Back
navigate with arrow keys

EURORDIS-Rare Diseases Europe

@eurordis

Our 6 FINALISTS are here… but who will win? 👀 🗳️ Voting for the #EURORDIS Photo Award 2026 is officially OPEN! 🔗 Vote now & help us crown the winners on 24 Feb 2026: https://www.eurordis.org/black-pearl-awards/photo-award/EURORDIS

0

Likes

0

Reposts

0

Replies

More from EURORDIS-Rare Diseases Europe

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

2 0
EURORDIS-Rare Diseases Europe

Today is #EuropeanPatientsRightsDay ✊ For people living with rare diseases, patients’ rights mean timely diagnosis, equitable access to care, and a real voice in decisions that affect their lives. Making this a reality requires coordinated #EU action:https://go.eurordis.org/eurordisblueprint

3 0
EURORDIS-Rare Diseases Europe

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

3 1
EURORDIS-Rare Diseases Europe

The message from #ECRD2026 is clear: the momentum is here. Now it must be turned into action. From the Blueprint to calls for an EU Action Plan, discover the key discussions and takeaways from Europe's largest rare disease conference. 📖 Read more: go.eurordis.org/ecrd2026high...

1 0
EURORDIS-Rare Diseases Europe

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

0 0
EURORDIS-Rare Diseases Europe

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

1 1
EURORDIS-Rare Diseases Europe

Young advocates (12–21) are gathering in #Paris this week for the ERDERA Training at Institut Imagine Learning, sharing, and shaping the future of rare disease #research. 🎥 Hear what they wish others understood about rare diseases in the video below!

2 1
EURORDIS-Rare Diseases Europe

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

3 2
EURORDIS-Rare Diseases Europe

As #RareDiseaseDay approaches, Shum, a young advocate shares what More Than You Can Imagine means to him: Harmony. 🎶 Living with a rare disease, he sees the community like music - every person is a voice. And only together can we create true harmony. 🎥 Watch his story

2 0
EURORDIS-Rare Diseases Europe

Debates, role-plays, and practicing protocols. Day 3 of the EURORDIS Open Academy X @erdera.bsky.social Schools has seen our participants putting their newfound knowledge to the test. 💭 We look forward to concluding both schools with a final session of joint presentations tomorrow morning!

2 0
EURORDIS-Rare Diseases Europe

#theaudiovoice 558: sensiBel now in the Market! After 15 years of delivering ever-better generations of ambisonics systems, mh acoustics now offers the em64d, a sixth-order system with 64 optical MEMS microphones from sensiBel. And #AlltheAudioNewsthatMatter x4gwm.mjt.lu/nl3/vzCoA_pK...

9 0
audioXpress

The plan to destroy the West involves mass immigration, intentionally destabilizing society. This is all part of a calculated exposure. # #MassImmigration Join Charlie Ward & Drew Demi on The Charlie Ward Insiders Club every Wednesday at 6pm & Saturday at 3pm GMT 👉 www.charlieward.com

0 0
Official Charlie Ward Show

EuroLeague Final Four Preview: Olympiacos vs Fenerbahce #euroleague #nba #nbaeurope #basketball #basket

0 0
Will Moxon

Typical Monday. #meme #ancientmeme #oldtimeyweb #humor #humour #heman #4nonblondes

1 2
Mark A. Rayner

The East Wing. The Kennedy Center. A massive gilded arch. Over and over, Trump is reshaping our nation’s capital in his own, tacky image—with no transparency, no consultation, and no respect for Congress’s role.

40 16
Congresswoman Chellie Pingree

Politics shouldn’t be this complicated. You should be able to see everything clearly.

0 0
Future is Now Coalition (FiNC)

Billions of dollars, no disclosure—and now they can tell who their congregants to vote for. @thelisagraves.bsky.social on the new IRS rules that allow churches to endorse political candidates: www.youtube.com/watch?v=EqdZ...

13 3
Court Accountability Action

How do you design effective #schoolbasedinterventions in low-resource, conflict-affected settings? @drjanegilmour.bsky.social, @umartoseeb.bsky.social & Prof Jean Francois Trani explore a psychosocial programme delivered in rural Afghan schools during political upheaval. https://bit.ly/4eNKB35

1 1
ACAMH - Association for Child and Adolescent Mental Health

It’s #EarthDay2026 – the perfect day to look at qualifications that help us protect the environment. They include: 🌍VCSE in Nature Restoration 🌍 Foundation Qualification in Nature Restoration 🌍Skills Suite qualifications in Sustainability in Action and Sustainable Economic Development 1/2

0 0
Cymwysterau Cymru/Qualifications Wales

Spurs center Victor Wembanyama, on advancing to the Western Conference finals in dominant fashion: “It’s great. Shows that we already gained a little bit of experience from our short playoff time. I felt like we put ourselves in the best positions, simple as that.”

4 0
Spurs Nation

Black Fact = 1811 (Feb. 24) - Daniel Alexander Payne, educator and pastor in the AME Church, was born on this date in 1811. Payne helped the church start schools such as Wilberforce University (1856), the oldest black private liberal arts university. He served as its first president. #theraydiotwins

0 0
RaydioTwins

📊 2026-05-23 • Artemis II: IFT-12 RETRY TONIGHT: Starship V3 Scrubbed at T-40s May 21 (Hydraulic Pin) — Window 6:30 PM EDT; Artemis II Crew Day 42 • SpaceX: IFT-12 Block 3 Second Attempt Tonight at 22:30 UTC After May 21 Scrub — Hydraulic Pin Issue Resolved; OLP-2 Inaugural & Fi… 🔗 watchboard.dev

0 0
watchboard

Current generations will never fully grasp or understand how the entire 🌎 caught Michael Jackson fever for a decade basically. It'll never be replicated. You had to be there. But #Michael does good of capturing it as best as possible. It's now the highest grossing biopic in NA history. #BlueSky

2 0
GC4

We Didn’t Come as the Fire?

1 0
jimlapbap

Had a really fun conversation with Jaron "Boots" Ennis, who peeped that I was Puerto Rican before we sat down 😅 We discussed: 🗽 His June 27 fight vs. Xander Zayas 🤔 Who needs this more 🤝🏼 His friendship with Tyrese Maxey And more❗️ WATCH: tinyurl.com/4wn6t93u

0 1
Bryan Fonseca 🇵🇷

warum scheitern so viele Crypto Projekte ? #futurevibes ist gebaut für Nachhaltigkeit nicht für das schnelle Geld

0 0
FutureVibes

New US violations met with Iranian strike on Kuwait airbase A new series of direct military confrontations erupted between the US and Iran near Strait of Hormuz on 28 May after US Central Command said it carried out so-called “self-defense” strikes near the Iranian port city of Bandar Abbas.

0 0
Sovereign pup of RK9

#PokemonLegendsZA AAAAAAAAAAAAAAAA-

0 0
Geno Vidori, the Fae-touched

Actual footage of #PaulaWhite praying for Trump’s “friends”

58 9
Lisandra Vazquez

Pete Buttigeg just EMBARRASSED Joe Kernen on national TV.

246 49
VoteVets

Today I’ll be introducing a war powers resolution to give Congress another chance to end this reckless war of choice in Iran.

107 28
Representative Becca Balint

Moose had possession but the Griffins ability and willingness to block shots comes up big. They stop the Brad Lambert shot and put it into the empty net to take a 4-2 lead.

2 0
Dave Minuk

Lazuli Bunting. Nice to see them again. #Birds #Birding #Arizona

5 1
edienae

I-15 NB @ Cedar City / MP 54.1, RN 🕒 3:44 AM - 4:22 AM MT 🌡️ 49°F | Clear 📍: 37.627170,-113.122250

0 0
Utah Traffic Cameras

Main St / US-40 @ 900 N / MP 16.2, HBR 🕒 1:14 AM - 2:14 AM MT 🌡️ 55→55°F | Mostly Clear→Partly Cloudy 📍: 40.518367,-111.411544

0 0
Utah Traffic Cameras

Summer heat is melting your focus, but you can still snag those moments. Make broadcast-quality video in 60 seconds with Sleepy Motion and keep cool while capturing the chaos. #easyvideos #viral #SleepyMotion

0 0
Sleepy Motion

Non racist white people far out number the racist white people. They Love Beyond Color. Lovebeyondcolorllc.com #lovebeyondcolor #equalityforall #endracism #unity #fyp

0 0
Love Beyond Color

🚨🇮🇷 A new missile-armed fast attack boat, the "27 Rajab," has been unveiled by Iran's IRGC in Tehran's Revolution Square.

0 0
ownfeed

The Ballad for Erika is beyond hilarious, it is genius social commentary masquerading as a Top10 diss track 🔥👊🏻

1,119 274
NotQuietMode_M.D.

Finally, a completely non-controversial television sponsor we can all agree on! Leave it to Tenna to get everyone on the same side. It's a new episode of #Deltarune! #streamersupport #youtube @gamingnews-rt.bsky.social @tobyfox.undertale.com @undertale.com #Undertale #silly buff.ly/FbPzyI2

1 1
THE RETURN OF THE FADENS (youtube.com/spongejay1)

Nominiert für den Deutschen Sachbuchpreis 2025: Martina Heßler – Sisyphos im Maschinenraum. Eine Geschichte der Fehlbarkeit von Mensch und Technologie (C.H. Beck) #DSP25

4 0
Deutscher Sachbuchpreis

Ah yes! I see the WORMS are already setting their DINNER TABLE in anticipation.. How quaint!

0 0
DanSkinnerArt

Beige computers, glossy office ads, golden ties, and the remains of an ironic business rebrand. Shader Development Studio takes us inside the making of Shader.se, a scroll-driven 3D experience shaped by corporate satire, 80s business tech & seamless scene transitions: tympanus.net/codrops/2026...

21 1
codrops

Babieeees

112 23
Jonathan Slater

“I’m not a racist but…” 🙄 #BadBunny #SuperBowl #Racist #FolkMusic #OriginalSong #protest #ICE #SocialCommentary #FactCheck

1 1
Curtis Lovejoy

Please join me in this conversation on tiktok and this platform

1 1
Adrian Breaks It Down

The January lamb “oppsy daisy” gets turned out as it’s not a wet day (for the moment). Also known as Cinda-fecken-rella by the farm sitter while I was away

25 3
Suzanna

Good Tuesday $daCAT Community! Are you looking for a sign? 😼

2 0
daCAT

I’ve added a special Moon Room to my dark fantasy game, Crimson Rest. It can be accessed through Moon Doors that appear randomly throughout the castle. What do you think? ➡️ Wishlist 'Crimson Rest' on Steam: store.steampowered.com/app/3993140 #darkfantasy #indiedev #gamedev #psx #godot

20 4
Red Llama

In the next episode of The Current Podcast, TXST President Kelly Damphousse talks with artist and activist Matthew Mazzotta about the intersection of public art and activism, and the importance of public art on university campuses. 🎧 Apple: ow.ly/s18R50WnNJz 🎧 Spotify: ow.ly/mhjF50WnNJy

2 0
Texas State University

...ah, shit...

1 0
Hookalakah Meshobbab

Hey MAGA, you still pay taxes, right? And tariffs, high prices at the pump, grocery story, so on?

2 0
Charles Ulysses Farleigh III, Esq.

[20260602] X 수민이와 쉼 없이 🛏 더 달려 🏃‍♂️💦 https://www.tiktok.com/@triplescosmos/video/7646732825969872146?is_from_webapp=1&sender_device=pc #tripleS #트리플에스 #SooMin #수민 #Baby_Flower

1 0
tripleS K+

Ottawa's QB Room 👀👀 Jake Maier and Bryson Barnes were putting on a show in preseason Week 2.

0 0
Canadian Football League

Donetsk Oblast — 35 km from the front line. Traffic on the occupied Horlivka highway was suspended after a Russian military logistics transport vehicle was struck by a Ukrainian medium-range kamikaze drone.

46 4
OSINTRadar

Creo que a este pavo todavía le falta un poco más de tiempo en el horno. El de Pedro Sánchez ya está listo, ¡pero este necesita más paciencia!

0 0
Amanda 🦋

The Integrity Foundation’s Build Day in Utah brought together hundreds of volunteers to transform a 40-year-old park into a safe, modern and accessible space for families! Learn more: bit.ly/4einD3a #Announcement #Integrity #IntegrityFoundation #ForTheGoodDaysAhead #PuttingPeopleFirst

0 0
Integrity

Senador Iván Flores La verdad es que la actitud del ministro Quiroz ha sido desafiante e irrespetuosa y con eso no gana nada. Imponer desde una supuesta superioridad no contribuye.

1 1
Rolando Suke G