IPOPI
@ipopi
On European Patients’ Rights Day, we stand up for: 🧡 Timely diagnosis 🧡 Equal access to treatment 🧡 Quality care for everyone living with a PID At IPOPI, we will keep working to make sure the voice of the PID community is heard and that no one is left behind. #EuropeanPatientsRightsDay #IPOPI
0
Likes
0
Reposts
0
Replies
More from IPOPI
-
Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable acce...
5 -
🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, educa...
2 -
One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us!...
2 -
At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary...
1 01:19 -
🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
0
📄 IPOPI’s leaflets support patients, families, and healthcare professionals with easy-to-understand, patient-focused information — from diagnosis to treatment and daily life. 🎥 Explore our resources, available at: ipopi.org/publications... Together, we empower the PID community through knowledge.
🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
👋 That’s a wrap on #IPIC2025! Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙 See you next time! ✨ #IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us! Together, we will make this happen. #WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary Immunodeficiencies as they grow older. #IPOPI #PID #EuropeanParliament #RareDiseases #HealthPolicy
Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable access to treatment and care, and stronger recognition of primary immunodeficiencies. #WorldRareDiseaseDay #RareDiseaseDay
IPOPI gathered policymakers, healthcare professionals, and patient advocates to discuss ageing with primary immunodeficiencies (PID). As life expectancy improves, the focus is clear: how can Europe adapt to support an ageing PID community? #PID #RareDiseases #EUHealth #IPOPI
🌍 The IPOPI 2026 Jose Drabwell Research Grant Programme is open for applications! Know more here: ipopi.org/ipopi-resear... #IPOPI #PrimaryImmunodeficiencies #PID #Immunodeficiency #ResearchGrant
🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛 Together, we can build a world where every child grows, learns, and shines: healthy! ✨
Day 1 of World PI Week is here! From April 22–29, we’re coming together to raise awareness of primary immunodeficiencies — and to push for what matters most: access to full care. From early diagnosis to timely treatment and ongoing support — it cannot wait. Join us this week! #wpiw2026 #ipopi
508: Nightflyers - George RR Martin (1985) Intro Rating: 3.49 ⭐️ Watch Summary (6 min) in the profile Genre: Fantasy, Fiction, Horror, Sci Fi, Sci Fi Fantasy, Science Fiction, Science Fiction Fantasy, Short Stories, Space, Thriller 📚 Love books? ❤️ Like, ➕ Follow, ✈️ Share
NEW: Utah’s chief negotiator over the Colorado River tells me the Trump administration may just have to make some short-term decisions for the states: www.fox13now.com/news/colorad... #utpol #Utah
They Flood Every Pritzker Article Wishing Him Dead — But Tom's the Horrible One - Visit https://oldhippiemedia.com/ for the rest of my content and much more.
Comcast News-MSNOW was so obvious in their bull manure work, even other platforms were calling out the pro-Trumpism drumbeat. 'ScaredBro' Scarborough and his now 3rd wife 'Meek' Mika, were 'love-nesting homewreckers' at-the-time and being leveraged by Trump, as was Matt Lauer.
#daily #post #reels #rant #reaction #gaming #gamedesign #gamedev #videogame ##videogames #finalfantasy
Katya Adler and Nick Robinson discuss how incremental progress on UK-EU relations will only have a limited effect on the UK economy. Best for Britain’s report explains how EU Membership would bring the greatest growth to the UK economy, and is what British voters want.
Cut through the noise and use AI to intelligently adjust audio directly in Media Composer—Find out how with the founders of Acclaim Audio ▶️ avid.co/9M1P50YXuQS #acclaimaudio #ai #editing #mediacomposer #media #postproduction #technology #podcast #makingthemedia #avid
Moscow Drone Incident, Global Health Updates, and Rare Soccer Diplomacy #breakingnews #worldnews #currentevents #newsupdate #headlines #newsalert #news
Twisting! Turning! SCORING! 🗣️ Beto brought the HUSTLE to reclaim the Everton lead.
Pro Wrestling is known for putting on events in unusual locations.. What locations do you consider the wierdest you have ever been to personally?
What people think aura farming is vs what real aura farming is... #milsim #combatmedic #indiegame
“Be famous” isn’t hype. It’s focus + consistency + the courage to cut the filler. #CasinoMarketing #CasinoBranding #MarketingLeadership
Welcome to my little retro train journey about British Rail in the 1970s. There could only be one tune to edit to...
Play the long game. Ignore the noise on Venezuela, Colombia and Greenland Headlines change — discipline builds wealth. Keep Investing. Keep compounding. Real wealth is built long-term! 🎥 Watch: linktw.in/wHsmVB #Investing #StockMarket #LongTermInvesting #WealthBuilding #DollarCostAveraging
The Kindle of POTHOLES AND MAGIC CARPETS is only 99p/c on Amazon until the 25th of May. “Complex characters, thrills, and a strong story.” "I loved this book." The audiobook is on Audible, Amazon, and iTunes. My 24 Kindles (free with KU), paperbacks, and audiobooks are on Amazon. amzn.to/29Bawbi
📌bt21_official en sus redes sociales Entre las estrellas brillantes y las nubes esponjosas 🌟✨ #BT21 #BEYOND_THE_JOURNEY #Próximamente 🖇 www.instagram.com/reel/DYjSJNu... 🖇 x.com/i/status/205... 🖇 x.com/i/status/205... 🖇 www.facebook.com/share/r/14eY... 🐢
💳 Introducing Offline Payments in SOLV! 💳 We’re making it even easier to purchase credits on SOLV! Previously, offline payments required reaching out to our team—but not anymore. 🎉 No more back-and-forth. Just a seamless, self-serve experience. 🚀
Dear family and friends, I wish you all the best for 2026, and I hope that the hardships of 2025 will help us appreciate what we have even more. @yourcoffeeguy.bsky.social
The sound of church bells filled the morning air at South Salem Presbyterian Church in South Salem, New York. #SouthSalem #WestchesterCounty #NewYork #ChurchBells #SouthSalemPresbyterianChurch #PresenceNews #LocalNews #CommunityNews #MorningInspiration
Catsuka 25th anniversary shikishi by Lester Chan ♡ instagram.com/lstrchn 🎉 catsuka.com/25years 🎉 #Catsuka25years
#iran #trump #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/ay899mis
We are excited to present multiple views and voices on polygamy as we prepare to study D&C 132 and Official Declaration 1 in the coming weeks. Full video coming Sunday November 9. youtube.com/@dialoguejou...
Post-feeding squirmies of the younger crowd... #CatsOfMastodon #FosterKittens #SleepIsForTheWeak
#mortgage #rates #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/woewz1nw
What did I get? Part 33 - Something new, something used, and something blue! #nintendo #unboxingvideo #unbox #collection #collector
"ATTACK OF THE 60 FOOT CENTERFOLD" (1995) Jealous of the attention received by Angel (JJ North) after she takes Dr. Lindstrom's beauty treatment and grows to giant proportions, Betty (Tammy Parks (born 30/05/65)) takes the drugs and attacks her rival... #scifi #horrorfam #Sizesky #giantess #kaiju
Happy Holidays from the My Balance family! 🎄✨ Wishing you a season filled with joy, health, and restorative rest. #HappyHolidays #SeasonsGreetings #MyBalance #HealthyHolidays #WellnessFamily
pickle darling 𝗰𝗿𝘂𝗺𝗽𝗹𝗲 𝘇𝗼𝗻𝗲𝘀 𝗲𝗽 out 3 december 2025 ✦ pickledarling.lnk.to/crumplezones
S3E12 is dropping on Thursday 12th March 2026 - Set your reminder. This one's coming soon. 🎙️ My guest is Ursula Brendling. Her story is going to give you goosebumps and maybe a nudge to finally take that first step you've been putting off. 👇 Drop a 🌊 in the comments if you're ready!
Breakthrough Cancer Treatments and Record Lows in Smoking Rates #health #wellness #medicine #healthnews #publichealth #healthcare
And I would ask you, if there is a hurricane turning in the gulf, who do you want standing beside you? This was my closing statement at the NAACP Houston Candidate Debate, and I hope I have earned your vote to be your next Harris County Judge.
Beaver…Sin Beaver…and got my 442nd minion! Bunny head stays on for the month! #ffxiv #ff14 #finalfantasy14 #finalfantasyxiv www.tiktok.com/t/ZTk69GLGY/
"Fosse, Fosse, Fosse!" Mike Nichols' THE BIRDCAGE starring Nathan Lane, Robin Williams, Gene Hackman, and Dianne Wiest celebrates its 30th Anniversary back on the big screen from Friday 🎟 https://www.lighthousecinema.ie/film/the-birdcage-30th-anniversary
Black Lives Matter Month is a reminder that the fight for justice is not history. It is the work in front of us. We honor the voices that demanded change and remain committed to safer, fairer communities across New York.
NBA Finals Game 1 Player Correspondent Caleb Wilson checks in with Patrick Ewing! Knicks/Spurs Game 1: 8:30 PM ET, ABC
This indie developer is making a strategy base builder title where you play as Orcs... but must learn how NOT to give in to your rage! It's called Don't Kill Them All, any interest? #BIGSummerShowcase store.steampowered.com/app/2322260/...
65 years later, voting rights still under fire Today in Selma Alabama, “All Roads Lead to the South” March across the Edmund Pettus Bridge for voting rights and eliminating redistricting
Reconnaissance footage of the adventures of the corvette Boiky in Kronstadt has appeared. The Birds of the 1st SBS Centre send their greetings to the economic forum in St. Petersburg.