IPOPI
@ipopi
🌍 The IPOPI 2026 Jose Drabwell Research Grant Programme is open for applications! Know more here: ipopi.org/ipopi-resear... #IPOPI #PrimaryImmunodeficiencies #PID #Immunodeficiency #ResearchGrant
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Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable acce...
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🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, educa...
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One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us!...
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At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary...
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🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
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🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
On European Patients’ Rights Day, we stand up for: 🧡 Timely diagnosis 🧡 Equal access to treatment 🧡 Quality care for everyone living with a PID At IPOPI, we will keep working to make sure the voice of the PID community is heard and that no one is left behind. #EuropeanPatientsRightsDay #IPOPI
One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us! Together, we will make this happen. #WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛 Together, we can build a world where every child grows, learns, and shines: healthy! ✨
👋 That’s a wrap on #IPIC2025! Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙 See you next time! ✨ #IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
📄 IPOPI’s leaflets support patients, families, and healthcare professionals with easy-to-understand, patient-focused information — from diagnosis to treatment and daily life. 🎥 Explore our resources, available at: ipopi.org/publications... Together, we empower the PID community through knowledge.
IPOPI gathered policymakers, healthcare professionals, and patient advocates to discuss ageing with primary immunodeficiencies (PID). As life expectancy improves, the focus is clear: how can Europe adapt to support an ageing PID community? #PID #RareDiseases #EUHealth #IPOPI
Day 1 of World PI Week is here! From April 22–29, we’re coming together to raise awareness of primary immunodeficiencies — and to push for what matters most: access to full care. From early diagnosis to timely treatment and ongoing support — it cannot wait. Join us this week! #wpiw2026 #ipopi
Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable access to treatment and care, and stronger recognition of primary immunodeficiencies. #WorldRareDiseaseDay #RareDiseaseDay
At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary Immunodeficiencies as they grow older. #IPOPI #PID #EuropeanParliament #RareDiseases #HealthPolicy
@scifireader.bsky.social enceNews What IS TIME - After ALL? - WE ARE LIVING IN PERPENDICULAR TIMES - Time Waves come in at right angles - A New Reality - Pls Retweet-RePost-Review - Amazon.com #books #science
NOW AVAILABLE...NEW RELEASE EBOOK...ONLY $0.99. READ FOR FREE WITH KINDLE UNLIMITED. Bodies staged like burial rites. A killer using ritual as a message. HPD detective Leilani Kealoha must decode ancient practices while outmaneuvering federal agents and a man who won’t stop. Packed with forensic…
Malcolm Offord, the leader of Reform UK in Scotland, has recently criticised the minimum wage rise. We asked people in Glasgow for their thoughts.
Pentagon releases second batch of declassified UAP footage, including video from Syria showing objects performing instantaneous acceleration.
Today, 25 February 2026 on CTNews… 🚨 Police release images in Camps Bay murder appeal 🔥 Major blaze spreads through Imizamo Yethu ✈️ Airport cable fire halts international departures 🚗 Constantia gridlock sparks urgent City review 🚴 Cycle Tour training routes face hijacking scare
Tax planning helps at every life stage. Our team offers year-round guidance to optimize decisions and reduce tax exposure. Get the full scoop: https://pathview.com/tax-planning-for-individuals/ #TaxPlanning #TaxStrategy #FinancialPlanning #TaxConsulting #TaxOptimization #TaxEducation #TaxSeason
Electric school buses are a critical tool in our fight against climate change. But most districts weren’t ready to make the switch due to costs and logistics, so we’re delaying the requirement 5 years in the new state budget.
🟡VSC🟡 Russell is out from the lead after a loss of power and he is NOT happy #F1 #CanadianGP
South Korea has social cooperatives. Italy has them. Quebec has them. Why doesn't America? That simple question started this whole movement. https://youtu.be/jzsHlEjbx30 #SocialCoops #RMEOC
COVFEF-V, a twisted take on the 1980s fascism allegory V, where peaceful lizard people face invasion by Trump and his two-faced “Visitors” determined to make Lizard World great again. Watch the uncut uncensored version on PATREON for $3 here at link below. www.patreon.com/posts/157886...
#HolocaustMemorialDay #Auschwitz80 "We are not safe. You have to be awake." Sound on. 🔊🔊
#wembanyama #spurs #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/2026-05-12/us/Sports/hi/bs/इजेक्शन-विवाद-के-बाद-विक्टर-वंबनयामा-गेम-5-खेलने-के-लिए-क्लियर/1273914
❗️❗️❗️ #Russia indeed struck the Bila Tserkva district with an “Oreshnik” missile, according to the Ukrainian Air Force. Yurii Ihnat, Head of Communications of the Air Force of the Armed Forces of Ukraine, confirmed that it was an RS-26 “Rubezh” intermediate-range ballistic missil
Don’t worry. This isn’t scary at all. I’m fine. This absolutely is not my last public transmission. Why would you even say that.
Versteht es als Aufruf, für Freiheit und Rechte zu kämpfen, um ein Leben in Würde und Selbstbestimmung zu führen.
I couldn’t be prouder to represent Putney, Roehampton, Southfields and Wandsworth Town, and in the King’s Speech debate I set out how the government is backing the talent of Putney’s young people. Watch here 👇
The Thunder are working to find gaps and the Spurs defense is working to erase them as soon as they can.
JK Rowling is a notorious and dangerously unbalanced Transphobe. If you are supporting her work, you are supporting her. Just know that.
NOBODY believes that the "assassination attempt" at the white house correspondents' dinner was real. (Maggie Reed)
Läuterung des Xavier #Naidoo im April 2022? „Ich habe erkannt, auf welchen Irrwegen ich mich teilweise befunden habe. Und dass ich in den letzten Jahren viele Fehler gemacht habe“. Naidoo heute in #Berlin über »Menschenfresser« und »Kannibalismus«.
Most of us were taught to push through, but mental health doesn’t work that way. Learning your capacity means recognizing when rest is necessary, not optional. #mentalhealth #healing
How to Become Job-Ready in Cloud in Months | Ekascloud https://youtube.com/shorts/wNwl76b7vMg Reach us https://ekascloud.com/ekaspromo/cloud-training +919345171232 +447405103328 +91 8148032252 #TechCareer #JobReady #CloudComputing #ITJobs #LearnCloud #Ekascloud
#ICYMI: This week on #SETILive, Lauren chatted with Adam Schneider about the Backyard Worlds citizen science project and its recent paper on the discovery of 3,000 brown dwarfs. Watch the full interview: youtube.com/live/_kROzAn... 🧪 🔭 👩🔬
Between The Buried And Me shows you what they keep in their tour bus fridge! #btbam #digitaltourbus #businvaders #tourbus #tourlife
#birds This is a Junco - I think it's a female. It seems to enjoy the bath quite a bit!
In this Video about Difference Between Centralized and Decentralized Exchange Script: A Short Note explain by BlockchainX.
Rules for thee, not for me. It’s not about hypocrisy anymore, he created a criminal organization with a weaponized Justice Department. Who’s gonna stop him? Probably no one…..
#Late #show: η #συνάντηση των 5 κορυφαίων και το άφθονο #γέλιο the #meeting of the top 5 and plenty of #laughter
Always love how it wipes the fun and whimsy from the previous film within two minutes of it starting, and re contextualizes with a simple music change, and a little stock footage.
Happy Easter! Nothing says “He is Risen” like promising death to your enemies. Obviously the most Christian President we've ever seen. #Easter #USA #ChristianValues #PeaceOnEarth #StraitOfHormuz #Irony #FolkMusic #NoWar
Spent the day refactoring the whole loading system. It fixed a lot of issues, I just hope everything else still works the same 👌 🌟 Wishlist the game on Steam : store.steampowered.com/app/3386520/... #IndieGameDev #indiedev #game #RTS #indiegame
Our immigrant neighbors keep our communities strong. Our small businesses keep our communities strong. Please support your local independent small businesses this weekend. Brave the cold and bring a friend. We need our neighborhood small businesses and they need us.
“There are people who would be very happy to use these tools to attack our infrastructure, for terrorism or political reasons” 'Godfather of AI' and government adviser Yoshua Bengio explains the concerns with Anthropic's Claude Mythos AI model. #Newsnight
The Kylie doc dropped on Netflix and somehow we already had the Barbie. This is not a bit. Anyone else watching? #SleepoverTradingCo #KylieMinogue #Barbie #Collectibles #Netflix
My MSpaint Scuff Vtuber models are now open on VGEN!! Get a personal and funny model for your stream! ❇️Includes 1 personal custom toggle of your liking! #Barasart #vgen #commissions #vtubers
Prince Estate Confirms New Vault Album for Summer 2026 💜 R U Xcited? Read the full report on L. Londell McMillan’s innerview with The Scoop on our website glamslamescape.com/post/prince-es… #Prince #Prince4Ever #PrinceLegacy #PrinceNews
Roane County- A crash being cleared on I-40 eastbound at 359 mm 7:40am ET. Get Instant Tennessee Traffic Information Right Now With Commander Chuck's “LIVE” Traffic Video. Saving you Time and Gas Money. commanderchuck.net
Travis Scott’tan imza almaya çalışan hayranının yeni görüntüleri çıktı. Scott’tan koluna resim çizmesini isteyen genç, çizilen şekli kalıcı dövmeye dönüştürdü. Scott’ın imzaladığı ayakkabıyı ise hayatı boyunca satmayacağını söyledi. #TravisScott #Icardi #BahçeşehirKoleji #MükreminGezgin #THM