IPOPI
@ipopi
👋 That’s a wrap on #IPIC2025! Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙 See you next time! ✨ #IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
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Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable acce...
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🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, educa...
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One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us!...
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At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary...
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🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
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Day 1 of World PI Week is here! From April 22–29, we’re coming together to raise awareness of primary immunodeficiencies — and to push for what matters most: access to full care. From early diagnosis to timely treatment and ongoing support — it cannot wait. Join us this week! #wpiw2026 #ipopi
🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛 Together, we can build a world where every child grows, learns, and shines: healthy! ✨
🌍 The IPOPI 2026 Jose Drabwell Research Grant Programme is open for applications! Know more here: ipopi.org/ipopi-resear... #IPOPI #PrimaryImmunodeficiencies #PID #Immunodeficiency #ResearchGrant
IPOPI gathered policymakers, healthcare professionals, and patient advocates to discuss ageing with primary immunodeficiencies (PID). As life expectancy improves, the focus is clear: how can Europe adapt to support an ageing PID community? #PID #RareDiseases #EUHealth #IPOPI
🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us! Together, we will make this happen. #WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
📄 IPOPI’s leaflets support patients, families, and healthcare professionals with easy-to-understand, patient-focused information — from diagnosis to treatment and daily life. 🎥 Explore our resources, available at: ipopi.org/publications... Together, we empower the PID community through knowledge.
Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable access to treatment and care, and stronger recognition of primary immunodeficiencies. #WorldRareDiseaseDay #RareDiseaseDay
On European Patients’ Rights Day, we stand up for: 🧡 Timely diagnosis 🧡 Equal access to treatment 🧡 Quality care for everyone living with a PID At IPOPI, we will keep working to make sure the voice of the PID community is heard and that no one is left behind. #EuropeanPatientsRightsDay #IPOPI
At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary Immunodeficiencies as they grow older. #IPOPI #PID #EuropeanParliament #RareDiseases #HealthPolicy
Democrats are fighting back against gerrymandering after the Supreme Court's decision gutted the Voting Rights Act - they're looking to make big changes in 4 key states ahead of the 2028 election. Credit: @aaronparnas.bsky.social | Source #Gerrymandering #Redistricting #VotingRights #Democrats
NEW: Utah’s chief negotiator over the Colorado River tells me the Trump administration may just have to make some short-term decisions for the states: www.fox13now.com/news/colorad... #utpol #Utah
Software Testing for Managers: An Introduction to Strategies, Technologies, and Best Practices 🛒 Check on Amazon: https://www.amazon.com/dp/B0D8P7CSS7/?tag=sersart2024-20
NO WAR WITH IRAN! Allemande from the 2nd Cello Suite in D minor by J. S. Bach #cello #nowarwithiran #antiwar #artistsagainstwar #bach
Forza Horizon 6 - Discover the breathtaking landscapes of Japan in over 550 real-world cars and become a racing Legend in Forza Horizon's biggest open world driving adventure yet. Trailer: https://keymailer.co/ForzaHorizon6Trailer Creator: https://keymailer.co/ForzaHorizon6 Xbox #ForzaHorizon6
LA farmer Kaden Cable castigates Trump for abandoning farmers: "Trump cut billions of dollars from federal programs that funded small farmers. We've just been left to the winds. Trump doesn't care about people like me or like you. He treats us like we're bugs on the sidewalk and laughs at us."
We’ve been doing the work to build back our police to deliver the service and safety that people expect.
Happy to have held our Fight for Colorado town hall in Alamosa! It’s been a great visit meeting with and listening to students and community members. I will continue to show up and meet Coloradans exactly where they’re at - no matter how far and wide. #Philforgovernor #COpolitics
Lisa Leslie talks through highlights of Natasha Howard's first half contributions for the Lynx
The Justice Department removed news releases from its website tied to Jan. 6 criminal cases. #news #jan6 #january6 #trump
From legendary heroines to modern fighters, women warriors shaped history. ✊🔥 Celebrate these fearless leaders immortalized on stamps—a tribute to resilience & leadership in stunning miniature art. 💌✨ #WomenWarriors #StampArt #HistoryInStamps #EmpoweringWo 👉 https://obelisk-stamps.com/a/bNXzCh
#❌️1️⃣TalksAbtThisREALITY #&It's∵ItDoes🚫Sell Instead WTP Focus on the divisiveness embraced by Karen&Kevins who've been #TrainedToVoteBlindly&🚫TRUSTTheGOVERNMENT. #IT'SaSELF-FULFILLINGprophecyTO🗳FORconfederates #WHOkilledPresidentAbrahamLincoln&COMPLAIN≡USAonlyCARESabt #CORPORATIONSwonderWHY 🩵❤️🔥✡️🗽🦁✝️☪️🐦🔥🧲
Doctors operating on the front lines of the fight against Ebola in the Democratic Republic of the Congo, already grappling with shortages of basic supplies, are now also having to deal with attacks on their facilities and fleeing patients as the virus spreads rapidly.
“Be famous” isn’t hype. It’s focus + consistency + the courage to cut the filler. #CasinoMarketing #CasinoBranding #MarketingLeadership
Opposition to nuclear energy in Australia is at its LOWEST point since 2009. Pressure is increasing for Australia's ban to be lifted. ✍️Take Action 📚Learn More 🛍️ Shop Merch https://www.nuclearforaustralia.com/
I WILL NOT LET THIS GO.THIS MAN IS A CLASSIST RACIST RAPIST PEDOPHILE! RELEASE THE UNREDACTED EPSTEIN FILES!!!!
So joyful to see my State House Rep, the one and only Rep. Pamelya Herndon today in Washington, DC. So grateful for her leadership on infrastructure, public safety, protecting children & families, & advocating for survivors of domestic violence! Thank you for your amazing leadership in New Mexico! ❤️
This is my custom foiled drawing of Kingsley the adorable gray cat! #cat #art #greycat #graycat #printart #handmade #commissions #catart
I LOVE that @teamzandt.bsky.social added challenge levels to Race Worms in order to unlock skins! This one was so much fun and actually was a challenge! Check out Race Worms on steam for a wormy good time! #vtuber #racinggame
With rising conflict between the U.S. and Iran, retirement accounts are bleeding… MAX OUT YOUR HSA! ✅ Tax-deductible contributions ✅ Tax-FREE investment growth ✅ Tax-FREE withdrawals for medical expenses That’s TRIPLE tax advantage 🔥 Watch: linktw.in/XsHMSb
Indie Retro News: Echodrome - This Commodore Amiga game by PixelPlop is fantastic! [UPDATE] t.co/FnGhYCeyxd #amiga #retrogaming #games @amigabill.bsky.social @c64cade.com
The price of U.S. crude oil has risen by more than 40%, and the average price of gasoline has risen by more than a dollar per gallon as a result of the closure of the Strait of Hormuz and war in Iran.
Don’t just do the work…know where the work is taking you. 🧭 More: tiny.cc/st62101 What's 1 'small thing' you're doing today that leads to a 'big thing' later? ⚡️ Learn smarter. Finish faster and wiser!⚡️ #highperformancecoach #mindsetmatters #GotaPlan www.heroic.us/?fpr=BeaHeroNow
"What is this game called?" and why we might be the worst indie devs. #gamedev #indiedev #indiegame
🟠 NOTIZIE DEL GIORNO Rubio si è detto pronto a mediare tra Russia e Ucraina dopo i raid di Mosca su Kiev. Nuovi attacchi degli Stati Uniti contro l’Iran. Israele intensifica i raid in Libano. In Congo e Uganda l'ebola si diffonde rapidamente
A huge thank you to Leah and Hannah from #indiechildrensauthornetwork for the lovely things they said about #CrooksanndNannies in their amazing podcast "We wrote a book, now what?" It's available on YouTube now! #kidsbooks #indiechildrensauthornetwork #podcast #slime amzn.eu/d/0hTHyflQ 💙📚 #booksky
Ladies and gentlemen, the race today pits SpongeBob-yellow against the black-heart of Gargamel. Place your bets.., and let the race begins. 😋😂 #race #marblerun #fun
Catsuka 25th anniversary shikishi by Lester Chan ♡ instagram.com/lstrchn 🎉 catsuka.com/25years 🎉 #Catsuka25years
#iran #trump #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/ay899mis
Good Morning Tony! Thank you so much! I wish you a nice Monday and a successful start into the new week, too! Enjoy the day, take care of you and have fun! Cheers my dear friend! 🙂🫴🫖☕☕💊💊💊💊🥪🥨🥐🥐🧈🍯🍒🍓🥣🍫🍫🍫🍊🍊🍊
Conservatives treat every edge case and regret story like it invalidates all medical data.
Today is the first day of Kwanzaa, and the principle for the day is UMOJA, or unity.
S3E12 is dropping on Thursday 12th March 2026 - Set your reminder. This one's coming soon. 🎙️ My guest is Ursula Brendling. Her story is going to give you goosebumps and maybe a nudge to finally take that first step you've been putting off. 👇 Drop a 🌊 in the comments if you're ready!
Are you ready? The way you’ve been trading… is about to change. SwingPilot - June, 2026. #SwingPilot #ComingSoon #SwingTrading #StockMarket #TradingTools #Investing #Finance #TraderLife #MarketShift
Thank you, R4H! 💙 @andersoncheri.bsky.social @marielem.bsky.social @tallboy66.bsky.social @daisydo333.bsky.social @bob0482.bsky.social @shnookeee.bsky.social @lauriejoyous.bsky.social @bluestormcomin1.bsky.social @raykwong.lol Not enough people are talking about Stephen Miller’s first born.
Cow meat ain't the only thing that'll get too expensive. #DO🚫WORRYpricesGO🆙 Wonder how you power your connection to the Interwebs designed from human ingenuity to be Number1To the moon. I know: I've pissed you off Now∵I spoke the TRUTH no filter.👋🏼 #FOCUSonHUMANITY1st 🗳️✊🏼🗡️👨🏽💻🛡️🗺️🫖🌺🐝🎼⚛️❤️🔥✡️🗽🦁✝️☪️🐦🔥🕉️🎭🪬🏳️🌈⚖️⚜️🪯🩵🌊🪃🧲
Lauder, who wants to steal Greenland, and father-in-law of Trump's installed FED Warsh Chris Menahan 🇺🇸 @infolibnews The mossad should be sicced on Israel's enemies in the PR war, World Jewish Congress President Ron Lauder tells the Jerusalem Post conference in New York City. x.com/infolibnews/...
@michaelsteele.bsky.social on Trump's election lies: “Don't fall for stupid” Before the votes are even fully counted, Trump is reviving familiar attacks on the electoral process. Michael Steele breaks down the playbook and why voters shouldn't buy the president’s election lies.
#OnThisDay in 1992, Lou and Madge got engaged #Neighbours #ClassicNeighbours #BringBackNeighbours