Debates, role-plays, and practicing protocols. Day 3 of the EURORDIS Open Academy X @erdera.bsky.social Schools has seen our participants putting their newfound knowledge to the test. 💭 We look forward to concluding both schools with a final session of joint presentations tomorrow morning!

What comes next for rare disease policy in Europe? Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.

🎙️ Missed our latest #10MinutesWith? Now on YouTube 👇 Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy. ▶️ Watch now: https://go.eurordis.org/10MWepisode

The message from #ECRD2026 is clear: the momentum is here. Now it must be turned into action. From the Blueprint to calls for an EU Action Plan, discover the key discussions and takeaways from Europe's largest rare disease conference. 📖 Read more: go.eurordis.org/ecrd2026high...

Better access. Better support. Better outcomes. Key takeaways from this morning's #ECRD2026 parallel sessions 👇

🎧 For #EuropeanMentalHealthWeek, we’re highlighting a 10 Minutes With episode on mental health and rare diseases. Exploring isolation, uncertainty & the need for integrated support, it shows why mental wellbeing is essential to care. 🔗 Listen: https://go.eurordis.org/10MWytb

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

Young advocates (12–21) are gathering in #Paris this week for the ERDERA Training at Institut Imagine Learning, sharing, and shaping the future of rare disease #research. 🎥 Hear what they wish others understood about rare diseases in the video below!

Today is #EuropeanPatientsRightsDay ✊ For people living with rare diseases, patients’ rights mean timely diagnosis, equitable access to care, and a real voice in decisions that affect their lives. Making this a reality requires coordinated #EU action:https://go.eurordis.org/eurordisblueprint

Σαν Ντιέγκο - Επίθεση σε Ισλαμικό κέντρο: Δύο έφηβοι σκότωσαν 3 άτομα πριν αυτοκτονήσουν

Sensory, the voice recognition and wake words pioneering company that has effectively been working for over 30 years to deliver on-device AI, announced a breakthrough in embedded speech recognition with the launch of its latest Speech-to-Text (STT) engine. audioxpress.com/news/sensory...

I had breakfast with a friend at the Waffle House in Miami Gardens. The food and service were great, but I didn't see any chairs flying. And she was giving me the evil eye, so I had to stop recording before I started laughing

TODAY Senate Democrats will force a vote on a War Powers Resolution to assert Congressional authority over Donald Trump’s reckless war in Iran for the FIFTH time Will Senate Republicans finally step and exercise their constitutional responsibility? Via @warren.senate.gov

441: The Son of Neptune - Rick Riordan (2011) Intro Series: Heroes of Olympus - 2 Rating: 4.41 ⭐️ Watch summary (6 min) in the profile Genre: Adventure, Fantasy, Fiction, Greek Mythology, Mythology, Urban Fantasy, Young Adult 📚 Love books? ❤️ Like, ➕ Follow, ✈️ Share

With the 2026 elections underway, The Post's Anna Liss-Roy is grilling candidates in races across the country. Abdul El-Sayed, who is competing in a three-way Democratic primary for an open U.S. Senate seat in Michigan, answered rapid-fire questions on raising taxes and more.

As announced today: Pop Off is coming back. But to bring her back I need contestants like you! If you wanna be part of an episode of Pop Off, please fill out the form below. And if you wanna be part of the return episode in March let me know on the form as well! 🩵 forms.gle/tCPAHmxYCBD2...

Trump: “When we go in church, and I drink my little wine....and have my little cracker, I guess that’s a form of asking for forgiveness.” This idiot expects us to believe he goes to church.

Only Putin, of all the MAGA parasites, sees the Felon for who he really is!

Some secrets should never survive centuries. www.amazon.com/dp/B0GZKYGG1 #gothicquotes #darkfiction #vampirethriller #bookquote #gothicbookstagram #darkromanceaesthetic #supernaturalfiction #horrorreads #bookishdarkness #gothicworld

Київ під масованою атакою балістики, у столиці лунають потужні вибухи. В акваторію Чорного моря виведені 2 ракетоносії загальним залпом 16 "Калібрів".

We at Dangerous Adrenaline Wrestling Gladiators want to make this important announcement... DAWG will NOT be in Vegas for Mania week.. Most likely we will still be in Jersey unless I hit the lottery.. #wrestling #dawg #vegas #mania #prowrestling

#AEWRevolution 2026 - The Hangman got hanged | #mjf #HangmanAdamPage #aew #vhs

#news from the #UnitedStates and around the #world. #politics

Proud to stand with candidates like Abel Chavez and Joz Sida as we take on corporate power and fight for a California that puts working people first. #abolishice #affordablehousing #calcare #freepalesti̇ne

-Raphinha -Cubarsí -Lamine Yamal -Joan Garcia -Eric García -Pedri Barca's six players in the LALIGA Team of the Season 🥶

The presidential vote was rigged in 24. Elmo and kid admitted it to Carlson. Trump admitted it before the election. And 3 times after he bragged about it being rigged 2 in these clips. They confess to thier crimes. Hand counts only, because they rigged tabulation software. It's been confessed to.

Sang

Pool Cleaning Incident Ruby Rose: aqualungs50.com/x-new/new-se... Buy this video or Subscribe for access to Everything! Your choice! Powered by @XSiteAbility.com

+ do everything they can to dismantle the main opposition! The judiciary is of course important, but is it really possible to replace a person who came to power through democratic elections via judicial tricks?

Nur 13% der Befragten sagen, Friedrich Merz sei "hilfreich" für das Abschneiden der CDU bei der Wahl in Baden-Württemberg gewesen. Unter CDU-Anhänger sagen das auch nur 24%. Was für eine Ohrfeige für den Kanzler.

🔥🔥🔥… Original post

Four crew members ejected safely after two Navy jets collided and crashed on Sunday during an air show at the Mountain Home Air Force Base in western Idaho, according to officials. Story | https://www.kwch.com/2026/05/17/two-navy-jets-crash-during-air-show-idaho-organizer-says/ 

This is my favorite thing 🫂#MikeyTheDeathDoula #DeathEducation #EndOfLifeCare #DeathDoula

Part 4 of a 5-part exclusive interview series we recently did with the owners of Eagle Cathedral City 🦅 They are happy to answer any questions you may have… #EagleCathedralCity #GayPalmSprings #BarracksBarLegacy #LeatherBars #ThePalmSpringsGuys

🚨🚨HOLY SHIT‼️Everything this woman says is spot on. This lady has more spine than most of our elected leaders. If you watch one thing today let it be this. Brava and please keep speaking truth to power.💥🔥💥

Big Vik enjoying the moment. You love to see it. 😊

Folk music isn’t supposed to be safe. It’s supposed to be honest. If you’re new here, I post original folk, blues, and folk punk songs every week. Subscribe and stick around. #folkpunk #protestsong #acousticpunk #darkfolk #outlawfolk #diyartist

60 years of building one of the most recognizable products in the world right here in Maryland 🥤

Yeah pretty much. The screaming army at the end isn’t me but like could be..yk?

💥 SELF-OWN #2: House leader Steven Mackinnon steps in it AGAIN, asking opposition leader Pierre Poilievre to spot the Liberals inflationary spending. 👇 Too easy... ✅ $90B for the Alto project ✅ $1B for a gun grab that won't impact crime ✅ $20B for consultants ✅ the list goes on and on... #cdnpoli

We were at the @sascampaigns.bsky.social 🌊🏄🏄‍♀️ 🏊 Paddle Out Protest at Longsands in May & promised to put people’s concerns about 💩 outfall discharges into The Tyne to Alan our MP . So here’s the changes that are happening to force the 💧 Companies to clean up their act

Fascist provocateur Young Bob causes trouble with police. 21st of March 2026

That moment your content starts earning for you. Join the Legis Affiliate Program They save $15 You earn $20 Their license lasts forever. Win–win.

it’s time to pick my next 5 reads. in this house, we judge books by their covers. books: 👽 cursed bunny by bora chung 👽 open wide by jessica gross 👽 mister magic by kiersten white 👽 lagoon by nnedi okorafor 👽 of cattle and men by ana paula maia #books #tbr #BookTok #HorrorBooks #LitFic

Passamos de um terço da campanha, mas ainda precisamos de vocês! Venha ver! www.catarse.me/naturezasint... #RodrigoOrtizVinholo #NaturezaSintéticaUmDocumentário #EditoraCyberus #livros #ficcaocientifica

Momentum is rolling for Will Ospreay! After advancing to the semifinals of the Owen Hart Foundation Tournament, Ospreay is riding high, but Kenny Omega had a warning about his connection with the Death Riders! Watch #AEWDynamite LIVE on TBS + HBO Max

🌍This #EarthDay, learn how reproductive choice supports people to adapt to the #ClimateCrisis. “Resources are scarce now because of climate change. If women can’t choose when to become pregnant, their lives and those of their children become difficult.” - Binetou, Senegal https://ow.ly/WgJl50YNQYf

I locked in hard here, did I do good or bad?

✨Disney Coffee Logo MagicBand skins personalize your band on your next trip! Apply it like a sticker and peel it off when you’re done! Get yours at 💫 TheMousierge.Etsy.com 💫 or 🛒 TheMousierge.shop 🛒 🛍Join our club & SAVE 15% - bit.ly/MousiergeWeekly

I miss witchhouse

⠀⠀ ⠀⠀ you will have to learn how to with me. ⠀⠀

This was a goated team Kept protecting me to the very end Forsaken keeps being mid! Om glaze never stops!

A fox video with some behind the scenes action. #fox #wildlife #iphone

Why is it important to be on Capitol Hill for #AILANDA25? AILA members Katie Lewis and Kelli Fennell discuss what it means to be advocating for lawmakers to advance bipartisan solutions that address the needs of our communities.

"US President - Epstein File ! no comment"

🟠 METEO OGGI Previsti forti temporali, piogge battenti e un calo delle temperature su tutte le regioni settentrionali. Al Centro il tempo sarà più soleggiato, ma con rovesci durante il pomeriggio. Al Sud si registreranno condizioni più asciutte.

El Hierro refuerza la prevención de incendios ante un verano con más vegetación y riesgo en el monte.

Part of the reason I decided to give The Boys another chance is how thoroughly TikTok has dedicated itself over the years to showing me this show in thirty second clips. The Deep is putting in Frank Burns on M.A.S.H. level work being the meathead.

Conspiracy 101, in its first season, features Bigfoot: Where the Evidence Begins an intriguing exploration into one of the world's most enduring mysteries. From eyewitness accounts and unexplained footprints to famous photographs, alleged audio recordings. podcasts.apple.com/ca/podcast/c...