From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

#ECRD2026 opened this morning in Prague with a clear message: Europe has the knowledge, the momentum and the community needed to act. Now it needs coordination, political will and implementation. 👉 Stay tuned and join us online: https://go.eurordis.org/register-in

What comes next for rare disease policy in Europe? Today, ahead of #ECRD2026, the rare disease community came together in Prague to advance the European Blueprint for Rare Diseases and help define the priority actions needed by and for over 30 million Europeans.

#Europe is entering a new chapter in rare disease policy. Through the #EuropeanRegionalTaskForce, we aim to ensure the rare disease community has a clear and striking voice in shaping the European Blueprint for Rare Diseases. ⏳ Apply by 26 Feb: https://go.eurordis.org/regional-task-force

Debates, role-plays, and practicing protocols. Day 3 of the EURORDIS Open Academy X @erdera.bsky.social Schools has seen our participants putting their newfound knowledge to the test. 💭 We look forward to concluding both schools with a final session of joint presentations tomorrow morning!

For Kostiantyn, #RareDiseaseDay’s message More Than You Can Imagine means more access. Living with a rare disease in Ukraine meant navigating not only his condition, but barriers to treatment and support. 🎥 Watch his story!

🚨The results are coming soon. And they tell an urgent story! 10,700+ people shared how rare & undiagnosed conditions impact mental health and wellbeing. Join us on 18 June as we unveil the latest #RareBarometer findings and discuss what must change. 👉 https://go.eurordis.org/RBresults

✨ That’s a wrap on the 15th #EURPRDISAWARDS2026! Tonight in Brussels and online, we celebrated leaders driving change in the rare disease community. Congrats to all our awardees! 🎥 https://go.eurordis.org/BPA2026

🚀 Today marked the kick-off of the European Regional Task Force on Rare Diseases! This group will help shape a European Blueprint & contribute to the Global Action Plan. Learn more 👉 https://go.eurordis.org/regional-task-force

Young advocates (12–21) are gathering in #Paris this week for the ERDERA Training at Institut Imagine Learning, sharing, and shaping the future of rare disease #research. 🎥 Hear what they wish others understood about rare diseases in the video below!

Aaron Parnas @aaronparnas.bsky.social Four Republicans flip and for the first time, Senate votes to move War Powers resolution to stop Trump’s war forward. The four Republicans are Susan Collins, Lisa Murkowski, Rand Paul, and Bill Cassidy.

This era Does🚫Enjoy ellipses... Suddendly∵People gave Britney an issue when writing Her📖 #Abt💬THEellipsesUse. #Using💬Perfusly'll🚫VindicateBritney @Times it's feels nice to try vindicating heroes. ∴Greatful The courts adhered to #Moral&ConstitutionalCode&FreedBrotneyFromTheSpears Leeches💬 ❤️‍🔥✡️🗽🦁✝️☪️🧲

A strong student-teacher relationship is key. When students feel safe, valued, and comfortable, learning thrives. Show genuine interest in their needs and what they find fun. Be yourself, build connections first, then focus on lessons. #TeacherTips #ClassroomManagement #StudentEngagement #Education…

特朗普在启程前往中国、回答记者提问时表示，在与伊朗谈判时，他不会考虑美国人的经济状况，“一点也不会”。 特朗普表示：“当我谈论伊朗时，唯一重要的事情，就是他们不能拥有核武器。我不会考虑美国人的经济状况，我谁都不会考虑。”（CBS）

Disclaimer... this isn't MrS! Unfortunately 😂 I had fun with another hogsack guy. He wanted to try my belt on with screw spikes & plastic spikes disk! I forgot to mention that the deep heat was a compulsory add-on! 🙄 I really don't know what's all the heavy breathing is about! 🤭

I had a great discussion of politics and my campaign on the amazingly named CONTRABAND WAGON podcast. Check out their pod on substack: willfullwood.substack.com/p/conversati...

Last night in Belgrade, Russo-Serbian GONGO organizations held a protest using the symbol of the student movement and the regime — the “No Surrender of Kosovo” flag. 🇷🇺/🇷🇸 GONGO structures + student protest symbolism + “not the time for EU flags” = a political field tailored for Aleksandar Vučić. 👇

US AI Policy Framework, Midterm Campaign Strategies, and Immigration Court Developments #politics #government #elections #policy #politicalnews #democracy

The corruption from the Trump Administration is sick. He’s negotiating against himself right now for $10 billion settlement. And it doesn’t stop there. They are out for themselves and the Trump family — not the American people. And the cuts from HR 1 prove it!

The overpass activists trek to the Route 4 overpass in NJ every week as part of the ‘rush-hour resistance’. Within hours of an ICE agent killing Renee Good ＆ a 2nd ICE shooting in Minneapolis, they were already mobilizing. We must stand up — not escalate. #ChoosePeaceNotChaos

FACT: Migrants provide a net economic benefit to the UK. 📺 @rachaelhenry.bsky.social on TalkTV 👇

Day 52 Post #TotalKneeReplacement Surgery Morning PT Exercises. Injury Depression is a real thing…combined with always feeling exhausted because my body is always trying to heal from a major surgery; has my wiped out most days.

Speaker Emerita Pelosi: Trump took $500 billion out of Medicare and $1 trillion out of Medicaid, took many off SNAP and the Republicans just stood up and cheered. All of that to give a tax but to the richest people in America.

Tyla Opens Up About Her Unforgettable Met Gala Moment With Rihanna 👀✨

female northern yellow warbler (?) bathing in fountain #Birds

Aston Villa Then 📉 🎠 4 Mangers in 1 Season 💨 Easy Away Day 😟 Relegation Aston Villa Now 📈 🐐 Unai Emery 🏰 Fortress Villa Park ✈️ European Football #AVFC

Trump, ever the grifter, doesn't think he has to pay back the $166 Billion he owes on tariff refunds. "In theory, you have to pay the tariffs back. We'll fight that. But in theory, you have to pay them back." Hey, Trump, how about 'in theory' we stop paying all of our bills, too?!

A Neofeudal galactic empire in retreat squeezes its vassals, will Canada IV break free? - Find out in Neofeud 2, my sci-fi #adventuregame coming soon! store.steampowered.com/app/4611140/... #indiedev #visualnovel #scifiart #art #artist #steam #retrogame #indiegame #scifi #NoAI

outMusic Nov 1998 Archived Web Page 🧩 🔊 #boutcider #1998

#greenscreen #greenscreenvideo This video is my opinion 🤓 #maga #trump #health

Netanyahu: Striking Lebanon hard, struggle has no end unless you surren For daily global news videos, please visit Ranked.News/videos

We have cell phone service and free WiFi. 📶 But if you need to get away and disconnect, there are loads of off-road trails nearby. That’s the beauty of our location: we’re close to the city and nature. Best of both worlds! #offroad #rapidcity #southdakota #blackhills #utv

This one’s for the Real Life Fake Wizard — fighting fake magic, broken stories, and Hollywood smoke with a bluesy grin.
New song: “Real Life Fake Wizard” 🔥
Who’s riding with the wizard?
#Storytelling #Culture #BluesRock #OriginalSong

Ohmygod

Butter is an emulsion of water, butterfat, and milk solids. That’s why I use a technique inspired by chocolate making to bring separated cannabutter back into a smooth, creamy emulsion. More edible science, dosing math, and lab-tested recipes here: amzn.to/3GNxik1

With all those empty bleachers, I thought it was the Vanilla Ice Not-Dead-Just-Melted return tour. No. It’s the launch of Turning Point’s campus tour, starring Lay-Z-Boy Vance and everyone’s favourite widow, Erika Kirk. With that “crowd,” looks like they may have reached their turning point.

Don't miss your chance to take action for nature! 🦋🐦🌿🦔🐳 Take 30 seconds to email your MSPs today 🔗 👇 scotlink.eaction.online/targets #nature #ScotlandLovesNature #NaturalEnvironmentBill #ActNow

Giannis Antetokounmpo joins the Champions League postgame, talks about the weight of carryong a team on your shoulders in a response to a Thrry question

Good Night Beetle and sure will

After being found liable for sexually abusing E Jean Carroll and later found liable for defaming her…. fast forward to today’s and most abusive DOJ in American History, he asked them to investigate who paid for her defense legal bills…. What a mother fucking fascist dictator this man is

Sichert euch jetzt Tickets für das größte Wärmepumpenevent Europas und freut euch auf vier spannende Tage voll wissenschaftlichen Austauschs mitten in Wien 🔥 👉 15. IEA-Wärmepumpenkonferenz 2026 📆 26. bis 29. Mai 2026 📍 HOFBURG Vienna #wärmepumpe

Environmental Story Telling. This guy has his priorities #vtuber #vtuberclips #funny

In this video you can see a visual map of some of the neurons within a fruit fly’s ventral nerve cord (VNC), like that of a human’s spinal cord. Neurons progressively stack on top of each other and at the end of the video, you can see a rough neuronal map of the VNC.

Looking at two new AI tools Unbound io doing SDF blobs > AI image > Mesh and World Lab's open source engine doing image > full environment (meshes, physics, lighting, audio) I think soon we won't be able to tell when 3D assets are AI-generated...

Fragwürdige Wahlen, #EU- Aufnahmeprozess auf Eis, Proteste zigtausender Oppositioneller. Der prorussische „Georgische Traum“ zementiert seine Macht. Lascha Bakradse ordnet die Situation in #Georgien für uns ein - in unserem #History & #Politics-Podcast:🎙️ tinyurl.com/2ef6pbwu

🏡Cutout Village✂️ Un proyecto del estudio español @devilishgames.bsky.social que llegará en 2026 y que mezcla narrativa, simulación y gestión con una idea preciosa❤️📖 ¡¡Ya wishlist en Steam!! 👇🏻👇🏻👇🏻 store.steampowered.com/app/3907910/... #indiegames #tuyoyelindie #cutoutvillage

Quick update: here’s the first 10 seconds of the trailer I’m building for [4‑E.V.A.]: Repentance — the cyberpunk vampire epic If you’ve been following the posts this week, backing issue #1 now makes a huge difference t.co/kd5oHk9Dwx #GraphicNovel #IndieComics #writingcommunity

A new “gateway effect” study claims vaping leads to smoking - but its own review admits the evidence is biased and low quality. That contradiction isn’t just sloppy - it raises serious questions about how conclusions are being framed. Science deserves better than mixed messages.

The world's moving too fast. Everybody’s optimizing something. Meanwhile these Labs have cracked the code: watch cartoons, avoid unnecessary labor, bark at suspicious squirrels, never trust anybody who schedules a meeting before breakfast. 05.16.2026 ☕️🐾🌞 #CoffeeWithWalterAndWaylon #SaturdayVibes

He saw a squirrel.

Camping La Sirène The new water park at this magnificent 5-star campsite is now ready. The result: fun for the whole family (with heated pools!). 👉️ Discover MUCH MORE and SUBSCRIBE: amusementlogic.com/company-news... 📽️ @campinglasirene 🎼 Joel Cummins, www.youtube.com/@JCStriking 🏕️ #amusementlogic

It's time for waking the demon #BeneathABlueMoon

¿Este tipo es real? Ni siquiera Monty Python podrían haber inventado semejante bicho raro. Durmiendo mientras otro habla de su "mental fitness"; su nueva hazaña Is this guy real? Not even Monty Python could have invented such a freak. Sleeping while someone else talks about his "mental fitness."

I once thought that gold and the color gold was pretty to look at and represented wealth, class and style. Now I only see it as tasteless and trashy.

Come meet Ben Franklin, he’s here until 3:30! 2206 South Street

Israeli ministers who have openly called for the ethnic cleansing, forced displacement, and starvation of Palestinians marched in New York City’s "Israel Day Parade" alongside Israeli lawmakers and U.S. officials. Among them were Bezalel Smotrich, who is facing an ICC arrest warrant request as

F*ck ai.

Ukraine gave up nuclear weapons. Rubio’s list still left Ukraine out. ㅤ Keating reminded Rubio that Ukraine once held the world’s third-largest nuclear arsenal and gave it up under the Budapest Memorandum. ㅤ The legal word was “assurances.” The moral word was promise.

Guten Morgen, liebe Maidlovers ❤️ Lasst es diesen Samstag richtig krachen! Heute gehe ich das letzte mal Schwimmen, bevor am Montag meine OP stattfindet. Danach hab ich erst mal 6 Wochen Schonfrist und darf mich körperlich nicht anstrengen (✿◡‿◡) ▶️ Seid ihr sportlich?◀️