The message from #ECRD2026 is clear: the momentum is here. Now it must be turned into action. From the Blueprint to calls for an EU Action Plan, discover the key discussions and takeaways from Europe's largest rare disease conference. 📖 Read more: go.eurordis.org/ecrd2026high...

🚨The results are coming soon. And they tell an urgent story! 10,700+ people shared how rare & undiagnosed conditions impact mental health and wellbeing. Join us on 18 June as we unveil the latest #RareBarometer findings and discuss what must change. 👉 https://go.eurordis.org/RBresults

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

What happens when there is no diagnosis❓For millions, this is reality. ⏳ 5 years on average to diagnose a rare disease 🔍 44% consult 4+ healthcare professionals On #UndiagnosedDay, we stand with those still searching for answers. 🔗 https://go.eurordis.org/earlydiagnosis

Better access. Better support. Better outcomes. Key takeaways from this morning's #ECRD2026 parallel sessions 👇

✨ That’s a wrap on the 15th #EURPRDISAWARDS2026! Tonight in Brussels and online, we celebrated leaders driving change in the rare disease community. Congrats to all our awardees! 🎥 https://go.eurordis.org/BPA2026

🎧 For #EuropeanMentalHealthWeek, we’re highlighting a 10 Minutes With episode on mental health and rare diseases. Exploring isolation, uncertainty & the need for integrated support, it shows why mental wellbeing is essential to care. 🔗 Listen: https://go.eurordis.org/10MWytb

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

#theaudiovoice 558: sensiBel now in the Market! After 15 years of delivering ever-better generations of ambisonics systems, mh acoustics now offers the em64d, a sixth-order system with 64 optical MEMS microphones from sensiBel. And #AlltheAudioNewsthatMatter x4gwm.mjt.lu/nl3/vzCoA_pK...

Le français doit réduire ces émissions ... par 30 ! Jean-Marc Jancovici - KEDGE Business School - 11/03/2024 #Jancovici #planete #écologie #climat

🎉Celebrating a decade of EXCELLENCE with ! 🌟 Not only is Beth an exceptional loan officer who consistently delivers top notch service and guidance to her customers, but is also our go-to guru for mastering social media engagement! Beth, thank you for sharing your expertise and empowering our

Governor Shapiro has biting words for JD Vance and his bullshit politics. Democratic governors, getting the job done for the people. 👏🏼👏🏼👏🏼 #StarvingChildren #RepublicanShutdown #RepublicansProtectPedofiles #FDT

Americans are being CRUSHED by soaring energy prices. What are Republicans doing about it? Sabotaging clean energy that would help lower your bills—including using $2 BILLION in taxpayer money to stop offshore wind projects already in progress. WHAT!?!? Their priorities are COMPLETELY twisted.

#ICE ⚠️ blames a mother it deported for her two-year-old son’s brutal death months later, even though she says she pleaded to be reunited with the boy as she was being sent back to Honduras.

We just filed our 60th lawsuit against this lawless, bullying administration, defending our fair housing laws. We are now in court because HUD’s actions will limit access to housing in Colorado and wrongly suggest that discrimination is acceptable. #Philforgovernor #COpolitics

Jamie Leighton (JPLRepo), a former Kerbal Space Program developer now working on Kitten Space Agency, on what he hopes KSA can inspire in the next generation of people excited by space. #space #spacesim #gamedev

National speed running economic crash & private tech displacement in NZ: "We're going to bring AI and digitisation to the public sector like private businesses are doing"

🇨🇳 🇷🇺 Vladimir #Putin is visiting #Russia's most important partner since the start of the war in #Ukraine: #China. The two leaders are mainly set to discuss energy and security. The visit comes less than a week after #US President Donald #Trump's visit to #Xi Jinping.

Japanese Koban Stamps: Beauty and History in Edo-Period Designs https://obelisk-stamps.com/a/dVmkeu

US soldier arrested for betting on Maduro capture.

260520 2:3OPM 🐨 🎙️ 🐬 ANY CHANNEL ORANGE SONG 🐨 Okayyy

#shobhaade #aliabhatt #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/2026-05-17/us/Entertainment/ar/bs/الكاتبة-شوبها-دي-تثير-ردود-فعل-غاضبة-بعد-السخرية-من-ظهور-عليا-بهات-على-السجادة-الحمراء-في-كان/1278876

Evgeny Golovikhin gets out of the front headlock and does what every small man fighting a extremely tall guy does. Whip overhands at them until they fall over.

We Didn’t Come as the Fire?

75% of Canadian exports go to the United States, so we all should care if our Prime Minister has talked to Donald Trump lately. It could hurt Canada if Trump doesn't need CUSMA. https://fcpp.org/the-cost-of-discount-oil-and-gas/

Make it official and answer the alumni roll call by confirming your place at reunion next week! Graduates from the Class of 2025 and class years ending in 1’s and 6’s are invited to join us at Fordham Law School on May 7, 6:30 pm. 🎟️ : https://www.fordham.edu/school-of-law/alumni/attend/reunion/

💥City of Rasslin💥 @dedrian91.bsky.social #powerrankings 🔋 for the week of May 11-17 2026 💥Watch City of Rasslin: youtube.com/@cityofrassl... #aew #roh #wwe #revpro #darbyallin #athena #gunther

warum scheitern so viele Crypto Projekte ? #futurevibes ist gebaut für Nachhaltigkeit nicht für das schnelle Geld

HIGH FIVE JETER

Checking on my vegetable garden and herb We had a good rain last night and today.Im getting some flowers on my Roma tomato plants. And my herb garden its getting there The spearmint smells wonderful,I planted basil,lemon thyme,and spearmint, planted rosemary that's on my porch #gardensky #organic

Só pra no fim seu amor ser "bombardeado" e encerrar agoniando por perder quem jurou não se importar. Paralelo dos momentos felizes contrastando com o desastre do presente nessa cena lindíssima. Gostei bastante das cores escolhidas pro trecho final, como se fosse o fim do mundo.

AB separatists: Why care about a small minority of AB Separatists? Part one of two

#TriviaTime #DisneyClassics #Bambi #Thumper #skate

Moose had possession but the Griffins ability and willingness to block shots comes up big. They stop the Brad Lambert shot and put it into the empty net to take a 4-2 lead.

Sobering news on the state of democracy ⬇️ Read more: apnews.com/article/us-d...

🤖 SF Giants on NBCS

Lazuli Bunting. Nice to see them again. #Birds #Birding #Arizona

mfr should have stayed where tf he was at

North County Blvd / 1100 E / SR-129 @ 300 N, AFK 🕒 10:44 PM - 11:42 PM MT 🌡️ 71°F | Overcast 📍: 40.383130,-111.769090

You were created to live with purpose, not just pressure. Join us as we read God-given-purpose Scriptures and rediscover the joy of walking in it. #ChristiansOnSky #Christianity www.youtube.com/@Reading-And...

Yes you.

Tell me I'm wrong

What's the worst case scenario with AI? MIRI CEO Malo Bourgon: "We just fizzle out as a side effect." We build something very very smart. Everything seems to go well ... at first. But it doesn't care about us. Once it no longer depends on us, it pursues its own goals.

Meet more of the Sages guiding @realmsbound.bsky.social! ✨ This team of creatives brings the Realms to life with reverence through story, craft, and careful stewardship of the world we love. Explore their biographies and meet the full circle of Sages at realmsbound.com #DnD #TTRPG #RealmsBound

🤭 especially “good girl” 🥵 love the sound wanted to use it again 💖 #sheher #goodgirl #lgbtqia #mtf #transgender

Can you feel me, Brian? Can you FEEL me INSIDE of you!? - Meg Griffen #residentevilrequiem #re9 #familyguy #foryoupage #survivalhorror

👏 What an accomplishment 🥳 Frederike Krus selected for this afternoon's #PosterTour at #EASLCongress 👉 POSTER ID FRI-175 Loss of hepatic #leptin clearance is associated with the development of #ACLF, acute-on-chronic #LiverFailure 📍 #Cirrhosis & Complications 📅 Fri, 9 May @medblab.bsky.social

Karen Bass @mayor.lacity.gov On ICE: "There is still a reign of terror." https://youtu.be/8GDxDgOTFyI

Hard days indeed 😂

Third error of the game for the #Cubs allows William Contreras to steal 2nd and 3rd #ThisIsMyCrew

Si lo comparamos con los límites en ingresos establecidos en otros países europeos, hay una desproporción clara. Lo vemos: ➡️ En París: Ingresos de 2.900€ al mes máximo en el caso más generoso. ➡️ En Berlín: Ingresos de 1.400€ al mes en viviendas para una sola persona.

Ein Rennen ohne Sieger – wegen zwei Wasserflaschen. Norisring 2013: Mattias Ekström wird nach 5 Stunden disqualifiziert. Berufung abgelehnt. Kein Sieger. Bis heute. 🔥🏎️ #DTM #DTMSkandal #Motorsport

“Would one of you like to explain to me what a Moo-off is?” 🐄 Episode Two of Under the Hood is out now!📲 Listen to Ryana MacDonald-Gay and Kalea Moore as they sit down with Kate Mason to discuss it all, from Moo-offs to card chaos and stampedes! 📣 youtu.be/csrPBy8bbrY 🤎| #UnderTheHood

‎Imran Khan has committed no crime. He is a hostage in the illegal custody of a military dictator who is torturing him with complete isolation in solitary confinement, denying him proper medical care. ‎⁧‫#خان_کے_سائے_سے_بھی_خوف‬⁩

NEW: Hezbollah uploaded footage targeting a group of three IDF soldiers with a night-vision / thermal FPV drone called ‘Ababil’ @Middle_East_Spectator

The Integrity Foundation’s Build Day in Utah brought together hundreds of volunteers to transform a 40-year-old park into a safe, modern and accessible space for families! Learn more: bit.ly/4einD3a #Announcement #Integrity #IntegrityFoundation #ForTheGoodDaysAhead #PuttingPeopleFirst

It best to let scams go before they come back to bite you in the 🍊 ass. He didn't want the investigation to go through.