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IPOPI

@ipopi

🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits

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More from IPOPI

🌍 The IPOPI 2026 Jose Drabwell Research Grant Programme is open for applications! Know more here: ipopi.org/ipopi-resear... #IPOPI #PrimaryImmunodeficiencies #PID #Immunodeficiency #ResearchGrant

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IPOPI

📄 IPOPI’s leaflets support patients, families, and healthcare professionals with easy-to-understand, patient-focused information — from diagnosis to treatment and daily life. 🎥 Explore our resources, available at: ipopi.org/publications... Together, we empower the PID community through knowledge.

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IPOPI

At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary Immunodeficiencies as they grow older. #IPOPI #PID #EuropeanParliament #RareDiseases #HealthPolicy

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IPOPI

Day 1 of World PI Week is here! From April 22–29, we’re coming together to raise awareness of primary immunodeficiencies — and to push for what matters most: access to full care. From early diagnosis to timely treatment and ongoing support — it cannot wait. Join us this week! #wpiw2026 #ipopi

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IPOPI

On European Patients’ Rights Day, we stand up for: 🧡 Timely diagnosis 🧡 Equal access to treatment 🧡 Quality care for everyone living with a PID At IPOPI, we will keep working to make sure the voice of the PID community is heard and that no one is left behind. #EuropeanPatientsRightsDay #IPOPI

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IPOPI

👋 That’s a wrap on #IPIC2025! Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙 See you next time! ✨ #IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI

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IPOPI

Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable access to treatment and care, and stronger recognition of primary immunodeficiencies. #WorldRareDiseaseDay #RareDiseaseDay

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IPOPI

One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us! Together, we will make this happen. #WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait

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IPOPI

🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛 Together, we can build a world where every child grows, learns, and shines: healthy! ✨

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IPOPI

IPOPI gathered policymakers, healthcare professionals, and patient advocates to discuss ageing with primary immunodeficiencies (PID). As life expectancy improves, the focus is clear: how can Europe adapt to support an ageing PID community? #PID #RareDiseases #EUHealth #IPOPI

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After years of wondering and people asking, "When is light rail going to come to Bellevue?" We have our answer: about every 8 minutes! 🎉🚈 You can now ride the world's first train on a floating bridge, and that is pretty darn cool.

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Senator Patty Murray

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We have to be on board to counter the aggressive Republican redistricting.

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Rep. Adam Smith

🩵 I loved this outfit so much, I don't wear a lot of blue but when I do I feel kike the sky Have a fabulous day!! 🩵 #alt #cute #sw #selling #blue #ootd #lotd #braids #bow #smile #peace #twirl #allieshabay

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Emanonamai

#WealthTax now! 💰Jim Ratcliffe has a net wealth of over £17bn 🌞He ‘lives’ in Monaco to avoid £4bn in income tax 🏭But he has huge assets here in the UK TAX THEM!

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Unite the union

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ICE is directly interfering with medical care in hospitals and clinics nationwide Nearly 40 have died, with critical meds and care being withheld That’s not justice, it’s inhumanity Thankfully @gavinnewsom.bsky.social is taking the lead in safeguarding patient care.

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🚀 $NEHC JV signs LOI for a 250MW #AI data center in Texas, tapping surging AI demand with behind-the-meter power. Due diligence closing by July 10. Major step aligning Permian energy with AI infrastructure. 👉 yhoo.it/4kgFo2s #NEHC #datacenters #NEHC #NewEraHelium #Helium #stocks #stockmarket

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#IEEE #EduCon #Engineering #Professor #Cairo #BlackSky #AcademicSky

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Dr. Carlotta A. Berry #NoireSTEMinist 🤖

„Die Axt im Haus erspart den Zimmermann.“ (Wilhelm Tell) #WolframWeimer als #Kulturstaatsminister erspart - sich - die Verleihung des deutschen Buchhandlungspreises. Denn es hätte passieren können, dass er ihn an einen „linken“ Buchladen verleihen muss. Deshalb weht Gegenwind. ⬇️

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A game doesn't just test how someone applies tactics. It shows you how they think, communicate, and handle pressure when the situation breaks against them. (Members Only) Listen here: warontherocks.com/episode/sold...

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Our Food Leaders fellows come from everywhere: Corporate sustainability managers, nonprofit directors, farmers, policy experts, entrepreneurs. What unites them? A commitment to food system transformation. Applications to our 2026 cohort will close on December 5th. More: aspenfoodleaders.org

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Thank you, R4H! 💙 @andersoncheri.bsky.social @marielem.bsky.social @tallboy66.bsky.social @daisydo333.bsky.social @bob0482.bsky.social @shnookeee.bsky.social @lauriejoyous.bsky.social @bluestormcomin1.bsky.social @raykwong.lol Not enough people are talking about Stephen Miller’s first born.

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[Gonzalo Palafox] Marc Pubill on whether he's spoken to Marc Cucurella about joining Atlético Madrid: “Yes, of course. I've already told him.”

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With this government sometimes the only thing you can do is laugh.

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