IPOPI
@ipopi
🌍 World Children’s Day Today we celebrate the voices, rights, and dreams of children everywhere. A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛 Together, we can build a world where every child grows, learns, and shines: healthy! ✨
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Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable acce...
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One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us!...
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At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary...
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🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
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👋 That’s a wrap on #IPIC2025! Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙 See you next time! ✨ #IPIC2025...
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At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary Immunodeficiencies as they grow older. #IPOPI #PID #EuropeanParliament #RareDiseases #HealthPolicy
👋 That’s a wrap on #IPIC2025! Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙 See you next time! ✨ #IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
📄 IPOPI’s leaflets support patients, families, and healthcare professionals with easy-to-understand, patient-focused information — from diagnosis to treatment and daily life. 🎥 Explore our resources, available at: ipopi.org/publications... Together, we empower the PID community through knowledge.
Today, on World Rare Disease Day, we stand with the millions of people worldwide living with a rare disease. At IPOPI, we advocate for early and accurate diagnosis, equitable access to treatment and care, and stronger recognition of primary immunodeficiencies. #WorldRareDiseaseDay #RareDiseaseDay
🎓 Don’t let your CME credits play hide and seek! Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them. #IPIC2025 #Prague #cmecredits
🌍 The IPOPI 2026 Jose Drabwell Research Grant Programme is open for applications! Know more here: ipopi.org/ipopi-resear... #IPOPI #PrimaryImmunodeficiencies #PID #Immunodeficiency #ResearchGrant
Day 1 of World PI Week is here! From April 22–29, we’re coming together to raise awareness of primary immunodeficiencies — and to push for what matters most: access to full care. From early diagnosis to timely treatment and ongoing support — it cannot wait. Join us this week! #wpiw2026 #ipopi
IPOPI gathered policymakers, healthcare professionals, and patient advocates to discuss ageing with primary immunodeficiencies (PID). As life expectancy improves, the focus is clear: how can Europe adapt to support an ageing PID community? #PID #RareDiseases #EUHealth #IPOPI
On European Patients’ Rights Day, we stand up for: 🧡 Timely diagnosis 🧡 Equal access to treatment 🧡 Quality care for everyone living with a PID At IPOPI, we will keep working to make sure the voice of the PID community is heard and that no one is left behind. #EuropeanPatientsRightsDay #IPOPI
One week to go! From April 22–29, we come together for World PI Week. Because access to full care — from early diagnosis to timely treatment and support — cannot wait. Join us! Together, we will make this happen. #WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
"I staged it with AI. It cost them nothing." 𝐋𝐞𝐬𝐥𝐢𝐞 𝐑𝐞𝐞𝐝 of RE/MAX Luxury makes the case for staying current with technology in the simplest way possible. A seller did not want to pay for staging. So she used AI to do it instead. No cost, no hassle, and the listing still gets presented
Oh, almost forgot! Before this, I got my cutscene system built! I still need to teach it a few more commands, but it can move entities around, and that's a big part of what I needed! #indiegames #indiedev #gamedev
#daily #post #reels #rant #reaction #gaming #gamedesign #gamedev #videogame ##videogames #finalfantasy
The B2i Digital team is pleased to announce Canadian Phosphate Limited (Pink: FTZZF | ASX: CP8) is participating in the Precious Metals & Critical Minerals Hybrid Conference on Thursday, May 21, 2026 at 2:45 PM EDT. For more details, please visit: b2idigital.com/otc-market-p...
LA farmer Kaden Cable castigates Trump for abandoning farmers: "Trump cut billions of dollars from federal programs that funded small farmers. We've just been left to the winds. Trump doesn't care about people like me or like you. He treats us like we're bugs on the sidewalk and laughs at us."
📌 Η στιγμή που η αδελφή και οι συγγενείς του δολοφονημένου Νικήστρατου αντιδρούν στην παρουσία αστυνομικών δυνάμεων, με κάποιους να ουρλιάζουν «τώρα (που τον σκότωσαν) ήρθατε;» και να τους καλούν να φύγουν άμεσα από το σημείο. 🎥 Orange Press Agency #iefimerida #Νικήτας #Κρήτη #κηδεία
A man who dodged the draft—skipping out on his own time to serve—does not understand the gravity of sending American troops off to fight, bleed, and die.
Nashville - A crash being cleared on I-40 westbound near Fesslers 8:05am CT. Get Instant Tennessee Traffic Information Right Now With Commander Chuck's “LIVE” Traffic Video. Saving you Time and Gas Money. commanderchuck.net
Doctors operating on the front lines of the fight against Ebola in the Democratic Republic of the Congo, already grappling with shortages of basic supplies, are now also having to deal with attacks on their facilities and fleeing patients as the virus spreads rapidly.
So joyful to see my State House Rep, the one and only Rep. Pamelya Herndon today in Washington, DC. So grateful for her leadership on infrastructure, public safety, protecting children & families, & advocating for survivors of domestic violence! Thank you for your amazing leadership in New Mexico! ❤️
Liverpool welcome back two returning players to the squad, but lose another one, while it's all change for Chelsea in personnel and formation. #lfc #liverpool #chelsea #premierleague #teamnews
It’s been a hot one today and the honeybees are thirsty. I keep this birdbath full at all times because they need to keep hydrated. These are only two, of many that have flown in for a drink in the last few minutes.
With rising conflict between the U.S. and Iran, retirement accounts are bleeding… MAX OUT YOUR HSA! ✅ Tax-deductible contributions ✅ Tax-FREE investment growth ✅ Tax-FREE withdrawals for medical expenses That’s TRIPLE tax advantage 🔥 Watch: linktw.in/XsHMSb
#Maga #trump #trending #viral #fyp #congratulations #Liberals #democrats #conservatives #news #today
Since 2012, Palazzo della Carovana has hosted selected works from the Luigi Pecci Centre for Contemporary Art. Not decoration, but a dialogue between past and present. Discover it through guided tours. Free entry, online booking required: piazzadeicavalieri.sns.it
Gute Politik bedeutet, auf Expert*innen und Betroffene zu hören. Markus #Söder macht oft das Gegenteil davon. Das ist für unser Land ein Problem. #bayern #grüne #söderisst
Today’s memories, 1-40ish years ago! My friend @rbalvidrez and I are singing a piece by @robertallaire here.
🏳️🌈📚🪐🚀 #SciFi #IDIC StoneWall Society: “Reading Degranon was a welcome change of pace–a scifi story reminiscent of Asimov’s early work, but with undeniably gay sensibilities.” www.tiktok.com/@dsimolke/vi... Read for free: www.barnesandnoble.com/w/degranon-d... www.kobo.com/us/en/ebook/...
💳 Introducing Offline Payments in SOLV! 💳 We’re making it even easier to purchase credits on SOLV! Previously, offline payments required reaching out to our team—but not anymore. 🎉 No more back-and-forth. Just a seamless, self-serve experience. 🚀
At Delaney Hall this afternoon, ICE agents were dressed and armed for war to keep unarmed immigrants in and unarmed protesters out.
We asked Alexa to do the #Laundry and she didn’t reply. Eventually we had to do it ourselves. I guess if you want something done, do it yourself. #MeridaMágico 🎶Music by #CCnDocMusic 🎶
'Recently, this Israeli terrorist, Niro Levy, a popular fitness instructor for soldiers only, took a "holiday in Lebanon", squatting and destroying the houses of displaced Lebanese.'
Conservatives treat every edge case and regret story like it invalidates all medical data.
Bro was just standing there and we came over to do a whole comedy routine. 😭 ➡️ www.twitch.tv/yaboiedgee #Vclip #VTok #VTuberClips #TwitchClip #babiniku #VTuber #ENVTuber #Vsky #FinalFantasy #FinalFantasyIV #FFIV
We’ve all experienced the headache of managing contracts and subscriptions: long procedures, unclear offers, expenses that keep piling up. 😖 That’s where Papernest swoops in to save the day and make it all simple, handling: - Moving: they take care of... (1/8)
Well done Morrisons! To hear about all the changes our podcast is making (big and small), search Talking Rubbish, wherever you get your podcasts ♻️ #recycling #sustainability #glass
teepublic.com/stores/volpedesign LABOR DAY SALE! Up to 35% OFF. $16 tees and more! #shirts #sale #laborday
How does it feel for SEEd, St. Lawrence's Church Hungerford, Zero Carbon Guildford, and Save Danes Moss to be shortlisted for the #BestCommunityClimateAndNatureAction? Find out who won during #GreatBigGreenWeek! Put the #SMKAwards2026 on your calendar for 11 JUNE!
In the dark of the night, two sounds collide: the final, rattling exhale of a prisoner and the piercing, joyous cry of a newborn. Life and death, occupying the same heartbeat. a.co/d/0gmmxHeo ⬅️ Amazon link for #invisiblesouls #tashairwin #magicmysteryspice #booktok #characterdesign #romantasybooks
Tomorrow is Election Day! If you have not yet dropped off your ballot, make sure you return it at your nearest county drop-box before 8 pm tomorrow! If you’re voting in person tomorrow, make your plan to vote now! Polls are open from 6 am to 8 pm.
Beaver…Sin Beaver…and got my 442nd minion! Bunny head stays on for the month! #ffxiv #ff14 #finalfantasy14 #finalfantasyxiv www.tiktok.com/t/ZTk69GLGY/
Myth busted: Sanctuary cities DON'T mean unchecked crime. Research shows the opposite with @ThaliaVarelas #ImmigrationFacts #SanctuaryCities #CrimeStats #UndocumentedAndProud #TruthAboutImmigrants
Cheyenne Haslett, a White House reporter for Politico, shared this to her X account. Quite the view.
That is, this is what they believed: it could never happen, because they are very strong, very powerful, and everyone is afraid of them. But it turns out to be different," he added.
"When I reported my rape, I never imagined not having a day in court. I've received no justice. The man who did this to me is still out there." This note was given to me at Queen's Park last week by a sexual assault survivor who didn't want to be identified. #onpoli #LydiasLaw
Viral claim alert 🚨: Can cannabis really “kill” hantavirus? The facts say no. Health agencies and current evidence show there’s zero proof it can prevent or treat the disease. Don’t let misinformation spread faster than the truth ❌🦠✅ #FactCheck #HealthMyths srilanka.factcrescendo.com/english/no-e...
Reasons to be joyful. Mangrove resurgence has corrected 90% of losses since 1980. Vital for countering effects of climate change.