Better access. Better support. Better outcomes. Key takeaways from this morning's #ECRD2026 parallel sessions 👇

🎙️ Missed our latest #10MinutesWith? Now on YouTube 👇 Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy. ▶️ Watch now: https://go.eurordis.org/10MWepisode

Today is #EuropeanPatientsRightsDay ✊ For people living with rare diseases, patients’ rights mean timely diagnosis, equitable access to care, and a real voice in decisions that affect their lives. Making this a reality requires coordinated #EU action:https://go.eurordis.org/eurordisblueprint

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

What comes next for rare disease policy in Europe? Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.

What happens when there is no diagnosis❓For millions, this is reality. ⏳ 5 years on average to diagnose a rare disease 🔍 44% consult 4+ healthcare professionals On #UndiagnosedDay, we stand with those still searching for answers. 🔗 https://go.eurordis.org/earlydiagnosis

✨ That’s a wrap on the 15th #EURPRDISAWARDS2026! Tonight in Brussels and online, we celebrated leaders driving change in the rare disease community. Congrats to all our awardees! 🎥 https://go.eurordis.org/BPA2026

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

Debates, role-plays, and practicing protocols. Day 3 of the EURORDIS Open Academy X @erdera.bsky.social Schools has seen our participants putting their newfound knowledge to the test. 💭 We look forward to concluding both schools with a final session of joint presentations tomorrow morning!

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

I have questions… and thank Czech for receiving an American Ebola patient. 🙏😢 All hands on deck. Trump needs to bring back to Washington our appropriate teams of specialists, Doctors, and programs from previous administration to handle Ebola.

Matt and Sarah are thrilled to announce the launch of their new science podcast! Find all the links you need in our bio. See you Wednesday. #AGirlandHerGay #Science #Podcast #Curiosity

Lutnick: "Let's go Knicks! Let's go Knicks! Let's go Knicks! Let's go Knicks!"

We judge books by their covers every day—on shelves, in feeds, and in meetings. The trick isn’t to stop judging; it’s to judge better. questionclass.com/what-can-you... #decisionmaking #reading #design #leadership #questionclass

Noticing that don’t make you dramatic—

Trump calls Russ Vought “Darth Vader”

#365.3 - Is The World On Fire? - JACK&JOZEF - Is Peace just an interval. #ad #fyp #fy #JackJozef #Storytelling #peace #history #war #conflict #Wisdom #future #world #fear #lifehack #podcast #lifelessons #new #news #opinion #media #ironie #absurdisme #weereendag #TalpaNetwork

Pat Kiernan and Jamie Stelter discuss returning to the office after officials urged New York commuters to work from home during the Long Island Rail Road strike 🚇

#mn #ice #federal #occupation #resist

The conditions in Delaney Hall are absolutely unacceptable. Shut it down NOW.

Iran is making fun of TACO Trump's last minute ceasefire. I think this is is their best Lego viral video so far.

and here's the conclusion:

Wow seriously. Trump does love them loyalist judges huh.

🎨 Like our content? Check out our art here → https://f.mtr.cool/gizeesvjqo 🔗 Check out our other accounts → https://f.mtr.cool/ndfowbvduj #exploreproject #aesthetic #surreal #satisfying #fyp #artEvery colour ever named is here. Some have been illegal. Some are extinct.

A Gaza Flotilla activist says the Israelis took pleasure in beating her, and in sexually assaulting her and her friends. She continues, "They removed our clothes, endured us with cold weather and forced us to kneel on the ground with the head on the floor."

Faith Cotto & Adam Francisco are 2 individuals who regularly travel from #Nashville, TN to #Florida whether to appear at #NoKings or generally bother ppl w/ "MAGA" bait. ChudTheBuilder Dalton Eatherly was already dealt with in Nashville. These two are currently on the table in 2026.

The thing is, these lights aren’t visible. Here, let me show you…

Want help to feel safe online? We got you! Join our session tomorrow, led by the brilliant Seyi Akiwowo, to learn the skills & tools you need to be equipped to campaign & feel confident to use your voice online 💪! 👉 https://www.elect-her.org.uk/events-workshops/candidate-clinic-march-30

#blacksky #gymsky #fitnesssky #weightliftingsky

Jungkook durante ‘Run BTS’ e pegando o drone 🔥

Hurt People Hurt People: Finding Healing & Growth #PodcastLife #SelfDevelopment 🌱#GrowthMindset #Vulnerability #Authenticity #FriendshipGoals 👯 #Motivation #Podcast #MentalHealthAwareness #LifeLessons #Boundaries 🚧 #PersonalGrowth #RealTalk #Empowerment #MindsetMatters

#FlávioBolsonaroCriminosoPeculato #CiroNogueiraMensaleiro #LulaPresidente2026 #lulareeleito1ºturno #lulapelotrabalhador #LulaPresidente13 #leandrograssgoverndordf #SimoneTebetSenadoraSP #HaddadGovernadorSP

Michael Beggs Sunrise Currumbin Beach Gold Coast

Agenda‑setter ➜ A senior party boss has pleaded guilty to embezzling funds, an EU compromise has been finalised to implement the Turnberry trade deal, and a major US hospital has agreed a settlement including a detr­

Trump Snubbed Iran To Have Dinner With Cops

Congrats to Cicely Williams, Manager of Access Services & Resources at LSC-System Office (UP), our latest plush OTiS winner! 🎉 Thanks for sharing your IT feedback! 💻 🐶💙 📸 Pictured: Client Technologies Tech III Orlando Salinas Lianza, Cicely Williams, and User Services Manager Gavin Marquez.

A tale of two stories

Our volunteers bring something special, but Joe brings a little extra magic. A member of The Magic Circle for nearly 30 years, Joe volunteers on the paediatric ward at North Mid, performing tricks for children. Looking to volunteer with us? Visit royalfreecharity.org/volunteer #Magic #Volunteer

💩🦠🌿💦 #optimism #solutions #greatnews #greatnews4u #microalgae #green #progress #sustainability #waste #wastewater #energyfree #watersafety #chemicalfree #safewater

Barbie’s Bond Villain Mansion Cast Member Jeff “Lord Sauron” Bezos

Another playtester, another way to play... And you, at what point did you figure out the solution ? #Indiedev #indiegame #gamedev #Unrealengine #UE5 #SKEPTIKOS #PuzzlePlatformer #PuzzleGames

"Look objectively at the council you're challenging, but be very empathetic to their situation. Be frank about the issues so they have clear ideas on what to do next." Cllr Laura Mayes from Wiltshire Council on effective peer challenge that helps councils thrive. https://orlo.uk/EcdYf

Donald Trump is no leader of the free world. He’s a dangerous and corrupt gangster. The Prime Minister needs to call off the King’s state visit to Washington before it’s too late.

​"An anthology of pine needles, a glossary of mud, a dictionary of moss, and a thesaurus of silence." — Fabrizio Caramagna

Rep. Grijalva is right — enough. Republicans need to stop playing politics with healthcare and pass a clean, 3-year ACA tax credit extension. #HealthcareHeist

Ditto It's All Coming Out that Maga Never was a Thing It was Elon this Whole Time He flooded the Country With Hats,Flags & Shirts & Started Paying People to attend Rallies in 2014 He Wore That Black MAGA hat that day as his Son Announced him President & Told Trump he needed to leave ✌️&💙USA

Un compleanno speciale per la mamma di Joao Fonseca ❤️ #Tennis #RolandGarros #Fonseca

I’ve added a Coal Mine to my dark fantasy game, Crimson Rest. In this new area, you can find an essential resource: coal minerals, buried deep within the cave. ➡️ Wishlist 'Crimson Rest' on Steam: store.steampowered.com/app/3993140 #darkfantasy #indiedev #gamedev #psx #godot

🇱🇧 This is Hussein Fayad, a Lebanese chef cooking for the displaced Lebanese civilians across the country. Israel completely destroyed Hussein’s restaurant and resort in southern Lebanon. One of the most beautiful places in the south is now ashes 🤬🇮🇱♾️

📺 Una mirada animada al jonrón de Jorge Mateo

On Memorial Day we honor those people who have fallen dedicating their lives to protecting others and defending the principles of human rights, freedom, respect, & equality. There is nothing more brave than being willing to risk your own safety to protect others. #sunnydayscoot #memorialday

Tem que enviar para o Trump!

Mario, Spider Man, The Flash and more make appearances on the streets of Paris celebrating PSG’s back to back UCL win

🇺🇾🇪🇺 “Culturally, we’re more similar to Europe than the US.” Uruguay’s Minister of Economy and Finance Gabriel Oddone tells #F24Spotlight the #EU-#Mercosur deal isn’t just a commercial decision, but a cultural one.

THE NEW YORK KNICKS ARE UP 1-0 IN THE NBA FINALS BABYYYYYYYYY LETS FUCKING GO KNICKS

⛽️ Bulava and RAM-2 strike drones continue to deny Russian fuel tankers access to Crimea via the land corridor, targeting logistics vehicles moving along key supply routes.

Capture the magic! 📸✨ Our 20th Anniversary Photo Contest is here with 2 separate competitions: 🏆 Main Contest: Includes High School youth category. 🐣 NEW Fledgling Contest: Just for 4th-8th graders! 📅 Deadline: Aug 3, 2026. 📍 Taken at Ridgefield NWR. 🔗 Rules: bit.ly/RNWRMainPhot... #PhotoContest

🤫 Oregon’s tax landscape is a bargain for businesses...the debate about business taxes in Oregon too often sees taxes as a cost! 😎 Read our full analysis here: https://bit.ly/3PN7mtE #orpol #orleg #oregon #portland #taxbenefits

Redemption reflects differently in waters that remember everything. What you've lost might not be gone—just waiting on the other side of the mirror.

#garrett #rams #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/4jg0jyen