What comes next for rare disease policy in Europe? Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.

🎙️ Missed our latest #10MinutesWith? Now on YouTube 👇 Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy. ▶️ Watch now: https://go.eurordis.org/10MWepisode

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

Today is #EuropeanPatientsRightsDay ✊ For people living with rare diseases, patients’ rights mean timely diagnosis, equitable access to care, and a real voice in decisions that affect their lives. Making this a reality requires coordinated #EU action:https://go.eurordis.org/eurordisblueprint

As #RareDiseaseDay approaches, Shum, a young advocate shares what More Than You Can Imagine means to him: Harmony. 🎶 Living with a rare disease, he sees the community like music - every person is a voice. And only together can we create true harmony. 🎥 Watch his story

Debates, role-plays, and practicing protocols. Day 3 of the EURORDIS Open Academy X @erdera.bsky.social Schools has seen our participants putting their newfound knowledge to the test. 💭 We look forward to concluding both schools with a final session of joint presentations tomorrow morning!

Better access. Better support. Better outcomes. Key takeaways from this morning's #ECRD2026 parallel sessions 👇

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

✨ That’s a wrap on the 15th #EURPRDISAWARDS2026! Tonight in Brussels and online, we celebrated leaders driving change in the rare disease community. Congrats to all our awardees! 🎥 https://go.eurordis.org/BPA2026

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

Gods are asleep. Post monsters.

This data center only employs only about 40 people. It uses local resources and drives down nearby home values with constant noise, without boosting jobs or contributing in taxes. They are toxic and should be heavily regulated-forcing them to use renewable energy and other cooling methods-not water.

Down by 30 and 7 minutes in the 4th, the Sun are just out here getting cardio. #WNBA

For #RyanPorter From #MilesMosley

Smiling after taking a penalty 😭😭😭 Dobeš being a sh!t disturber is hilarious 😂 📲 Follow 👉 @funny_as_puck #Hockey #NHL

There's just something about Torbek's voice... apparently. @avantris.bsky.social  #legendsofavantris #dnd #dungeonsanddragons #ttrpg #ttrpgtok #dnd5e #dndtiktok #dndmemes #dndanimated #torbek #bugbear #torbeklaugh #andyflynn #funny #nerd #fyp #fypシ

This is a dance off. If you see this, post a dance!

Happy Caturday & Singlet Saturday! 🖤🩶🤍🧡 #catsofinstagram #catpaws #catdaddy #asiandaddy #britishshorthair #orangecat #caturday #gingercat #猫 #ネコ #adidas #wrestlingsinglet #singletsaturday

Freak Athlete ABX Leg Developer Preview Plate loaded and cable machine compatible #homegym #garagegym #freakathlete

🚀 Want to take control? Comment ‘ebook’ for my free guide!

Kids waving to us 😄

“There is a reason why people are calling this Jim Crow 2.0. This really is plainly an effort to drag us back to the post-Reconstruction era.” Rachel Maddow shows people’s anger and protest in LA, AL, and TN. @maddow.bsky.social

Good morning, Brenda and all #BreakfastCrew Resisters! Happy Taco Tuesday!

“Bring Me To Life” like New Orleans Jazz (or Main Street USA) is like a peppy morning wake up call? #

Reaaally bad (my hand tremors were hella bad at that point, I’d been sculpting tiny braid bits for hours) video of the (pretty decent maybe?) work I got done on transforming the BTS boys into HUNTR/X last night, but shows all 3! Gotta wait for them to dry out before I can do more. #KPopDemonHunters

Ritchie Torres Secretly Invested in Weapons Makers While Backing Billions for Israel’s War Machine

Trump, ever the grifter, doesn't think he has to pay back the $166 Billion he owes on tariff refunds. "In theory, you have to pay the tariffs back. We'll fight that. But in theory, you have to pay them back." Hey, Trump, how about 'in theory' we stop paying all of our bills, too?!

New Health Updates: Cancer Detection, Slowing Down Aging, and Daylight Saving Sleep Impacts #health #wellness #medicine #healthnews #publichealth #healthcare

White House shooting reactions. Never be the woman in the middle. 😂

Hailey Van Lith and Raegan Beers both go for the block #WNBA

Heute gibt's wieder Cute & Salty! 🤪 Vaal_Emrys und ich freuen uns schon auf euch! 🥰 Aber was ist das?! Wir sind heute zu dritt! Takiyasha ist heute auch mit am Start! 👀✨️ 😈 twitch.tv/NinTacchi 👿 #GERVtuber #Vtuber #twitch #streamergirl #gaming #talk #zelda #linksawakening #nintendo

Sometimes, at the end of a long hot say, it's the small things that make it all feel worth it. Happy Thursday people. #LittleThings #PerformingArts #OperaRara #Gramophone #CreativeKin

Easiest dimes of my life shooting around with him back in 2019

"Sometimes they're very strong but cry and sometimes they need just hugs." President Zelenskyy on how meeting the families of fallen soldiers is one of the hardest parts of his job.

The global energy crisis will enable oil and gas companies to make huge profits, which we won’t benefit from because our main fossil fuel tax, the PRRT, is so poorly designed.

Last week, we sat down with Mayor Mamdani. This week, on the Hell Gate Podcast, we broke down the interview, question by question. podcasts.apple.com/us/podcast/o...

MOOD

ONE 👏 DAY 👏 TO 👏 GO. Set a reminder here: www.youtube.com/live/iJQzdmA...

Oil depot in #Matveyev_Kurga ... 🛩️💥🔥

American bison aren't just iconic—they're essential. This keystone species once shaped the Great Plains, supporting entire ecosystems. After near-extinction in the 1800s, their comeback is restoring balance and biodiversity. Read more: www.nps.gov/yell/learn/n...

Què hem de saber del partit d'avui? @cpmanlleu @CPVilafranca 16h El viurem a @laxarxames ! TV, app i web! @jmartitort Oriol Codony, porter del @cpvoltrega @arnaau_caasas , d' @el9nou #hoqueipatins #OKPlata #OKLligaM #okcat

These turned out so good 👶 #newbornphotoshoot #dogsofinstagram #frenchbulldog #comedy #dogparents

Pardoner's 𝙐𝙣𝙘𝙤𝙣𝙩𝙧𝙤𝙡𝙡𝙖𝙗𝙡𝙚 𝙎𝙖𝙡𝙫𝙖𝙩𝙞𝙤𝙣 still hits hard with its raw energy and restless spirit, proof that sometimes the most memorable music comes from the moments when everything feels new and uncontrollable. Give it a listen. CDs are still in stock 📀 fatherdaughterrecords.com/collections/pardoner

Welcome to Siber Sunday! 😻 He can’t get enough of the mesmerizing head massage. 🙀 #siberians #siberiancats #cat #cats #caturday #catsky #catsonsky #catsonbluesky #caturdaysky #catInbluesky #furbabies #pets #petsky #catpics #cutepets #floof #kitty #meow #petsofbluesky

German Ambassador blows up Pierre Poilievre's Geography-101 take on the feasibility of Canada-Germany LNG deal

Sixty Seconds Of Stephen April 23rd World Book Night #StephenKing #WorldBookNight #TheStand

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Morning Minute feat. Speaker Robin Vos at a WisPolitics.com luncheon discussing ongoing negotiations regarding #Wisconsin's budget surplus. 📺 wiseye.org/2026/03/17/w... 📧 wiseye.org/newsletters 🫶 wiseye.org/donate #WisconsinEye #wibudget #wipolitics #politics

I’ve added Dark Knights to my dark fantasy game, Crimson Rest. These new enemies are powerful soldiers of Count Dracula and would give their lives to protect their lord. ➡️ Wishlist 'Crimson Rest' on Steam: store.steampowered.com/app/3993140 #darkfantasy #indiedev #gamedev #psx #godot

On this day in 1984, Bo races to stop Hope from marrying Larry. (Part 2) #DAYS #DOOL #Bope #Larry

More Olivia Miles double drag action. Nia Coffey relocates, Miles finds her on the kickout.

Saw a handful of snoopy birds being just lovely on the beach tonight. Normally black skimmers don't nest on the beach in SoCal; 2 years ago they did and had a REAL bad time. Let's hope these super sweet moments are a sign of successful nestings to come. ❤️ 🪶

A letter to my congressman 1/2 Dear Rob Wittman, I have the misfortune of being your constituent and knowing how little you actually represent our interests. Nearly every hand in this crowded ballroom went up when I asked about how many people weren’t listened to by you.

In Albania, citizens flooded the streets in protest at the mere announcement that Jared Kushner & Ivanka Trump were allowed to buy protected land for a luxury resort development In the United States where Donald Trump is dismantling democracy daily, citizens hold "No Kings" protest one ever 3 mos

Koolpals talks about current events too, just not the way you'd expect. 🎙️ #Koolpals #WIMterview #WhenInManila @thekoolpals @thepodnetwork 🎥: @dreagonfly

The House just passed the biggest housing legislation package in a generation. What happens next — and can it actually become law? We asked Rep. Lou Correa & Rep. Mark Alford ⬇️

Part 2 #Epstein

Lego Batman is a love letter to all the movies.

Had a fun day at locals

#OnThisDay in 2006, Kim and Janelle renewed their vows, but were interrupted by the police, and Kim went on the run #Neighbours #BringBackNeighbours