiscypher2000.bsky.social @spicycreations.bsky.social

Are the police in America occupied too? Congress is. Trump is. Biden was. “America”.

When we’re being berated with constant crises it can be hard to find time to do our basic civic duty of voting. I put together a guide with recommendations of progressive candidates that you may see on your ballot. TURN IN YOUR BALLOTS BY MAY 19TH #oregon #Portland #portlandoregon #primary #election

The No Kings Act was defeated yesterday in committee. Senate Bill 176 would have allowed Coloradans to sue federal officials for violating their constitutional rights. As Democrats, we talk a lot about standing up to Trump. This was our chance.

Thread 1/2: For those who need reminding Ireland is for all! Our health service, construction, hospitality industries are functioning on the back of migrants so if you hear rhetoric like "Ireland is for the Irish" make sure to challenge it. #inclusion #integration #ireland #saynotoracism

Ibrahim al Khalil: "The situation remains dire here in the Gaza strip. Over the past couple of weeks we've been witnessing a noticeable escalation in the pattern of forced evacuation orders.. marking a renewed phase of displacement on a wider & more systematic scale"

Das, was der Feind als tiefes Hinterland betrachtete, ist längst kein sicherer Ort mehr. Jeden Tag wird die Kontrolllinie ihrer Logistik länger, und die Bewegung von Technik und Personal wird immer schwieriger.

Everything I went through led me here. To serve other people.

newsを更新しました！ 雪 fibonacci.tokyo.jp/?p=15563 #墨田区 #鐘ヶ淵 #フィボナッチ紳士洋品店

When a sheriff vanishes, chaos reigns. Can Buck Taylor unravel the mystery before it's too late? 🔍📚 Discover the suspense...more

Hankyu Osaka-Umeda Station, Japan #Japan #Nippon

"Populists are careless of the strife they cause. They trade on grievance in our society and where ills exist they exaggerate them" 💬 Sir John Major delivering the 2026 Attlee Foundation Lecture yesterday, hosted by @strandgroup.bsky.social & The Attlee Foundation 📺 www.youtube.com/watch?v=A1NL...

Hey folks! I'm doing a 20 mile walk for Sheffield Lung Disease Charity in July! Please share around & donate if you can! www.justgiving.com/page/will-ne...

🇫🇷 Paris is being set ablaze tonight — not by conflict, but by celebration.

Thank you to @mrgood.arte and his Assistant, @anotherguywithacamera 📸 It was super fun , I loved hanging out with you guys. Photography: @mrgood Outfits : @rainbowshops Makeup: @valeriaugc Music: 🎵 DANDELIONS 🎵 @ricksloboda @nexeri.music @j.a.e_official @viktorgrimon @gahararecords

⭐B96 Mixmasters V6 - Bad Boy Bill, Bobby D, Tim Schommer, Brian Middleton, DJ Markski, To Kool Chris youtube.com/@GlobalHouseAlliance #chicagohouse

1,500+ signatures. 60+ letters. Real movement on a bull riding ban. That’s not luck. In this episode with Karen Bacon, we break down what actually creates change—consistency, relationships, and action beyond awareness. betterlifeforanimals.com/podcast/059-...

🐺Ab in die Lüfte und Hinaus in den Orbit Wo die Größten Dogfights der Sternenkriege der Galaxis warten 🙃 Der Eintritt ist frei allerdings betreten auf eigene Gefahr! www.twitch.tv/silvariusplay #silvariusplay #letsplay #livestream #maythe4thbewithyou

Good morning Ash and twerps of Wülferhampton, happy Tuesday

Understanding the root cause matters! Many organizations mistakenly think adoption issues stem from training, but they often begin during discovery and design. Don’t let your project suffer—invest time early on! #Salesforce #SalesforceTrainingSolutions #SalesforceSuccessSecrets

#AEWDynamite

🚨 Novedad en China 🇨🇳 Nuevos fármacos e indicaciones aprobados: de asma y sinusitis crónica a psoriasis e hidradenitis supurativa. 🌍 Más acceso a terapias innovadoras para enfermedades inflamatorias. #ChinaPharma #PharmaNews #Biológicos #NuevosMedicamentos #DengYueMed

If you know you have personal challenges, deal with them. But don't bring that into a campaign, not in one of the most important elections of our lifetime. Today's episode is an important one: https://youtu.be/uTiw2YHVwVk

NASA’s moon base plans just got a huge update! 🌕🚀🧪 NASA has announced that their long term plan to build up a permanent presence near the lunar south pole is moving forward with three robotic landers!

Seriously, while some clubs restrict body jewelry, it's up to the individual to adorn their body for personal expression. But, especially in public spaces, wearers should be conscious and considerate of how they might be perceived. #BodyPositive #BodyAcceptance #NudeIsNotLewd #NudeDoesntEquateSexual

#ACLU #TheBoss #Activism

Tail shakers! Something I'm working on =3 Snippet with the lovely @shiuk.com 💛

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