Today is #EuropeanPatientsRightsDay ✊ For people living with rare diseases, patients’ rights mean timely diagnosis, equitable access to care, and a real voice in decisions that affect their lives. Making this a reality requires coordinated #EU action:https://go.eurordis.org/eurordisblueprint

✨ That’s a wrap on the 15th #EURPRDISAWARDS2026! Tonight in Brussels and online, we celebrated leaders driving change in the rare disease community. Congrats to all our awardees! 🎥 https://go.eurordis.org/BPA2026

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

What happens when there is no diagnosis❓For millions, this is reality. ⏳ 5 years on average to diagnose a rare disease 🔍 44% consult 4+ healthcare professionals On #UndiagnosedDay, we stand with those still searching for answers. 🔗 https://go.eurordis.org/earlydiagnosis

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

🎧 For #EuropeanMentalHealthWeek, we’re highlighting a 10 Minutes With episode on mental health and rare diseases. Exploring isolation, uncertainty & the need for integrated support, it shows why mental wellbeing is essential to care. 🔗 Listen: https://go.eurordis.org/10MWytb

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

Young advocates (12–21) are gathering in #Paris this week for the ERDERA Training at Institut Imagine Learning, sharing, and shaping the future of rare disease #research. 🎥 Hear what they wish others understood about rare diseases in the video below!

Think about just how utterly stupid you have to be to believe Trump’s lies about the 2020 election.

#GymShorts Episode 3 is here & we’re excited to highlight some student voices! Twins George & Anna share their experiences & perspectives, reflecting on moments where expectations & inclusion felt challenging to them. Subscribe to Gym Shorts: bit.ly/GymShortsS1

We say a lot about what we value—but our schedules often say more. This piece explores how time use reveals priorities, hidden trade-offs, and the gap between stated and lived values. questionclass.com/how-does-the... #questionclass #timemanagement #leadership #selfawareness #personaldevelopment

Happy Caturday Evening from adoptable kitty, Pearl! Pearl loves her little timbit toy! She is full of fun loving and playful energy and she also loves to wind down with lots and lots of cuddles. This cutie is 1.5 years old and she is looking to be the one and only animal in her forever home

We love an armadillo. #AGirlandHerGay #Science #Podcast #Curiosity

People calling for the 'globalisation of the Intifada' rarely stop to think about the violent consequences for the Jewish minority, as the first hearings of the Royal Commission on Antisemitism and Social Cohesion in Australia have shown. (Video excerpt […] [Original post on mastodon.social]

Check out this video from our Founder and Executive Chairman, Dan Beckmann, explaining a little bit about why Soapboxx was created and why we think it's particularly valuable for organization's right now. Watch the full video here: stories.soapboxx.com/video/67bc9f...

Good morning all you amazing critters and welcome to a terrific Tuesday, celebrate all that you accomplish.

Ugh, insufferable creep

It's hard to make the ask, but since we don't take any corporate PAC or AIPAC donations, you are the heart of the campaign! Please donate, anything helps. Link in my bio or website, www.kylegauck.com 💙 #politics #progressive #fyp #government #campaign

Wow seriously. Trump does love them loyalist judges huh.

This to shall pass, but nowhere near soon enough. Racist, drunk and stupid is no way to be Secretary of Defense.

A goal for the record books 📚 Sofia Huerta is the first NWSL player to score in their 200th regular-season start! She’s scored in every single season since her rookie year in 2015.

New Jersey Governor Mikie Sherrill: "The Delaney Hall ICE facility shows exactly why we should not have private mass detention in the US."

Texas Atorney General Ken Paxton wins Texas Primary as Republican Senate Nominee #news #politics #texas #election #trump

Markwayne Mullin: "We are currently drawing up plans to say, listen, in these sanctuary cities where the local radical left Democrats aren't allowing us to do our job and enforce federal laws, then we shouldn't be processing international flights into their cities."

Good Programming Practices Aug 2000 Archived Web Page #joot #2000

🎙️TOMORROW: Tune in for the first episode of our new podcast, KFF’s Business of Health with Chip Kahn. KFF’s Drew Altman joins for a conversation about KFF’s vital role in health care policy and the transformative power of AI in health care. Make sure you’re subscribed: https://on.kff.org/podcast

PRIDE Daily’s Bash the Bigots. Today… · Schoolteacher outs trans pupil, isn’t a schoolteacher anymore. · Anti-queer NFL player Harrison Butker is demonstrably a bigoted moron. · A Russian woman’s jailed for wearing rainbow earrings. Pod app · smart speaker · YouTube · pod.link/1712324163

#blacksky #gymsky #fitnesssky #weightliftingsky

The red hats have the best people... if you like lying, thieving, abusing demons. 🫠

Extraordinary sounds from these unusual birds

Michael Beggs Sunrise Currumbin Beach Gold Coast

Trump Snubbed Iran To Have Dinner With Cops

What you're paying for is the editor. Futurist Douglas @rushkoff.com with Journalism 2050 hosts @emilybell.bsky.social and Heather Chaplin. Listen on Apple Podcasts, Spotify, and wherever you get your podcasts. podcasts.apple.com/us/podcast/t...

quote with your favourite villain 🗡️

My best advice for getting started. 💪

WORLDWIDE RESPONSE TO DONALD TRUMP ON THE WORLD STAGE... 🖕🤣🖕🤯 #DonaldTrump #Laughingstock #Twisted #Sick #SAD #Joke #Ha #Ha #Ha

As the 🌍 spirals into yet another energy crisis ⛽, we’re reflecting on the lessons learned at #TTDC26. Our Global Director Rogier van den Berg shares his 🔑 takeaways 👉 bit.ly/4mjB7ON Read more about the benefits of clean energy in the face of fuel shortages ➡️ bit.ly/4ti7yj5

Pregunta incómoda: «¿Podría explicarle al pueblo estadounidense por qué se ataca a Irán para impedir que obtenga armas nucleares si ya se destruyó su programa nuclear el verano pasado?» Ya sabemos por qué al monstruo naranja le molesta que este tipo de periodistas hagan bien su trabajo... 🤣🤬😀👇

Wemby 🥹♥️

PadMay Day 18! ✨

Nova Scotia has updated its EOI system under the NSNP, introducing a 12-month validity period starting May 1, 2026. Candidates must now receive an invitation within one year or submit a new profile to stay in the pool. zurl.co/iAjEz

Ditto It's All Coming Out that Maga Never was a Thing It was Elon this Whole Time He flooded the Country With Hats,Flags & Shirts & Started Paying People to attend Rallies in 2014 He Wore That Black MAGA hat that day as his Son Announced him President & Told Trump he needed to leave ✌️&💙USA

"He said, 'the worst thing we could do to Miranda's memory is to have it destroy our family. She would hate that.'" Danielle Crittenden talks to @monacharen.bsky.social about the powerlessness of grief and the message her son had that helped hold the family together.

🚀 Skillmaker is taking the stage at GSV Cup 50 Demo Day (ASU+GSV)! There’s a lot of opportunity ahead, and we can’t wait to share what we’re building in workforce training. In San Diego? Come join us 👀 🔗 https://asugsvsummit.com/schedule/gsv-cup-50-3 #Skillmaker #ASUGSV #FutureOfWork

hey everyone i am live over on #twitch streaming More Alan Wake 2 lets goo #twitchstreamer #TwitchStreamers #twitchaffiliate #twitchtv #AlanWake2 twitch.tv/slashermedia

Sometimes they play so nicely together.

I’ve added a parlor to my dark fantasy game, Crimson Rest. This new room feels comforting, and you can regain some HP while resting by the fireplace. What other rooms should I add? ➡️ Wishlist 'Crimson Rest' on Steam: store.steampowered.com/app/3993140 #darkfantasy #indiedev #gamedev #psx #godot

Older Australians are dying waiting for care. Labor and the Liberals are selling the care of our parents and grandparents off for private profits and releasing less care than people need each year. In a wealthy country like ours, there’s no excuse for a crisis of aged care.

Bake tender, tangy sourdough cheese scones with our premium starter. Perfectly flaky, packed with cheddar. Get the recipe & your starter on Etsy today! #breadmaking #baking #organic #focaccia #easyrecipe #authentic #boule #fermentation #healthybaking #artisan #sourdoughbread #baker #homemade #natur

I'M ACTUALLY SCREAMING, YOU KNOW HOW LONG I'VE BENE WAITING FOR THIS?!?

RI’s strong heritage of shipbuilding launched a new chapter as partnership between Senesco Marine & Havoc will help grow RI’s economy, contribute to our nat’l defense, & advance RI’s leadership in the Blue Economy.

Mario, Spider Man, The Flash and more make appearances on the streets of Paris celebrating PSG’s back to back UCL win

😂😂

🚨Breaking News Update #EpsteinFiles

Rep. Nikki Budzinski introduced the bipartisan PREDICT Act, legislation that would prohibit senior government officials from participating in insider prediction market trading. "We want to rebuild public trust, I think this is a step forward in that direction."

*Agoraphobia is an anxiety disorder that makes it difficult to leave the house, be in crowds, or be in any place that can be difficult to escape from. 👻🪦 #IndieArtist #DisabledArtist #QueerArtist #SheetGhost #Agoraphobia If you like my work check out my website, RainyDayHauntin.wordpress.com

Dive into the transformative world of breath with our latest Skeletal Leap episode. Laadi Ojas discusses how breathing can awaken Kundalini and clear chakras, leading to a life filled with joy and insight. Don't miss this enlightening journey!

Knoxville/Downtown Area- A crash being cleared on I-40 eastbound at 17th Street 10:17am ET. Get Instant Tennessee Traffic Information Right Now With Commander Chuck's “LIVE” Traffic Video. Saving you Time and Gas Money. commanderchuck.net