What comes next for rare disease policy in Europe? Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

Better access. Better support. Better outcomes. Key takeaways from this morning's #ECRD2026 parallel sessions 👇

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

As #RareDiseaseDay approaches, Shum, a young advocate shares what More Than You Can Imagine means to him: Harmony. 🎶 Living with a rare disease, he sees the community like music - every person is a voice. And only together can we create true harmony. 🎥 Watch his story

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

🎙️ Missed our latest #10MinutesWith? Now on YouTube 👇 Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy. ▶️ Watch now: https://go.eurordis.org/10MWepisode

Young advocates (12–21) are gathering in #Paris this week for the ERDERA Training at Institut Imagine Learning, sharing, and shaping the future of rare disease #research. 🎥 Hear what they wish others understood about rare diseases in the video below!

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

Grant @markhamillofficial.bsky.social TV Show: The Boondocks Episode: Mr. Medicinal Year: 2010 This was a cameo voiceover by Mark Hamill in Adult Swim's The Boondocks. #TheBoondocks #AdultSwim

An encore presentation for today's #BlueskyArtshow #Tall theme. I posted this about a year ago, but these are tall and I like it. #UrbanGaze #Denver #Photography #MobilePhotography #VideoVignette Tokyo Cafe, TVARI (Pixabay)

Typical Monday. #meme #ancientmeme #oldtimeyweb #humor #humour #heman #4nonblondes

Politics shouldn’t be this complicated. You should be able to see everything clearly.

Finding “instant chemistry” in conversations isn’t luck—it’s pattern recognition. Certain topics reliably create common ground, even with people you’ve just met. questionclass.com/what-topics-... #communication #leadership #networking #questions #relationshipbuilding

#TomodachiLifeLivingTheDream Michael and Lucina are now friends. After a discussion about Fire Emblem. I’m glad this worked, because if it didn’t, then it would such a bruh moment here!

NEWLY RESTORED at @archive.org: A rare #filmstrip adaptation of a 60s #Disney short in the "What Should I Do?" series. https://uncom.cc/bnh9h

🎙️ The voice cast for Minions & Monsters has been revealed. The animated film features: ⭐ Jeff Bridges ⭐ Christoph Waltz ⭐ Allison Janney ⭐ Jesse Eisenberg ⭐ Zoey Deutch ⭐ Bobby Moynihan ⭐ Phil LaMarr ⭐ Trey Parker 📅 Track release updates: www.releases.com/p/minions-mo... #Minions

The President of the United States announced new reforms to speed up psychedelic research and expand treatment access, aiming to support veterans and patients while maintaining strict safety and scientific oversight. #reels #health #news #DonaldTrump #trending

Unlocking The Secrets of Balancing The Chakras: Podcast Episode 4 I am back with the 4th episode titled “Unlocking The Secrets of Balancing The Chakras: Podcast Episode 4” of my podcast Skeletal Leap: A Living Adventure. SKELETAL LEAP, the mind body connection for mind and body healing, is a...

After 60 Years, Diabetes Drug Revealed to Unexpectedly Affect The Brain #metformin #diabetes #medicine #health #nhs #viralvideo #reelschallenge #reelsvideo #reelsviral #reels #news #curiousfellow @highlight

Jack Kirby in 1983, talking about his experiences in WWII and the brutal reality of war compared to some people's romantic or simplistic view of it... "Some people think about war like they think about comics...

Australia banned social media for kids under 16 — and as a child psychiatrist, I think the conversation is missing something critical. #TeenMentalHealth #SocialMedia #DrSam #ParentingTeens

Haut an Haut tragen - hast du das mal probiert? 😱#tragebaby Ich bringe gerade meine Videos hierher – falls du neu bist, willkommen! 👋

Blimey 😮

In the next 10 years, having an AI certification will be the new high school diploma. Which means you’re gonna have to bring WAY more to the table. Tune in: https://youtube.com/live/-QzBH1nqa8w?feature=share #theuntraditionalentrepreneur  #futureofwork

And waste #3 today! The Chinook flew past again. Shame.

260520 2:3OPM 🐨 🎙️ 🐬 ANY CHANNEL ORANGE SONG 🐨 Okayyy

They said this is what it's like watching their games

Make it official and answer the alumni roll call by confirming your place at reunion next week! Graduates from the Class of 2025 and class years ending in 1’s and 6’s are invited to join us at Fordham Law School on May 7, 6:30 pm. 🎟️ : https://www.fordham.edu/school-of-law/alumni/attend/reunion/

Berdyansk Under Attack by Ukrainian Drones For daily global news videos, please visit Ranked.News/videos

ABC TV - Kiri Te Kanawa promo (ABN-2, 15/1/93) : 30s

The first reveal trailer for “Dragon Quest XII: Beyond Dreams” is here. The game reunites the legendary trio of Akira Toriyama, Koichi Sugiyama, and Yuji Horii for a brand-new fantasy adventure.

"Heather walked our caucus through fire in that last parliament." - @charlieangus104.bsky.social

1.25 MILLION DOLLARS. 💀⚖️ Chud the Builder went from building content to building a legal defense fund real quick. Bond denied? No. Bond doubled? Yes. Save this for the next time someone asks "what's the worst that could happen?"

Today’s line-up… · A gay man held in US ICE immigration detention is finally free. · The Vatican criticises the “devastating” effects of conversion therapy. · A new Christian mobile network blocks queer content by default. Pod app · smart speaker · YouTube · pod.link/1712324163

@samreich.bsky.social understands what we're doing, here.

✊🏿👑✨ #ILoveMyBlackness🖤 #BlackCultureIsTheBLUEPRINT #UnapologeticallyBlack

my living rn

Take 2: Gaming fun using AI Art and Video. #AIArt #Video #Gaming #Fighters

#bitcoin #crypto #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/2026-05-11/us/Business/es/bs/El-repunte-de-Bitcoin-a-75.000-dólares-señala-un-bloqueo-EE.-UU.-Irán-'de-corta-duración'-y-desafía-los-temores-de-inflación-petrolera,-dice-el-analista/1272697

With less than 24 hours to go before snowfall is expected across Maryland and beyond, MCM freelance reporter, Cristinia Caicedo Smit has the info to keep you prepared. From prep tips to snow shoveling hazards, stay tuned to MCM for more storm coverage. #MoCosnow #mymcmedia

Luciano Huck vomitou um preconceito sobre o Bolsa Família típico de um playboy que sempre teve tudo de mão beijada. Em 2025, 10% dos beneficiários deixaram o programa porque melhoraram de vida. O resto eu deixo por conta de Nath Finanças.

“I’m not a racist but…” 🙄 #BadBunny #SuperBowl #Racist #FolkMusic #OriginalSong #protest #ICE #SocialCommentary #FactCheck

Please join me in this conversation on tiktok and this platform

🤭 especially “good girl” 🥵 love the sound wanted to use it again 💖 #sheher #goodgirl #lgbtqia #mtf #transgender

Empower the educators who empower your students! 🚀 BSCS provides high-quality professional learning for science leaders, specialists, coaches, chairs, and more. Because great teachers deserve top-notch support. Check out our opportunities by visiting us at bscs.org/lcb 🍎 🧪 #EduSky #SciEd

👏 What an accomplishment 🥳 Frederike Krus selected for this afternoon's #PosterTour at #EASLCongress 👉 POSTER ID FRI-175 Loss of hepatic #leptin clearance is associated with the development of #ACLF, acute-on-chronic #LiverFailure 📍 #Cirrhosis & Complications 📅 Fri, 9 May @medblab.bsky.social

Karen Bass @mayor.lacity.gov On ICE: "There is still a reign of terror." https://youtu.be/8GDxDgOTFyI

✨Wreck It Ralph MagicBand skins customize your band on your next Disney trip! Just apply it like a sticker and peel it off afterwards! Get yours at 💫 TheMousierge.Etsy.com 💫 or 🛒 TheMousierge.shop 🛒 🛍Join our email club to SAVE 15% - bit.ly/MousiergeWeekly

Tropes 🔪Insta-Love 🩸Second Chance Romance 🔪Touch Her And Die 🩸Why Choose FFM 🔪Friends to Lovers 🩸Who Hurt You 🔪Found Family Book recommendations | found family trope | dark romantic suspense | dark romance | romantic suspense | romance books | spicy romance books | dark romance novel |

these Bailey vs. Sabrina/Ben updates… can’t say I’m surprised!

A few months ago, Gavin Newsom was publicly affirming support for trans and LGBTQ+ people. Now the language has shifted to being more “culturally normal.” That shift isn’t subtle and we notice it. We are human beings. Stand with the TGI community because you care, not because it looks good.

Kitchen table issues are real in Nevada. Groceries cost more. Bills keep rising. Working families are getting squeezed. I’m running for Congress to fight for lower costs, better wages, and affordable healthcare, because Nevada families should come first. #NV02 #FonkenForNevada

News hosts accidentally call urologist instead of ufologist 😂 An Argentine news channel wanted to discuss UFO leaks but dial… 🔥 More viral clips & AI art: YouTube: https://www.youtube.com/@RuViralEN TikTok: https://www.tiktok.com/@coolvidzcool Instagram: https://www.instagram.com/vidzcool/

🦋🐕: where the fck do I go 💬: between the two on top *between 5012 and 0204* 🦋🐕: I'm kinda....well...you're right. that works 🦋🐕: already becoming my sandwich xD #FeileaVision

No domingo o senador Styvenson Valentim gravou vídeo dizendo que o eleitor só saberia a posição dele sobre o fim da escala 6x1 na hora da votação. Aí veio a revelação que ele assinou a PEC do patrão e uma onda de críticas.

“Would one of you like to explain to me what a Moo-off is?” 🐄 Episode Two of Under the Hood is out now!📲 Listen to Ryana MacDonald-Gay and Kalea Moore as they sit down with Kate Mason to discuss it all, from Moo-offs to card chaos and stampedes! 📣 youtu.be/csrPBy8bbrY 🤎| #UnderTheHood

Post by @governor.ca.gov Newsom’s spox. (I added music) The fauxgressives🥀🍉🧱 love to attack Gavin Newsom by using the words “centrist”, “establishment Dem”, and “corporate Dem” as slurs. They call each other *comrades* & brag about taking over the Dem Party with their own billionaire named Tom.🙄

#football #athlete #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/m3dzyg9b