#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

🎙️ Missed our latest #10MinutesWith? Now on YouTube 👇 Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy. ▶️ Watch now: https://go.eurordis.org/10MWepisode

What comes next for rare disease policy in Europe? Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.

🎧 For #EuropeanMentalHealthWeek, we’re highlighting a 10 Minutes With episode on mental health and rare diseases. Exploring isolation, uncertainty & the need for integrated support, it shows why mental wellbeing is essential to care. 🔗 Listen: https://go.eurordis.org/10MWytb

Today is #EuropeanPatientsRightsDay ✊ For people living with rare diseases, patients’ rights mean timely diagnosis, equitable access to care, and a real voice in decisions that affect their lives. Making this a reality requires coordinated #EU action:https://go.eurordis.org/eurordisblueprint

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

As #RareDiseaseDay approaches, Shum, a young advocate shares what More Than You Can Imagine means to him: Harmony. 🎶 Living with a rare disease, he sees the community like music - every person is a voice. And only together can we create true harmony. 🎥 Watch his story

Our 6 FINALISTS are here… but who will win? 👀 🗳️ Voting for the #EURORDIS Photo Award 2026 is officially OPEN! 🔗 Vote now & help us crown the winners on 24 Feb 2026: https://www.eurordis.org/black-pearl-awards/photo-award/EURORDIS

PM News: ANOTHER All-Time Low Trump Poll and Censure for a Commutation Episode link: https://play.headliner.app/episode/33397124

Velshi：Americans are paying the cost of Iran war that Trump is ‘bored’ with [Edit] Trump’s war in Iran that new reporting reveals he’s bored with and desperately wants to end as he fixates on his ballroom that could now cost taxpayers $1 billion May 8, 2026 www.ms.now/the-last-wor... The Last Word

#IORnews New study from Prof. Jean-Philippe Theurillat’s Lab maps proteomic changes in prostate cancer progression, revealing overlooked drivers of aggressiveness. 🔗 Read the news: shorturl.at/wZWou

Wrapping up our #NCBD video reviews, it's @juanreadscomic.bsky.social with his thoughts on D'Orc #4 from @imagecomics.bsky.social #d'orc #comics #review

I have questions… and thank Czech for receiving an American Ebola patient. 🙏😢 All hands on deck. Trump needs to bring back to Washington our appropriate teams of specialists, Doctors, and programs from previous administration to handle Ebola.

Lutnick: "Let's go Knicks! Let's go Knicks! Let's go Knicks! Let's go Knicks!"

Digital IDs: Threat to Workers' Rights & Union Activity

5 Time Draft Dodger, Suckered into Indicted War Criminal Bibi Netanayhu's War of Choice. 13 U.S. Servicemen Dead So Far. Voters Elected Clowns - Now They Have Their Circus. The History of US/Iran Relations as This is Now a Global Crisis. www.buzzsprout.com/823981/episo...

Republicans promised to vote to extend the ACA. With a BIG CATCH!! #fyp #abortion #governmentshutdown #republicans #democrats #ACA #Obamacare #AffordableCareAct

These are some of the laws of our state of #Minnesota regarding #ice. Please know all your rights. We love all our immigrants in our state, in #Minneapolis and #St.Paul. Everyone looks out for each other. If you need to go somewhere, use an Uber or Lyft. Please don’t go out alone. Travel in a group.

Trump calls Russ Vought “Darth Vader”

Zakharova: West's Africa aid billions exist only on paper For daily global news videos, please visit Ranked.News/videos

The graceful shape of their head, the flowing mane & tail, and riding a horse just feels like freedom. I collected Toy horses as a girl and Horsey was part of that collection. I do not remember how his tail broke off, but I remember when it happened and it was devastating to me at the time. #horse

The Department of Justice is hoarding this empty property in Cork city centre In fact the government & their funded agencies continue to hoard thousands of empty properties in a housing emergency Makes you question whose interests they are really looking after in #DerelictIreland

Pat Kiernan and Jamie Stelter discuss returning to the office after officials urged New York commuters to work from home during the Long Island Rail Road strike 🚇

The United States may not be able to win a war against a great power, and the data from the Iran war proves it. #CulturalPerspective #USMilitary #China #IranWar #USDefense

Gluon Plasma can be HEARD👂🏼in Shuman Resonance Frequencies

@booker.senate.gov: “Bibi and Donald Trump are liars” Trump rejects Iran’s latest offer to end the war he started as consequences spiral. Sen. Cory Booker, D-N.J., joins The Weeknight to discuss the growing political fallout at home and abroad.

It was the honor of my life to work for the farmers during my 17 years at @OrganicValley.bsky.social. Thank you to my friend Luke for a great conversation on Wisconsin's agriculture industry. #MissyForWI #OrganicValley

🚨 Russian economy horror stories. Some oil sanctions lifted — but it won’t save the collapsing Russian economy. In just 3 months of 2026, the Kremlin already reached the budget deficit planned for the whole year. Regional leaders blame Moscow for poverty, collapsing services, and empty budgets.

Alarm, dash, desk, dusk Swimming circles in my bowl I arrive nowhere #wednesdaymood #wednesdaythoughts #thoughts #poem #poetry #haiku #senryu #humor #work #office #life

Imagine being sent back into your past unwillingly, only to discover you are part of a dark spell cast by your ex-boyfriend to include you in his selfish agenda! #Romance #DarkFiction #darkromance #RomanticSciFi #RomanticSuspense #Betrayal #TimeTravel #Suspense books2read.com/u/3nMAB8

As illegal international aggression once again highlights the need for investment in renewable energy, it is crucial the govt do everything possible to protect households from bearing the brunt of surging energy prices - and to ensure no energy company profits from this war.

Israel honors Charlie Kirk for his efforts against antisemitism. Netanyahu called Kirk a “lion-hearted friend” of Israel and a “defender of our common Judeo-Christian civilization.” Kirk was assassinated while speaking to students. Read more → nevadapoliticaljournal.com/opinion/sile...

Anne Applebaum exposes how the #TrumpCrimeFamily is trampling on the constitution and breaking our institutions all while they loot the treasury and set themselves up to trade on stocks that the government is doing business with. Come November vote every Republican out.

Richard Wright - Holiday Álbum: Wet Dream (1978) Sello: Columbia #RichardWright #Holiday #Rock #Funk/Soul #ProgRock

Thursday, May 7, 2026, is good day to lock Trump up in Alligator Auschwitz and cancel construction of the Epstein Ballroom. And the day is not yet over. #TrumpPedoFiles #KatieJohnson #LockHimUp Hulk not like child-raper. Hulk smash child-raper

Hurt People Hurt People: Finding Healing & Growth #PodcastLife #SelfDevelopment 🌱#GrowthMindset #Vulnerability #Authenticity #FriendshipGoals 👯 #Motivation #Podcast #MentalHealthAwareness #LifeLessons #Boundaries 🚧 #PersonalGrowth #RealTalk #Empowerment #MindsetMatters

Finally getting gameplay footage! PlayStation State of Play coming June 2nd with more Wolverine info! #playstation #ps5 #stateofplay #playstation5

午後のソフトeasy！メランコリーボサ🩷 ジャケットの本人の気合いの入れかたがすごい！ドイツのライブラリーレコード🩷 Love should be a word Horst Jankowski and his friends featuring Rolf Kühn 1972

Waldorf: Mike and Carol should have tried harder to get out of that spider's lair quickly. Statler: Yes, they're too young. Waldorf: Too young to be newlywebbed. #svengoolie

🔺Des frappes intensives de l'armée israélienne contre le sud du Liban, lancées il y a quelques heures.

Anne has finally reached the Sayaka Kurara part of the "Sakurara Examination" entry to Cosmic Angels. 4th session is all about artistic ability. Tested by making a promotional poster for the exam that could be posted in the streets. Not bad 🙂 #さくらら審査 #STARDOM 🤼

David McCraw on three tiers of escalating legal tactics against press freedom:

About yesterday: Starnberger See Loop mit 101 km und 553 hm als Vorbereitung für den anstehenden Taunus Express der ADAC Velotour im Rahmen von Eschborn-Frankfurt. #Cycling #Bike 🚴 #Cardio #CardioWorkout #WeiterImmerWeiter 💪 #StarnbergerSeeLoop #GranFondo 💯 #ADACVelotour2026 #TaunusExpress

"THIS WAS STAGED TO GET HIS MONSTROSITY OF A BALLROOM! Wake the fk up! This was staged."

This #MentalHealthAwarenessWeek, we’ve launched an animation highlighting the power of taking action for our mental health 💚 Checking in, reaching out early, supporting each other, and knowing where to get help can all make a difference 👇🏽 https://www.merseycare.nhs.uk/mhaw26 @nhscandm.bsky.social

Est-ce que ça t'arrive aussi, quand il fait chaud, de passer ton temps à remonter tes lunettes sur ton nez ? #chaleur #canicule #lunettes #observation

Lots of time to think about our DUMB decisions 😅🕹️ twitch.tv/thatpunk_ #gaming #retrogaming #queerstreamer #megaman #twitch

Thousands of people protest in #Caracas, #Venezuela against the US' hostile takeover and occupation of Venezuela.

@genesperling.bsky.social: President Trump is doubling down on tariffs, risking even higher prices, weaker job growth, and more economic uncertainty instead of prioritizing consumers, small businesses, and long-term growth.

When but now

​"An anthology of pine needles, a glossary of mud, a dictionary of moss, and a thesaurus of silence." — Fabrizio Caramagna

Share your mood for the weekend!🖤

We must act now. The harm of social media is mounting - this is not just about harmful content but addictive algorithms and the time spent online. That's why we pushed a vote on raising the digital age of data consent, voted to ban phones in schools and called for health warnings on social media.

Reolink: "Animal detected next to garage" Crow: "ZZZZZZZzzzzzoooooom"

ITS THE SHORTENED ANNOUNCEMENT AND NOT THE FULL LINE ANNOUNCEMENT NOOOO 🥀🥀🥀

*Agoraphobia is an anxiety disorder that makes it difficult to leave the house, be in crowds, or be in any place that can be difficult to escape from. 👻🪦 #IndieArtist #DisabledArtist #QueerArtist #SheetGhost #Agoraphobia If you like my work check out my website, RainyDayHauntin.wordpress.com

🤫 Oregon’s tax landscape is a bargain for businesses...the debate about business taxes in Oregon too often sees taxes as a cost! 😎 Read our full analysis here: https://bit.ly/3PN7mtE #orpol #orleg #oregon #portland #taxbenefits

#DonaldTrump #republicans #gop #politicssky #blacksky #USPOL #farleftsky #liberalsky #addtoliberalsky #progressivesky