What happens when there is no diagnosis❓For millions, this is reality. ⏳ 5 years on average to diagnose a rare disease 🔍 44% consult 4+ healthcare professionals On #UndiagnosedDay, we stand with those still searching for answers. 🔗 https://go.eurordis.org/earlydiagnosis

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

As #RareDiseaseDay approaches, Shum, a young advocate shares what More Than You Can Imagine means to him: Harmony. 🎶 Living with a rare disease, he sees the community like music - every person is a voice. And only together can we create true harmony. 🎥 Watch his story

🎧 For #EuropeanMentalHealthWeek, we’re highlighting a 10 Minutes With episode on mental health and rare diseases. Exploring isolation, uncertainty & the need for integrated support, it shows why mental wellbeing is essential to care. 🔗 Listen: https://go.eurordis.org/10MWytb

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

✨ That’s a wrap on the 15th #EURPRDISAWARDS2026! Tonight in Brussels and online, we celebrated leaders driving change in the rare disease community. Congrats to all our awardees! 🎥 https://go.eurordis.org/BPA2026

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

The message from #ECRD2026 is clear: the momentum is here. Now it must be turned into action. From the Blueprint to calls for an EU Action Plan, discover the key discussions and takeaways from Europe's largest rare disease conference. 📖 Read more: go.eurordis.org/ecrd2026high...

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

@nytimes.com HI - new book exposes a future Sports League that makes politics FUN AGAIN! The United States Civic League: The Sports League of Real Democracy. RTweet, Repost, Review bit DOT ly/politicsgame -- #politics #sports #games

Top 10 Business headlines 🙄 1. China’s Xi meets Putin, warns of return to 'law of the jungle' 2. US Pauses Visa Processing For 75 Countries; Pakistan, Bangladesh, Iran Read More 🚀 - seefinish.com/business/ 🎁 Shop @ ZUMAFIND.COM 🇳🇬 #ai #us #iran #trump #ceo #oil

"Clamp them all" The US government have refused to pay the congestion charge for over twenty years @GreenJennyJones Londoners have to pay this, other embassies do, so why not #Trump ? Time for action.

Ever seen a 7-footer slide down a wall in terror? Al Biancani has. In this clip, legendary strength coach 𝐀𝐥 𝐁𝐢𝐚𝐧𝐜𝐚𝐧𝐢 shares the hilarious reality of the Kings' locker room. It was a constant prank war between him and Vlade Divac. Vlade got him first at the elevator, but Al played the

Overnight, Ukrainian attack drones targeted the “Nevinnomyssky Azot” chemical plant in russia’s Stavropol Krai 🇺🇦💪 Russians are complaining about the lack of air defense systems ☺️ #RussianUkrainianWar #UkraineWar #Ukraine #War #UkrainianDrone #Drone #NevinnomysskyAzot #ChemicalPlant #StavropolKrai

You're always welcome, my sister! 🫂💙🫂

DEL PIOMBO AND THE LOST MASTERS is an epic time-travel music thriller about a bedroom producer who breaks through centuries to work with the greatest composers in history. And the war he starts by doing it. Part One and Part Two available now on Amazon. www.amazon.com/dp/B0G7MNDG57 #newbook #scifi

For the record, this is how I'm normally greeted in Carson City. The anonymous poster is an outlier. #NVLeg

"Nothing is going to stop me from getting that moment." Will Ospreay discusses how important Wembley Stadium is to him and what it would mean to be in the All In Main Event fighting for the AEW World Championship.

Prasanna Sir Speaks The Future of AI & Cloud Technology| Ekascloud https://youtube.com/shorts/mW6MbJLBkx4 Reach us https://ekascloud.com/ekaspromo/cloud-training +919345171232 +447405103328 +91 8148032252 #TechTalk #ArtificialIntelligence #AIInnovation #CloudComputing #TechFuture

Bandai Bridge Niigata from Media Ship, Japan #Japan #Nippon

⁉️WHY THE ACTUAL FUCK IS HE CAMPAIGNING⁉️

EU QUERO ELE 🫦

“Holy Gaslighting” a new song by The Swivle Project

Tonight was damn hectic, but we cleared out two story bosses and explored more! My stubborn and hungry ass probably should have called it in some of those dungeons a little sooner though lmao #VTuber #ENvtuber #VtuberEN #Vsky

"Footage shows the moment when an Israeli strike killed civilians and paramedics while they were on duty today in the town of Deir Qanoun El-Nahr, southern Lebanon"(QNN) #Israel #Lebanon

“‘47’ Ways to Be Dangerous.” I grabbed my phone as quickly as possible to capture this. A U.S.Army helicopter just flew past my house so closely that my house shook. Not the 1st time that this has happened. Pardon my language in this video but I am outraged. This is an accident waiting to happen.

Corbin Carroll has eight triples in his first 49 games this season. He's just the fifth player with that many triples within his first 50 games of a season in the Wild Card era (since 1995). Only 2004 Chone Figgins has more (9).

The #Fishing #Cat 🐟🐱🐈😻is #vulnerable in #India 🇮🇳 and #Thailand 🇹🇭 They are edging closer to #extinction from #palmoil #deforestation and hunting. Take action for them when you shop! #Boycottpalmoil 🌴🪔☠️🤮🧐❌ #Boycott4Wildlife @palmoildetect.bsky.social palmoildetectives.com/2022/12/01/f...

Faneuil Hall has always been a beacon of possibility. The vision we are setting out for Faneuil Hall Marketplace—a place filled with the food and the goods and the businesses of every neighborhood in this city—will make it not just a front door to Boston, but a front door to our future.

Toronto’s MLSE LaunchPad helps young people build confidence and thrive in their community. We’re building more places like this to support our athletes at every level — from the playground to the podium.

gotta have the sound for full effect

Modular Sampler

We're leaving #ASH25 filled with even more inspiration and determination to bring innovative treatment options to patients living with challenging blood cancers. Watch to see how our team engaged at this year’s meeting! 🎥 🩸

This country belongs to the people. No kings. No exceptions. March 28 • 10AM • Idaho State Capitol

There are simple fixes we can deliver for our health service right now. #stvdebate

RISE! WE AREN'T MAD ENOUGH! ENOUGH IS ENOUGH! BRING YOUR FRIENDS AND FAMILY! NO KINGS!

No messing from Licha 😤

If you’re dealing with hair thinning, your shampoo matters more than you think. Here are the key ingredients that can actually make a difference. (link in comments)

🚨🇮🇷 A 60-day ceasefire extension and new nuclear talks are said to be placed on Trump's desk tonight.

#apple #intel #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/2026-05-06/us/Business/es/bs/¿Apple-Abandona-TSMC-Intel-y-AMD-se-Disparan-en-una-Masiva-Reorganización-de-Chips-de-IA/1267930

🐕 ‼️

This morning, two roundabouts opened in Old Town Goleta on both sides of Highway 217 on Hollister Ave. https://keyt.com/lifestyle/travel/2026/02/18/two-roundabouts-scheduled-to-open-on-hollister-ave-in-old-town-goleta/ 

This animated video actually shocked me to the core. The overt racism detailed here should sicken anyone with a decent moral compass. At some point, I expect to see Donald Trump do an “Address to the Nation” in full Ku Klux Klan regalia. 😡😡

REMINDER: The ASBMR 2026 Call for Abstracts is OPEN! Share your research on the global stage and apply for ASBMR awards and travel grants designed to support scientists at every career stage. 📅 Deadline: May 7 📍 Boston | Oct 9-12, 2026 Your science belongs. Submit today.

I will be me and won’t apologize, to live my truest inner self 🏳️‍⚧️ #transandproud #mtf #lgbtqia #foryoupage #ftm

Simple gesture, strong message: A Des Moines woman, who wishes to remain anonymous, marked the anniversary of her decision to choose life over suicide by spreading kindness through heartfelt notes and monetary gifts to strangers. Todd Magel has the story: https://t.ly/AHASo 

To be fair, there’s only happy mistakes with Bob Ross-

I've added a merchant to my dark fantasy game, Crimson Rest. This merchant sells weapons and consumables to the player. If you buy a copy of a weapon you already own, it will level up that weapon. What do you think? #indiedev #gamedev #godot #darkfantasy #psx #nostalgic

Le retour du scandale Epstein a attiré l'attention sur les grands noms présents dans les documents, mais pour François Bougon, il illustre surtout le fait que les victimes n'ont pas été assez écoutées. www.arretsurimages.net/emissions/ar...

Steyer's position on public transport despite him being a 'climate activist' and against the fossil fuel industry. Tumbleweeds 💨

Sam Levinson can suck my lady nuts. #Euphoria

Good afternoon

Roxanne's Good Guy Act Just Backfired #wwe #wrestling #shorts ⚡️ Witness an intense "wrestling" segment where a "wrestler" questions Roxanne's ambitions and trajectory within the "professional wrestling" landscape. This video captures compelling "smackdown highlights"

Happy Birthday @categreenwood1971.bsky.social🎂🎈🎁

talking about UFO disclosure and everything going on everybody is suddenly taking this seriously and I see a bunch of people in the UFO disclosure movement who so fucking desperately want to be at the forefront of this. I'm going to tell you what I want. I want to see space aliens again c:

Contingent Commander (Part Time), The Royal Hospital School @rhssuffolk.bsky.social . Closes: 16/06. https://shrbrt.jobs/aznt2g. #independentschooljobs #suffolkjobs #teachingjobs @hmc-schools.bsky.social @isaschools.bsky.social

It's National CPR & AED week, so today's Monday with Marc highlights the importance of these life saving measures and how readiness and training is key. #mondayswithmarc #CPRandAEDWeek #edgertonhospital #edgertonwi

Bad Bunny wins Musica Urbana Grammy then makes the speech of the century 🇵🇷#badbunny #puertorico #boricua

It’s time to stop denying that this is still happening. There’s no ceasefire. There’s no peace in Gaza. Netanyahu enjoys this power. Wake up America it won’t be so acceptable when it happens here or when we do this to the so called drug countries. Just because we can.