#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

Debates, role-plays, and practicing protocols. Day 3 of the EURORDIS Open Academy X @erdera.bsky.social Schools has seen our participants putting their newfound knowledge to the test. 💭 We look forward to concluding both schools with a final session of joint presentations tomorrow morning!

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

The message from #ECRD2026 is clear: the momentum is here. Now it must be turned into action. From the Blueprint to calls for an EU Action Plan, discover the key discussions and takeaways from Europe's largest rare disease conference. 📖 Read more: go.eurordis.org/ecrd2026high...

🎙️ Missed our latest #10MinutesWith? Now on YouTube 👇 Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy. ▶️ Watch now: https://go.eurordis.org/10MWepisode

Better access. Better support. Better outcomes. Key takeaways from this morning's #ECRD2026 parallel sessions 👇

Our 6 FINALISTS are here… but who will win? 👀 🗳️ Voting for the #EURORDIS Photo Award 2026 is officially OPEN! 🔗 Vote now & help us crown the winners on 24 Feb 2026: https://www.eurordis.org/black-pearl-awards/photo-award/EURORDIS

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

What comes next for rare disease policy in Europe? Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.

Young advocates (12–21) are gathering in #Paris this week for the ERDERA Training at Institut Imagine Learning, sharing, and shaping the future of rare disease #research. 🎥 Hear what they wish others understood about rare diseases in the video below!

@ KevinHincksCS : "The federal government is down 348,000 jobs. That's an 11.5% cut in the federal workforce. Despite that, jobs are gaining. It's ALL PRIVATE SECTOR. It's quite amazing, actually." The federal government is the smallest it's been since 1966. TRUMP EFFECT! 🔥 ht RapidResponse47

faceless has one mission: to save lives and reduce suffering. faceless isn’t just a web app. It’s the engine we need to transform public health turning global vulnerability into global preparedness. 🌍 Join the movement. Be part of the solution. 👉 Visit myfaceless.com and create your profile today!

RM @pallone.house.gov reminds Republicans that their own constituents are about to pay more for health care every month, thanks to their votes. And they still don't care.

Pualani 🌺 knows what Caturday is for #givemeshelter #sfcats #givemesheltersf #gms #caturday

No money for healthcare but give Kid Rock a fly by??

The overpass activists trek to the Route 4 overpass in NJ every week as part of the ‘rush-hour resistance’. Within hours of an ICE agent killing Renee Good ＆ a 2nd ICE shooting in Minneapolis, they were already mobilizing. We must stand up — not escalate. #ChoosePeaceNotChaos

FACT: Migrants provide a net economic benefit to the UK. 📺 @rachaelhenry.bsky.social on TalkTV 👇

It's a sad thing, seeing the current E-RDE led by Sagami. People were counting on them to protect humanity from the threat of the Kaiju in the wake of the disaster. Now we find out they're a bunch of psychotic glory hogs, going as far to attack other survivors for resources. #SnowballEarth

You can’t take everything with you into the next version of your life. This is the part where you choose what stays. #awakening #mindsetshift #selfgrowth #healingjourney #presence

For #RyanPorter From #MilesMosley

You can’t import another country’s vaccine policy without first importing their actual healthcare system. Our vaccine recommendations fill structural gaps in our healthcare system, which is widely regarded as fragmented, inaccessible to many, and riven with inequalities.

Errol Musk (Producer of the Ketamine-powered AI known as Elon) defends racial wealth inequality in South Africa and doubles down on comparing Stephen Yaxley-Lennon Tommy Robinson to Nelson Mandela.

Speaking with “Mornings On 1,” MTA Chair and CEO Janno Lieber said Long Island Rail Road service could resume as soon as a day after a deal is reached to end the ongoing strike.

Men fighting men. Emotional immaturity. Man childs. #podcast #sisters #random #randomthings #life #journey #healing #wisdom

NEWS: There's been a significant decrease in knife crime in Kent, but we're being urged to keep talking about the issue. Police are visiting schools and doing test purchases in shops as part of continued efforts to reduce offences #kmfmnews

Healing your anger doesn't mean never feeling it. It means knowing what to do when you do. Watch the first 30 seconds of your next angry moment. Did you pause or react? That window is where change happens. Peer support, not therapy. Call 988 in crisis. #angermanagement #peersupport

Nazi’s.

Good morning, Brenda and all #BreakfastCrew Resisters! Happy Taco Tuesday!

“Bring Me To Life” like New Orleans Jazz (or Main Street USA) is like a peppy morning wake up call? #

ABS confirmed in #Diamondbacks at #Giants (Top 9). San Francisco Giants challenged the ball call on JT Brubaker's pitch to Ryan Waldschmidt. Ball confirmed. HP: James Hoye | Upheld 55.0% (33/60). Later: Ryan Waldschmidt lines out to center fielder Harrison Bader.

Trump, ever the grifter, doesn't think he has to pay back the $166 Billion he owes on tariff refunds. "In theory, you have to pay the tariffs back. We'll fight that. But in theory, you have to pay them back." Hey, Trump, how about 'in theory' we stop paying all of our bills, too?!

Ultimate English Grammar Challenge! Test your English grammar with fun quiz questions and see how many you can get right. 🗣️ Weekly English Speaking Class: 👉 englishmasteryhub.com/courses/week... #LearnEnglish #EnglishGrammar #EnglishQuiz #SpeakEnglish #ImproveYourEnglish

HOW ON EARTH DID THIS STAY OUT? It somehow stays 1-0 despite Yeremy Pino's free kick hitting both uprights 🤯

If you’re antifascist the government considers you a terrorist now

He visto un lindo gatito

🇺🇸 A house in Pennsylvania was torn apart by an excavator, allegedly operated by the homeowner himself, after his marriage was declared over by his wife.

Get ready for a night of music, laughter, friendly competition, and unforgettable memories at CMA’s 3rd Annual Music Bingo Night! 🎶 We can’t wait to see everyone there for another incredible night of fun and community!

I'm from the DMV and primarily lived in Texas, USA 😎

let's get glitchy together they said

CryptidBoyz - Yo Mama Jokes #jokes #cryptidboyz

Oil depot in #Matveyev_Kurga ... 🛩️💥🔥

#MeanwhileInCanada #Vancouver 🤣🍁🇨🇦 Credit to 604now

Snippet of Autumn Sunglasses, Robyn Hitchcock, The Chapel, San Francisco, May 14, 2026… @robynhitchcockofficial @thechapelsf #robynhitchcock

I recently discovered this amazing game that taken influence from Bornean mythology from Indonesia. From the looks of it, the game is an open world action adventure game from OZYGAMES titled Buramato. if you love Breath of The Wild, check this game out on Steam. #indie #indiegame

Your much needed Afternoon #TimelineCleanser ... I mean, 1 is cute, but a truckload is even more so ...

I’ve added Dark Knights to my dark fantasy game, Crimson Rest. These new enemies are powerful soldiers of Count Dracula and would give their lives to protect their lord. ➡️ Wishlist 'Crimson Rest' on Steam: store.steampowered.com/app/3993140 #darkfantasy #indiedev #gamedev #psx #godot

AMERICAN PRIDE🇺🇸 is back! We need to spread it! We have so much to be grateful for. It could be so much worse. Our Country could be being run by a Democrat. Just imagine if Kamala Harris was placed in. @WietingForAZ on X. #usa #america #pride #breakingnews #breaking #politics #williamwieting

New plan for starting pistols.

Patrice's Review of "Sekoia Shifters" by Karen L West Four young children are hiding in the Redwoods. Cree is searching, but so are the ones who killed their parents. Who will find them first? Find on Amazon, Goodreads, booksbyklw and Books.by .

Of course I work for the Kremlin! Who else would I be working with, the CIA?

Kann man damit auch Nougat Bits essen?👍🙏

Ich hab den besten chef 🙌

Treat yourself! Make it a Podcast Friday with the Women Road Warriors empowerment talk show podcast wherever you listen to podcasts or @ www.womenroadwarriors.com #CasualFriday #PodcastFriday #Podcast #Women

Happy Pride Month, California! 🏳️‍🌈🏳️‍⚧️ To our LGBTQ+ community, always take pride in who you are, and remember, help is available. Call, text or chat 988 at any time for crisis support. For non-crisis peer & family support, go to calhope.org. You are not alone.

#trump #whitehouse #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/bpgc86xb

Lego Batman is a love letter to all the movies.

Power, Peril, Purpose ➜ A Bundibugyo Ebola outbreak has crossed into Kampala; South Africa has formed a 31-member impeachment committee; Australia has flown home seven women and 12 children from al-Roj; Scottish angels have投

F*ck ai.

#football #athlete #explore #fyp #BreakingNewsUSA Full story: https://jqjo.com/article/na2eh0sq

#OnThisDay in 2006, Kim and Janelle renewed their vows, but were interrupted by the police, and Kim went on the run #Neighbours #BringBackNeighbours